teachermcnic – I wondered how long it would take you to pop you combined heads up on here! You'll be pleased to know that the card from the Park lot contained just a card and thankfully no underwear!!
Thanks for all the messages about how good Meg looked at the wedding. And thanks for the begrudging messages about how I look 'alright'…!
Back to business;
I went for my third chemo session at the Marsden yesterday. After the bloods were taken, and I'd performed my obligitory 'please sit here and wait whilst other people come in, get treated and leave before you' session I was finally sent through to start my treatment.
After having my premeds (steriods, piriton), which were higher than normal due to my allergic reation last week, the Paclitaxel (Taxol) was to be delivered at half the rate of last week, over two hours. Lo and behold, after ten minutes of delivery, I had another allergic reaction and the treatment was stopped. Cue several nurses umming and ahhing, and the calling for the oncologist.
After a polte argument about other techniques for delivery (according to her, very few; "You can come in as an in-patient Mr Fradgley, we'll flood your system 24 hours beforehand and hope that you don't have an allergic reaction")she stated that the drug wasn't actually the issue; apparently its the dye/liquid that they use in conjunction with the Paclitaxel that causes the reaction. So I argued that maybe they should replace that element instead. She and her team were obviously pretty exasperated with their non-conformist patient and retreated to the nurses station to talk.
Now heres the strange bit.
I'm on the list for approval for a drug called Caelyx. Apparently ts pretty difficult to get, and costly, so the Royal Marsden Team have to apply to my local PCT to pay for it before they can deliver it. We were informed originally that the state of play would be to have the Paclitaxel for 6 weeks, and by that time the Caelyx would hopefully be available, but both drugs would be used in conjunction with each other.
We've been waiting to hear about the Caelyx for ages, but with no news.
The oncologist walks out of the nurses station with a big smile, puts here hand on my shoulder and declares that unbelievably, the approval for the Caelyx has been approved and they can start next week with no more need to take the Paclitaxel.
I smell a rat. It's all a little to convenient for me. I cause a problem, ask too many questions and all of a sudden the drug that we'd specifically asked to be informed about the second it was approved miraculously comes on the scene? And I no longer need the Paclitaxel, even though they set it out in the original treatment? Hmmmmmm…….
There are apparently other ways in which Paclitaxel can be delivered without this dye/liquid. The oncologist must know this, yet nothing was said. Has anyone out there had other similar experiences? I need to know; I'm going to phone the hospital today and discuss. It seems that they actively encourage patients not to ask questions that are difficult to answer….
By the way, you all look lovely today.
Mark