Hope the new drug does the business mate.
IME when trying to get treatment you need, you've got to shout and scream for it (say thanks when you get it), it's really, really hard if being belligerant and a pain in the arse isn't in your nature, but you've got to do what you've got to do.
if it was your kid going through treatment, you would ask every single question and not get fobbed off. don't give up making a fuss – it's the fight in you that's going to get you better.
They say it's the squeeky wheel that gets the oil…..
p.s. didn't say how ace your photos looked – both of you look fantastic. you're also a big bugger – if I was a consultant I'd give you anything you wanted!
Keep chipping away at it mate.