Post viral fatigue

Due to underactive thyroid, my body temperature is unable to regulate. Quite glad it isn’t Summer as I became very self-conscious of sweating loads when inactive. Have resorted to wearing bed socks at night – pretty pink ones though!

flow – that’s some list of supplements! One thing I’ve started taking is vitamin D as when tested my level was extremely low.

Respect to you for sticking to a healthy eating regime and has obviously paid off.

Do keep us posted!

Thats nothing, you should have seen what it was like before I cut most of them out!

I will do, does me good to air my problems on here, saves everyone else having to listen at home 😆

How are you getting on with the thyroid thing? Are they not treating you?

Not sure if anyone has mentioned this:

http://www.drlowe.com/

Think upon the Forum as a self-help group – plenty of support/advice etc., the odd medical bod popping in – all welcome. 🙂

Medication has been upped following another blood test so in six weeks have repeat blood test done. Just finding it frustrating cos I can’t ride but have been doing some little walks. Managed almost 6 miles so quite happy with that.

Nice one, will take a look.

6 miles is pretty far to walk in this weather!

You need to have a good read of this site if you haven’t already

http://www.stopthethyroidmadness.com/

Yep, have seen that website! Have ended up overdosing on info and it doesn’t help when you have brain-fog due to thyroid disorder!

Positive mental attitude and not getting stressed is the way to go. 🙂

Ahh your a bit like me. Once I get something in my head, I research it to death 😆

Found another bit of interesting information this morning.

Mirtazapine, the anti depressant I am taking, causes blood sugar/insulin problems in patients.

Will be stopping that then.

Once I get something in my head, I research it to death

Hurrah for the web!

Re ad’s, doesn’t most of them interfere with blood sugar/insulin? Certainly ad’s are not recommended for thyroid disorders but unfortunately ad’s seem to be first port of call. Easier than looking for anything else, says she is cynical mode. 🙄

Yeah I have just found that most do. Better get off them and see what happens, I might be back to normal!

How’s everyone doing?

I had a blood test today, an “MOT” the doctor called it. Was supposed to be a fasting test but I woke up in the night and had to eat something.

I’ve been slowly reducing the AD, I think that caused me to have a crap sleep last night, at least I hope it was that and I’m not sliding back into insomnia night after night again.

Other than that haven’t been feeling to great TBH, I just hope this new doc has some luck and finds out whats causing the problems so I can get back to normal.

How are you feeling after they upped your meds?

Oh, you’re not supposed to have a midnight snack! Did you speak to your GP for guidance before reducing your ad’s?

Fingers crossed that your new GP discovers what’s going on. Are you able to ride at all? Still on your healthy eating plan?

I’ve started taking another supplement – Co-Enzyme Q10. Have you tried this?

No difference with increased meds but didn’t expect much. The more I research the more cynical and jaded I become with my current treatment. 🙄

Flow – not meaning to sound negative, but don’t be surprised when the doc says everything is fine. If it is PVF then the bloods will be OK.

I was having a problems with my thyroid swelling up each afternoon and the bloods came back within tolerance levels.

Personally, I’m really good at the moment, sticking with the Gupta programme and its really working. Had an amazing 4 days on the road with work including two gruelling days in London and I’m feeling great at the moment.

Right…where were we.
At the docs a couple of weeks back, and ended up with more blood tests…liver function, Lymes disease etc. Got a call from them yesterday to say ‘no action required’.
Anyhoo…
I saw my witch doctor last Friday, who is a nutritionist, physio, acupunturist, and a whole host of other things beside.
I’d started a (largely) detox diet on the Monday and was feeling very good by the Friday – no lard, sugars, beers, coffee…had slept well etc.
Anyway Sheila ran a number of tests on me, including for food allergies, and the outcomes are as follows:
1. Still slightly abnormal liver/gall bladder function – almost certainly as a result of the virus. Vitamin B12/folate tablets to boost my liver and get it functioning properly again.
2. Breathlessness – as a reaction to the time that I had the virus and was having significant chest pains, the body had gone into a very shallow and fast breathing pattern and hadn’t come out of it. She doesn’t feel that a full Buteyko breathing regime is necessary, but rather some simple breathing exercises to slow and deepen my breathing.
3. Quite significant reaction to coffee, that i’d generally been drinking a lot of, with the same reaction to decaf. Stop drinking it in the short term. No other apparent food allergies or sensitivities.
4. A detox (or just particularly healthy) diet would seriously help in the short term.
She asked me a lot of ‘pschology’ type questions too, and looking back I don’t doubt I was reasonably stressed back in April, and that the PVF had got me a bit down since. So big doses of PMA required!
The result, a week in…I feel as good as I have in the last 7 months. Feel healthy, breathing is stronger (but not perfect), and I feel very positive and on the up. She thinks that a couple of more weeks and I might be ready for some gentle exercise i.e. commuting in on the bike again, which I have missed so much, and then gradually build it up from there.
Perhaps a more simple solution than i was anticipating, but happy to be on what feels like a good path.
A very happy boy at the mo, and I may try a very gentle bike ride this weekend.
Cheers
Fraser
And that’s it.

Bushwacked – you say your thyroid was swelling – do you mean a goitre? Keep an open mind about blood tests, ie the reference range and what exactly is being tested. Some tests can come back ‘normal’ when clearly the person is ill.

This may be useful for some:

http://www.thyroiduk.org.uk

fatmax – your post is sounding very positive. Good news. 🙂

Well peeps, its taking a while but I’m definitely getting there.

I have been walking for around an hour everyday for the past week, been keeping my blood sugar levels steady and the stress levels low.

I have been sleeping pretty well and I only ache for an hour at around 3-4 o’clock each day which is strange. I’m not complaining though, better than aching all day!

I have been buying bits for my bike ready for the maiden voyage in hopefully the not to distant future.

I might even take a slow ride on the road bike during the week depending on how its going.

Hey flow – that’s sounding really good. 😀 Did you have any more tests done in the end? Good luck with your slow ride and don’t put any pressure on yourself.

My body is doing a really rubbish job of regulating temperature, a side effect of thyroid. Ended up buying a 13.5 tog duvet and have a bedspread on top, not forgetting bed socks either!! Get very shivery during the day too and my hands are icy cold. 🙁

Hey flow – that’s sounding really good. Did you have any more tests done in the end? Good luck with your slow ride and don’t put any pressure on yourself.

I had another blood test for blood sugar, but it was “normal” which is to be expected really as I wasn’t having any symptoms at the time of the test.

I’m looking forward to riding my bike again!

My body is doing a really rubbish job of regulating temperature, a side effect of thyroid. Ended up buying a 13.5 tog duvet and have a bedspread on top, not forgetting bed socks either!! Get very shivery during the day too and my hands are icy cold.

Are you not getting any better at all then on your medication?

Ah, fair enough.

Nope, another blood test soon and then medication will be increased yet gain. Could take a year or so to get the levels right. 🙁

Nope, another blood test soon and then medication will be increased yet gain. Could take a year or so to get the levels right.

Bloody hell, that’s a long time!

Sure is!

Funnily enough, yesterday I succumbed to a white baguette and wished I hadn’t cos it’s really affected me! Normally only have wholemeal bread. Lesson learned. 🙄

Funnily enough, yesterday I succumbed to a white baguette and wished I hadn’t cos it’s really affected me! Normally only have wholemeal bread. Lesson learned.

What are your symptoms then?

Bloating/indegestion. Was a bit greedy so it’s my own fault!

c_g – you really need to get a hot water bottle.

Bunnyhop – good idea! How long do they stay warm for?

Mine usually lasts for 4-5 hours. Placed in bed about 20 minutes before bedtime and every thing is snuggly and warm. I’ve been known to wrap towels around it, ready for getting out of the shower. In fact it’s travelled the world with me.

Mmm I may even buy another for just snuggling up with, when watching telly.

Flow – nice one, keep up with the pacing and pma!

Cg – you been to see a nutritionist?

4-5 hours is pretty good! Dare I ask where does one buy hot water bottles these days?? Have a throw on the sofa that keeps me cosy. 🙂

Bushwacked – no I haven’t. Hypothyroidism screws up the metabolism and have put on a massive amount of weight. Reduced my fruit intake to virtually nil, increased veg and generally trying to eat the right things. It could be worth considering though.

How are you? Seem to remember you were doing the odd pootle?

c_g – guessing that ‘Boots'(other chemist chains are available) would be good.

I second getting some nutritional advice. It certainly helped me.

I reckon it’s worth looki g into a good nutritionist, helped me loads.

All is well with me, had quite a normal week and weekend last week with no nasty after effects. Few days off later this week to do some riding 🙂

I’m still watching my diet, breathing exercises, supplements, and off the coffee…and feeling good.
I got out on the bike last week for a short ride, and instead of being at ‘snails pace’ like I was a few weeks back, I was able to keep a nice steady effort – though obviously not giving it full whack.
Hoping to start commuting by bike tomorrow or Thursday. This would be a huge boost to me.
Where are you CG? I used Sheila Cozens, who is based in Gloucester, but pays the occasional trip to Edinburgh where I am.

Sounds as though both Bushwacked and fatmax are doing well – really encouraging to hear. 🙂

fatmax – I’ve looked at Sheila Cozens website and she does not specialise in nutrition, quite interesting skills though.

Bushwacked – who was your nutritionist? (I’m now in Wiltshire).

I have been absolutely floored today – but did a nightshift sunday night and have only slept in many short bursts since, Deffo got to me today tho. Unusual level of fatigue

I’ve been using Sally Whitman (blackberry nutrition) based out of cheltenham / Gloucester

CG – I realise that, but she appears to know an awful lot about food sensitvity and how it can impact on your physiology. Worth giving her a call? She’s read or skimmed through most of this thread before I met her the other week!

pleasebe very wary of “nutritionists” – anyone can call themselves a nutritionist and there is an awful lot of rubbish talked by them. Gilian McKeith being a prime example.

Some may be good but many are charlatans

Hows everyone doing?

I have made a bit of progress. Because I have taken quite a few antibiotics over the years for tonsillitis, my mum suggested drinking Kefir, a pro-biotic drink you can make at home to replenish my gut flora.

I remember reading about it on Dr Myhills site, she recommended it to so I thought I would give it a go. It has made quite a big difference! I have only been drinking it for a week but my stomach is much more settled and it has really helped with the aching which is strange.

Did you know that your gut flora make up 70% of your immune system?! I didn’t till last week, quite amazing really.

I have been riding my bike a bit, 20 min at HR zone 2, but it makes me very tired in the evening and strangely I can’t sleep at night, any ideas why?

I had a full body massage just before my birthday which was amazing. I felt really rough for a few days after though, all my original symptoms came back with a vengeance. She said it was called a “healing crisis”, mobilisation of toxins from the muscles or something. It certainly felt like one!

I have also been seriously pushing the PMA to the limits. This has made a big difference too.

It seems like through the whole thing I have been a month or two behind Bushwacked, which is pretty encouraging. Reading your posts are giving me an insight to what I might be feeling like next month 😆

All I’d say is don’t overdo it and don’t focus on the symptoms.