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[Closed] Anyone on here with hypothyroidism?

 dlr
Posts: 701
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Saw the BBC article earlier. Having recently moved doctors I am due a routine check on mine. I have never asked for the actual results before, just been told I am fine on current level, will make sure I get the figures this time.


 
Posted : 08/02/2017 4:27 pm
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http://www.mindbodygreen.com/0-3139/13-Ways-to-Treat-Hypothyroidism-Naturally.html
the info in this link is 90% complete bollocks #fakescience


 
Posted : 08/02/2017 4:36 pm
Posts: 17843
 

just been told I am fine on current level, will make sure I get the figures this time.

Ideally you'd want the FT3 test carried out but it's normally an Endo who would authorise this. Private testing is available and not as expensive as you may think, I can supply links for finger prick ones as well as those done at private hospitals/private phlebotomists. Do ensure you ask for the ranges too, this link will help with understanding.

http://labtestsonline.org.uk/


 
Posted : 08/02/2017 5:02 pm
Posts: 17843
 

the info in this link is 90% complete bollocks #fakescience

I would say the title is misleading but in your opinion what isn't bollocks?


 
Posted : 08/02/2017 5:03 pm
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There are some basic facts that are correct, but there are so many mistaken concepts or jumps of twisted logic e.g. protein transports thyroxin in the blood (true), eat more protein and so transport more thyroxin (bollocks).


 
Posted : 08/02/2017 5:20 pm
Posts: 8407
Full Member
 

I have two daughters who are low and a now ex wife who is high. You don't have to have it to suffer from it! 🙂


 
Posted : 08/02/2017 5:29 pm
Posts: 17843
 

There are some basic facts that are correct, but there are so many mistaken concepts or jumps of twisted logic e.g. protein transports thyroxin in the blood (true), eat more protein and so transport more thyroxin (bollocks).

OK, the Western diet is far too high in carbs with gluten being a particular problem for many including those with Hashi and high antibodies. Without wishing to generalise women often eat insufficient protein.

Would be interested to hear any further comments. 🙂

I have two daughters who are low and a now ex wife who is high. You don't have to have it to suffer from it!

Rubbish when inherited! Sorry that you're up against it. 🙁


 
Posted : 08/02/2017 6:24 pm
Posts: 7935
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This entire thread has horiffic parallels of GP ignorance and disinterest that my wife and I experienced over 4 years prior to getting a simple blood test to diagnose her primary hyperparathyroidism.

It's a slightly different condition, but the same unthinking dogma in how we were treated. We eventually sought advice from an American surgery on the topic who were streets ahead of current UK thinking, which, allowed us to successfully challenge gaps in her investigation and push for the correct tests.

When we finally got through to the consultant, they were totally upfront about GP endocrine knowledge being under developed.


 
Posted : 08/02/2017 6:53 pm
Posts: 17843
 

We have the BTA to thank for that. A gentlemen's club, previously accompanied by the RCP, who refuse to stay up to date with research and dismiss patients with an arrogant air. There are however little signs that they are shifting, at tortoise speed, from their draconian position. However I doubt very much that patients will receive better treatment in my lifetime.


 
Posted : 08/02/2017 7:39 pm
Posts: 17843
 

Just to add that the cost of buying my own thyroid meds has increased to £240 for the year.


 
Posted : 08/02/2017 8:01 pm
Posts: 8407
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Rubbish when inherited! Sorry that you're up against it.

Fortunately the youngest has responded extremely well to medication and everything is within normal limits. The ex wife is now in the process of trying to decide whether to go down the route of surgery or radioactive iodine. My elder daughter has only just being diagnosed but before she starts on thyroxine they need to get her iron levels up as she was also found to be anemic. Hopefully she will also respond well once she is on thyroxine. It does seem to be something that has for many years been missed in many people but awareness and testing do now seem to be slowly catching up with just how common a condition this is especially in women.


 
Posted : 09/02/2017 9:59 am
Posts: 17843
 

[b]avdave2[/b] hopefully your elder daughter will be prescribed iron, worth keeping an eye on the youngest too to ensure her levels are good. Your ex has a big decision to make and could be worth her joining UK thyroid forums to read/learn of the experiences of others. Need to sign up to read and post.

www.healthunlocked.com/thyroiduk (NHS Choices link to this) and home page
www.thyroiduk.org
www.tpauk.com (Thyroid Patient Advocacy)


 
Posted : 09/02/2017 6:11 pm
Posts: 17843
 

Bump!

[b]For anyone taking Liothyronine and some other medications the NHS is consulting on items which should not routinely be prescribed in primary care. This will be used as guidance for CCG's.[/b]

It's a bit wordy and you do need to read the consultation document here:

Online Survey:

https://www.engage.england.nhs.uk/consultation/items-routinely-prescribed/consultation/intro/

For anyone who isn't aware there has been a supply problem overseas for those of us who have to purchase our own Liothyronine. There has basically been a clampdown and many many thyroid patients have paid for medication that they're unlikely to receive. The supplier has refused to refund and it seems that nothing can be done.


 
Posted : 21/07/2017 4:30 pm
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