That all sounds much more positive. Have everything crossed for you.
That’s such good news. It’s just got a bit dusty in here just now. Best of luck with the treatment. I hadn’t been in this thread for a while, and bloody hell its taken some turns since I last looked.
Great news! ( I’d write more but I’m half asleep)
Edit
This thread has had more ups and downs than … fill in your own punchline
That’s great news poopscoop.
That's great news!
I should be able to be treated with a drug from a small stable
Horse tranquilisers?
^^Damn it! I knew it didn't sound right!
Oh my, that is incredible. I do hope that the small stable has something appropriately stallionish for you
Stay strong Poopscoop. You've got this.
Are we still doing Thread of the Week?
Hell, its even possible that, one day, I might not even need the drugs. Not that I mind taking them.
Again, I'll refer you to my mum. Paraphrasing, she said that it'd be easy to fall into thinking how crap it was that she had to take all these drugs. Her take is, isn't it bloody brilliant that I can take all these drugs and not die!
” been telling you for years, STW is much more than a bike forum and mag.”
Probably a decade ago I coined "STW: you'll come for the bikes; you'll stay for the bollocks." Now here we are, you're not providing the bollocks exactly, but, eh... probably in the right ballpark.
Great news poopscoop.
… so, has it gone down yet?
Yay!!!!
Great news! You might just look back on this for the better at some point in the future if it changes your outlook on things. But please, no photos post-op, not even artist impressions…!
That is awesome news!! Even though you may still end up as a cybernetically enhanced porn star ("What home automation for cyber-cock" thread soon?) I am really happy to hear that, in this case at least, the drugs are good.
Keep on with the living and the positivity, but i echo the "no pictures" comment.
****ing fantastic news! You’ve got this poop
Good news poops.
Robocock could be achieved through a couple of pipecleaners....with added benefit of seasonal decoration.
What home automation for cyber-cock
Poor Alexa...she didn't sign up for this.
Feels weird to say, but it's great news that you have "regular" leukemia 🤣
I still find it amazing that something that would have been a death sentence 50 years ago can now be taking care of by popping a couple pills each day.
Obviously still a lot to go through, but stoked for you and your family that the outlook is a lot brighter now!
I haven't been able to open this thread since "that" post a couple of pages back, I'm really pleased and relieved that the outcome looks somewhat better now.
Your sister sounds great. BTW...
Keep your spirits up...and you know, that other thing as well.
Talk about a thread of ups and downs.
Well mentally up and down, physically it is clearly mostly up
Hell, its even possible that, one day, I might not even need the drugs. Not that I mind taking them.
That's brilliant news 😊
Fingers crossed that it is as positive as that sounds like it could be - caution required, but I'm very pleased for you. I'm another one reading this and wishing you a speedy recovery. The twists and turns of life eh!
Sounds great news.
Amazeballz
I remember learning about Philadelphia chromosomes in medical school, and the new drugs that had just become available to treat it - they have revolutionised the treatment and prognosis of some cancers. That was only 10-15 years ago. Those interested might find the story of the development of Imatinib really interesting, it's targeted at a specific gene product (suspect it's one of the many things @TiRed knows a thing or two about, too).
So while I don't really know how all that relates to you, it sounds like you've been given some really good news 🙂
Loving the lust for life Poopscoop, crack on!
Keeping all fingers crossed (and possible malleable penile tissue too?).
I also saw “small stable of drugs” and thought of Shetland ponies taking MDMA and the like. So, you know, could be fun?
All the best!
Echoing the above and a big "Yayy!" from me. Good to hear positive news, keep kicking its arse!
Shetland ponies taking MDMA and the like
Everybody on board the party pony!
Great to hear some more positive news for you Poopscoop - also love the Roy Batty quote, you cant beat a bit of Bladerunner...(or some more life..)
keep up the fight...
Best wishes - U.z.
This is great news. Hope you see a rapid response on treatment.
Imatinib and other targeted therapies have really changed outcomes for patients in a magic bullet way. In the first ALL trial the results were already transformative. And 21 years later most advances in cancer, beyond immune stimulation, are using the same targeting similar well-understood pathways. KRAS in lung cancer being the latest (previously believed undraggable).
And on that good news, I'll now post the comment
It isn't over till the fat lady sings
Must surely have been the euphemism of the day. Deserved more credit.
It should’ve deserved more credit but most on stw aren’t used to making women sing 😋
What a rollercoaster short thread. Glad things are looking more positive and hope you’re out and about soon.
Couldn’t help chuckling to myself at every one of your posts starting
Poopscoop - Full Member
“I want more life, f***r”
We're all rooting for you. Not just in dealing with this illness, but with getting the most out of everything.
We’re all rooting for you.
Good to see the knob gags are still going
Sorry. Couldn't resist. But the sentiment was still genuine.
Go Poopscoop! We are with you.
F yes! That feels like a win, despite also still being pretty shy.
Now where is that f****r doing those onions!
And, keep it up, or failing that get it pumped!
Thanks for the continued posts and pee taking, ya bunch of sods.😁
Imatinib, yes, that's the drug being mentioned. Thank goodness for science and scientists is all I can say.
On today's rollercoaster ride...
Ive got a bit of a temperate so have just had a pctr done that will be processed in 24 hours.
Fingers crossed it's a negative.
Worst of all was telling my old mum I won't be home tomorrow after promising I would be, that was tough as she just doesn't understand it all.
Great news. And as the sword suggestion is a bit long, I give you - the world's smallest balloon animal
https://recordsetter.com/world-record/smallest-balloon-animal/51461
I think Stwhannah will be rather put out being described as such.
Hey poopascoop, sounding more positive
are you at Marsden in Chelsea or Sutton?.or did they just send your samples there?
I think I probably know who did the sequencing on your sample
^^ Hi, in st St George's in London but some samples were sent to Royal Marsden so I'm told.
Their results changed everything. For the better.
Still a little reluctant to embrace the news totally in case new, erm, news changes things again.
I think I probably know who did the sequencing on your sample
Missed that.
Small world, give them a huge thanks from me.
So good to hear that things are looking up for you poops
😉
Well time for an update I think!
Firstly, might be going home tomorrow. Chemo duties etc to be handled by my local hospital. I have to leave here by late next week hell or high water either way. Son starts in the police force so can no longer look after my old mum. No way on earth I'd let him sacrifice his new career over this.
Operation to repair cock is on hold for months at least. This is not good news. The operation will be much more difficult and prone to complications due to the scar tissue that will have formed internally by then. To minimise this I will have to:
Do physio on my cock, yes really.
Use a vacuum pump to draw blood into the area multiple times a day. This will also help reduce the effect of the scarring making the length shorten as it heals.
Take small doses of Viagra (the irony) to assist blood flow to minimise extra cell damage.
Basically, joking aside for a second, there's likely to be lifelong changes due to the priapism and this delay in being able to operate. Operating at the moment is deemed too risky due to an infection I have which they cannot find the origin of. Even with antibiotics its simply a no go.
If only I'd find to hospital earlier. If I had known the consequences id have found someone to look after mum sooner I'm sure but hindsight is a wonderful thing.
To be clear though, the priapism actually happening and being bad enough to get me to A & E, belatedly or not, might have helped me dodge a bullet with the leukemia. If it hadn't happened for another year or two, well...
Looking forward to getting home and most importantly letting my son return to his new and growing family that miss him terribly. I've felt guilty as sin "keeping" him away from his young lad.
I'm also aware that the unpleasant but also strangely comforting parallel reality that is being an inpatient is coming to an end and the real battles are to come. Both with the leukemia and Robocock. I'm also aware that I haven't really got my head around this new reality anywhere as much as I'd like to believe I have. That worries me more than a little.
I'm likely to be on these tablets for the rest of my life, one of the possible side effects is constant fatigue. That will be a challenge in many ways if I'm unlucky to suffer from it. Selfishly, I worry that it will be the end of my love affair with biking and specifically the North and South Downs. Silly in the grand scale of things but it's how I feel.
This whole experience has already changed me and it will continue to do so and I'll try to make those changes positive ones. Even on my most depressed days (I've had depression most of my adult life but that's another thread entirely) I'll find it hard to take life quite so much for granted as I've become accustomed to doing. That alone is a positive.
I'll keep this thread updated all the time it seems relevant in my life and jokes along the way are both acceptable and encouraged!
Lastly, being a man is so irritating in its predictability sometimes. A particularly attractive urologist was having a chat with me yesterday and some of the news wasn't great, my cock getting shorter over the next few months being one that comes to mind! Anyway... She goes on to say "but at least it won't be so much of a problem for you as you are well above average in size." Well, well, well. Try as I might I could not stop the corners of my mouth start to turn up into the start of a smile.
How bloody predictable. I've stared my own mortality in the face but tell me I've got a big cock and I'm fit to giggle!
Personally I think she only said it to get a rise out of me.
What a roller coaster of emotions over the last couple of weeks. As you say, however bad this has been, it could have been worse.
Enjoy the "physio"
Fingers crossed things fall in to place, you get home as planned and you are able to carry on biking in some capacity @Poopscoop. I think you should also create a ghost account on here as @DirkDiggler following that news, certainly made me giggle too.
Edit. Darn, looks like that account is taken! Maybe mods can transfer it?!
That's some positive attitude right there Poops-baby.
Always look on the bright side of life...
Last Friday I finally after having the idea in my head for 35 years rode the SDW in a day. I did it then because it marked what would have been the 100th birthday of my friend and neighbour Steve. He died in the last days of 2019 and I started a thread during lockdown at what I found when clearing his garage.
And if that wasn't enough motivation I very much had you in mind too Poopscoop, no way I was going to quit no matter how hard it got. I really hope you get back up their in the not too distant future. When I posted on a SDW thread recently and mentioned my plan to do it this year you posted to wish me luck, I hope that luck comes your way and you know this will always be a place you can turn to when it's difficult as it certainly will be at times.
Oh, another positive.
Another possible side effect of the drugs I'll be put on is a windy bott bott.
No matter got bad life is, a good fart always cheers me up and now I can legitimately pay the cancer card if admonished.
Hell, even if the drugs aren't causing it, no one can prove its not them.😁
I remember the thread about your friends garage. I also remember you posting your intention to ride the SDW in a day and well done on completing it.
Thank you for posting. Im a little emotional here after reading your post but in a good way. A good way.
Thank you.
Get well Poopscoop.
There is a lot of positive stuff in your update Poops, even if it is not necessarily obvious to someone who has had their life suddenly and unexpectedly turned upsidedown.
And I get the impression that you understand the importance of focusing on that rather than the "ifs". Good luck.
What I’m getting from this latest update is ‘I’ve got to stay at home and massage my massive cock’. Is this a stealth ad for your Only Fans page?
😂😂
stwhannah
Full Member
What I’m getting from this latest update is ‘I’ve got to stay at home and massage my massive cock’. Is this a stealth ad for your Only Fans page?
Not a stealth ad that's for sure but I do now wonder if when my oh called me a massive dick a few weeks back it was actually a compliment.
I just thought she was a bit cheesed off with me but now I think she was actually being sweet.
Who knew?
In fact I might have to re-evaluate some of my exes as they said similar. Often!
You're the 3rd person I know who was diagnosed with leukaemia following some not related ended them up in hospital.
I can highly recommend attending your local Maggies centre for the monthly haematology group sessions, I found mine really useful shen I needed them and the advice and support we could offer each other were fantastic.
JK
Use a vacuum pump to draw blood into the area multiple times a day.
Thats not my bag baby
Well glad you're ok for the most part poopy 😉 This leukemia gig is fairly getting about. or is it that it's just popular 😕
I got a diagnosis a couple of years back. I'd been sweating buckets from simple working in the garden, so had a blood test, which led then to ask for more blood tests (uh-oh)
Apparently theres something weird with the white platelets and they diagnosed a form of leukemia - apparently theres a number of different strains, not all bad. Maybe a bit debilitating, but I've been told its not going to lead to the cancer version, and for me is it apparently natural, so not to worry about it.
This has always been the case with me. I do physical effort i start sweating heavily, but always just put it down to being too hot, but this problem leads to me easily overheating, which then means i sweat a lot more. I didnt really take notice till things got bad enough even simple tasks had me sweating seemingly far more than you'd think was normal.
Funnily enough it was the specialist who seemed more relieved when they finally got me in for the results. I was like meh, but the specialist was literally physically relieved she didnt have to give me some bad-to worse news. I thought she was going to burst into tears or something .
To me its over my head,besides, what really can you do about such things other than accept thats the deal. so i must have had the most neutral reaction to the news.
So does that mean you are getting a cock pump on the nhs?
I hope they provide it in a brown paper bag, and presumably we (the tax payer) are not having to pay for a pornhub subscription for you
All the best Poop but I'm curious about what caused the Priapism in the first place...?? Was it directly attributable to the CML?
(Apologies if I missed this in this thread)
Use a vacuum pump to draw blood into the area multiple times a day.
Thats not my bag baby
Oh behave 😆
Poops, if you want to go for an easy ride and a pint in the Robin Hood sometime, let me know.
had their life suddenly and unexpectedly turned upsidedown.
And that is the story of how I became the Prince of Bell End.
/thread
😂
😆
😂
Bunch of bar stewards!😁
@tenfoot might well take you up on that my friend. I will have to ride in a "driving miss daisy" style though. In other words, pretty much for I normally ride.lol Absolutely can't prang myself at the moment. My old mum would have to go into some sort of emergency care if I went into hospital. Got to put a post up about this actually...
But yeah, a gentle ride would be fab in a few weeks or so. I won't have a raging erection by then either. I'm sure we both hope that to be the case anyway. Could be a little awkward otherwise.😁
@dyna-ti
Well, don't I feel a right bastard for getting all high and mighty with you in the Ukraine thread! Another life lesson learnt and my sincere apologies. I'm glad to hear it's pretty benign though. There really are a huge range of leukemias out there. Google throws up all types of oddities. Im not googling my type anymore, for the moment anyway.😉
I’m sure we both hope that to be the case anyway. Could be a little awkward otherwise.😁
Yeah, riding off into the woods together might raise a few eyebrows 😆
^^If it raises anything else on you, I'm off!😁
caused the Priapism in the first place…??
Most likely, yes. See also sickle cell anaemia as another cause of priapism. Basically the cellular constitution of the blood affects its viscosity and fluid in and out of the chambers. The blood gets in, but doesn’t get out.
Hope all goes well with the recovery poops. The physio sounds erm… interesting. I believe a retired baptist minister and his “friend” Henry might have been doing the same physio. Be careful where you exercise. Just in case.
https://www.oxfordmail.co.uk/news/20279655.retired-vicar-performing-sex-act-henry-vacuum-cleaner/
And if you don’t feel the need for something hard between the legs, you’re welcome to come and try the recumbent trike.
If it raises eyebrows, your nurse was right.
^^ Ha!😆
Sorry, got to post again, don't want to end my post on post 313.
Diont like the no. 13 and don't want to jinx going home tomorrow!lol
Personally I think she only said it to get a rise out of me.
* raises eyebrow *
Really?
^^I'll never know for sure.😉
He was also ordered to pay £845 in court costs and £200 in compensation to the victim who witnessed the sex act.
Good to see that the court recognised the need to compensate the victim for the trauma of witnessing a 74 year old vicar wearing nothing other than lady's stockings engaged in a sordid and frankly unnatural act with an industrial vacuum cleaner.
And I have to agree with the final comment by the magistrate.
Although I thought Henry had a very cheeky smile in the photo.
What I’m getting from this latest update is ‘I’ve got to stay at home and massage my massive cock’.
I just wanted to say that's one of the funniest things I've ever read on the internet.
Well, don’t I feel a right bastard for getting all high and mighty with you in the Ukraine thread!
Hey no probs matey. Its water under the bridge, and only a loon would take anything serious out of an online set to. Nowt to be embarrassed about. we all argue here its just banter far as im concerned. We can get angry and upset at the time, but a few days later, its all forgotten about and I honestly haven't made inquiries as to Cougars home address.
Im not googling my type anymore, for the moment anyway.😉
The internet always pops up the worst case scenario, TBH its best not to google this type of thing.
Especially images 😯
if you don’t feel the need for something hard between the legs, you’re welcome to come and try the recumbent trike.
So hard to not read innuendo throughout this thread