Leukemia info neede...
 

MegaSack DRAW - This year's winner is user - rgwb
We will be in touch

[Closed] Leukemia info needed

14 Posts
10 Users
0 Reactions
39 Views
Posts: 293
Free Member
Topic starter
 

Ok someone very close to me has been diagnosed with Leukimia, ther are 18 yrs old, what is the prognosis, don't sugar coat it please.

Just found out 1/2 hour ago, bit stunned.


 
Posted : 06/11/2014 7:18 pm
Posts: 0
Free Member
 

Various types of Leukaemia, some worse than others. One for the doctors.


 
Posted : 06/11/2014 7:20 pm
Posts: 0
Free Member
 

Yes, some very treatable, some not so treatable. As said above, one for the doctors.


 
Posted : 06/11/2014 7:27 pm
Posts: 0
Free Member
 

Although I don't recommend looking at any old thing on the Internet, have you tried the nhs website or the Cancer Research UK website. They will have trustworthy information.


 
Posted : 06/11/2014 7:47 pm
Posts: 0
Full Member
 

Start here

http://www.lls.org/#/diseaseinformation/leukemia/

All the best


 
Posted : 06/11/2014 8:17 pm
Posts: 0
Free Member
 

As already said you need to find out which type. Outcomes and treatment vary a lot!

I've got CML (chronic myeloid leukaemia) myself, fairly early on but treatment is fairly mild and prognosis is very good, not all leukaemia's are as as bad as most people's initial reactions.

Macmillan website is a good source of info once you know the type too.


 
Posted : 06/11/2014 8:58 pm
Posts: 0
Free Member
 

Btw if it turns out to be cml, I'm more than happy to chat about what I know, I'm a few months in now and have a pretty good handle on things. Life's getting close to normal already


 
Posted : 06/11/2014 9:11 pm
Posts: 32553
Full Member
 

As others have said, depends what they have.

Definitely contact McMillan, from what I've been told, they are very helpful at any stage in the treatment.

And best of luck to you all.


 
Posted : 06/11/2014 9:15 pm
Posts: 293
Free Member
Topic starter
 

Thanks for the best wishes, Docs say he has a 60% chance, got my fingers crossed.


 
Posted : 08/11/2014 2:22 pm
Posts: 9183
Full Member
 

Oh man... Thinking of you both. There are different types so make sure you get a full understanding of that. My only recommendations would be:
1). Ask if you can record the discussions with the consultants - so you can review and understand the information and can ask more informed questions
2). Ask for a second opinion when it comes to interventions


 
Posted : 08/11/2014 4:02 pm
Posts: 293
Free Member
Topic starter
 

Thanks jam, this is all happening in Sweden so I am just a passenger.


 
Posted : 08/11/2014 5:08 pm
Posts: 1369
Free Member
 

PF, did they tell you what the 'patient' actually has? (Would imagine CML or AML).


 
Posted : 08/11/2014 5:36 pm
Posts: 293
Free Member
Topic starter
 

Coed no his mum just said the "worse" kind, as you can imagine she is a bit of a mess. He was complaining of a pain in his leg about two months ago, went to the doctors, currently in a hospital in Gothenburg having chemotherapy.

Again thanks for the replies.


 
Posted : 08/11/2014 6:14 pm
Posts: 0
Free Member
 

Doesn't sound like cml

Given his age and the fact it sounds like its acute, my guess would be ALL

Best of luck to him


 
Posted : 08/11/2014 7:08 pm
Posts: 364
Full Member
 

At 18 it could be anything, sounds acute but could be a high grade lymphoma.
As unbelievable as it sounds I have seem myeloma and Cll in patients as young as 18.

Not a doctor but have worked diagnosing leukemia for almost 10 years in specialist hospitals so can give some information if you can find out what it is.


 
Posted : 08/11/2014 7:48 pm