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Just been diagnosed...
 

[Closed] Just been diagnosed with Leukaemia

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Not leukaemia directly, but I can relate to you.
My 2 year old son was diagnosed with Langahan Cell Hystiocytosis at the start of the year -25 cases a year. He has been having chemotherapy since then and is currently having it daily with a larger dose every 3 weeks. He has a drug (amongst a cocktail of others) that is also used for leukaemia and will keep having it for at least the next year or so.
He has had numerous blood transfusions due to his platelet count and regularly stays in hospital.
Macmillan have been great for him too.

Basically the drugs are working and I have seen an improvement I only prayed for.
As obvious as it sounds, when it gets tough, look at your 2 year old and keep going for them, you WILL get through it.
I wish you the best of luck to you and your family.


 
Posted : 22/09/2014 10:05 pm
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The wife is a haemeo oncology nurse, and the MIL was diagnosed and beat leukaemia about 10 years ago. Stay positive, people will do all they can. Good luck.


 
Posted : 22/09/2014 10:09 pm
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Shit ๐Ÿ™

Fingers crossed for you


 
Posted : 22/09/2014 10:14 pm
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Good luck, You can do it.


 
Posted : 22/09/2014 10:20 pm
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No advice whatsoever but best of luck with the treatment and I hope it's not too disruptive to enjoying your ongoing daily family life (the twos are great!).


 
Posted : 22/09/2014 10:29 pm
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I've nothing useful to add.

But good luck fella, get it beat.


 
Posted : 22/09/2014 10:31 pm
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Best of luck with this Keith, and everyone else who's going through similar times.


 
Posted : 22/09/2014 11:15 pm
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All the best Keith.


 
Posted : 22/09/2014 11:24 pm
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I wish you the best of luck for a speedy recovery.

But honestly, from reading how positive you are about it all, it'll be your attitude that pulls you through this. You've got the right outlook and I'm sure all will be well.

Keep your head down and fight one battle at a time and before you know it you'll have the all clear.

Good luck!


 
Posted : 22/09/2014 11:39 pm
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Sorry to hear of your diagnosis and best wishes for a swift and full recovery!

Hopefully you won't need this, but should your circumstances lead to financial difficulties, for example through having to be off work for a long period of time, Macmillan have a partnership scheme with Citizens Advice which can help ensure you and your family get the appropriate financial support during your illness which will enable you to focus on getting better rather than becoming more stressed due to your changed financial circumstances.


 
Posted : 23/09/2014 12:46 am
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Nothing to add but a hearty, warm "good luck fella!". Its a new challenge and you're gonna win.


 
Posted : 23/09/2014 2:37 am
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Nothing useful to add so I'd just like to wish you good luck with the treatment and keep posting on here.


 
Posted : 23/09/2014 2:49 am
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All the best for you mate.


 
Posted : 23/09/2014 5:24 am
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bugger. get well soon.


 
Posted : 23/09/2014 7:13 am
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Whip it's arse until it leaves and loses the keys. All the best fella.


 
Posted : 23/09/2014 7:40 am
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Thanks again everyone, yep a new challenge for sure. I was just saying to the wife this'll be the thing to kick me up the arse and get me really fit again. Been a slack ish couple of years really with the little one and a house renovation but still managed, amongst other bits and pieces, the RatRace coast to coast last year and a 3 Peaks Yacht Race this year all be it very slowly! We think it was just starting\lingering then, I hadn't trained enough as I'd been ill on the run up to it and it took ages to shake the bug but I really struggled far more than I expected. I felt so guilty for my running partner as I held him up so much, but we finished which was the main thing.

I can't imagine how you guys get through it with your kids, bdg, muppet4 and anybody else. I really don't think I'd be coping so well if it was him. You guys have my utmost respect for keeping positive and your well wishes as well as everybody else's really do mean a lot. Hope your kids kick their conditions too and lead a full and happy life.

In the grand scheme of things it sound like I've got it easy and should be absolutely fine.

I've always donated whole blood and for several years I went almost every month and donated platelets too and have always raised cash with my events for hospices and cancer charities having been affect by it with family. I had to call the blood people the other day to get them to take me off their list but I know for sure I'll be back doing events again and doing my best to raise a much cash as I can for those important causes.


 
Posted : 23/09/2014 9:20 am
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All the best to you.


 
Posted : 23/09/2014 9:22 am
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All the best man.


 
Posted : 23/09/2014 12:24 pm
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Not sure if it helps but I had testicular cancer at 29 and then I had malignant melanoma (skin cancer) at 44 and I'm still here and still doing most of the stuff I used to do. Most of the stuff I can't do is more to do with being 49 with a busy job and a family rather than having been ill!

At times it'll be hard to keep upbeat so it's OK to be angry or cry because it's important to remember you've been dealt a shit hand so these emotions are OK.

Best wishes.


 
Posted : 23/09/2014 12:33 pm
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cheers, it's a life long thing no permanent cure but very effective drugs to keep it in remission permanently hopefully, but sound like the affects will be pretty minimal once we're there


 
Posted : 23/09/2014 1:20 pm
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