Forum menu
Tricky - happy to discuss, email me on barnt at hotmail com
Back to normal but carry some scars. But the good thing is I'm loving riding again - just had a great quick hour over lunch 🙂
Tom - so what would you do if you were me? I am still having some unexplained symptoms. I am at the end of what my GP can offer. Where do I go now?
I had an adverse reaction to tetanus jab as a wee kid and have never had another booster since despite ending up in a&e with various muddy holes in my body a fair few times, they won't risk it again. I think the last time they reckoned the original childhood one was enough to see you through anyway.
Interesting about the meditation, I know a few people that get a lot from it but I struggle even to do the relaxing bit at the end of a yoga class, just can't turn the brain off.
I wish the mods would ban some of the trolls on here.
I've been a big user of Headspace.com for a few years. Great way to relax and if you can't switch off keep practicing. I read a great book a few years back saying that irrespective of your form of meditation it is about training to mind to focus on one thing so it allows the mind to stop racing around.
trickydisco - its interesting that you mentioned a few stressful things that were happening before you got fatigued.
Several years ago when I fell ill, there had been 3 very stressful incidents that occurred beforehand. This convinces me that the body sort of shuts down for a while. Hth.
I've found meditation has helped immensely. I'm now at the stage where 10 -15 minutes can feel like an hours sleep.
Good to hear you have started meditating.
I have suffered from chronic fatigue (Not CFS) for many years and this is one of the things that has been most beneficial.
To be frank the NHS and traditional western medicine is shit for a lot of chronic health problems. Great if you have broken something, been in a car accident or have a virus they know how to treat.
Useless if you have had a load of tests and they can't find anything wrong with you.
Complementary and alternative health can be helpful, but it can be hard to find people who really know what they are doing.
tjagain - Member
Tom - so what would you do if you were me? I am still having some unexplained symptoms. I am at the end of what my GP can offer. Where do I go now?
I'm fatigued all the time, heavy legs up the stairs etc etc... I get home feeling a mix of totally knackered and jacked up like Im on coke. You're a nurse aren't you TJ? Probably work stupid hours like me, yeah? Then commute? Spend most of your life indoors in synethetically lit rooms?
Humans aren't meant to work 37.5 hours a week...let alone 50...70...
My suggestion is change your lifestyle, think about how happy you are....
Some of the docs here mentioned shit life sydrome, I suspect they are right.
And quit reading random research publications on the net, if its about you, you can't be objective and you'll end up worrying yourself in to worse health.
Meditation is probably a good idea as well...I bet some of you have deranged fight or flight responses. We evolved with a lot of threats in our environment, now we have very little but our brains are costantly on the look out fir them. I suspect that humans arent designed to cope with how safe pur luves are, we slowly lose our threat objectivity and we end up seeing it everywhere and our fight or flight mechanism gets permanently switched on. That will tire you - but hey....this is my unevidenced OPINION.
Tom - I am not under either physical or mental stress. I spend on average 20+ hours a week outside. I am happier than I have ever been in my life. Life is good. Its not shit life syndrome. It even used to happen when I was working an average of 15 hrs a week
My GP suggested it wasn't in my head and was something physical but that it was in the huge unknown areas in medicine. He offered me an appointment with the infectious diseases specialist or antidepressants which he reckons work in some cases of fatigue without the person being depressed
I don't worry about it at all. I don't go around reading up on stuff and worrying myself ill
good point about the fight or flight reflex - but it don't apply to me - the cycle commute burns off all the stress hormones and anyway as I said I am confident its not stress / anxiety or depression related.
I believe there are a whole series of issues that lead to these fatigued states and probably many causes physical and mental
Yeah TJ, it's worth noting that CFS IS a huge unknown and there is a strong possibility that many cases are physical - but good medical researchers are looking into it - Myhill etc are not these researchers and they're a pet peeve of mine. From the CFS sufferers point of view, these cranks turn their suffering into a joke amongst other researchers as well.
I apologise for being a bit of a dick about it.
I hope your issues resolve themselves soon.
Been decades Tom. I suspect it will be with me until I die
thanks for the apology. I share your irritation with voodoo medicine but there is some good stuff out there about alternative diagnoses and causes if you sort thru the chaff its about 95% noise to 5% stuff worth thinking about - fortunately my background gives me some ammo yo sort out which is which
Back to me for a mo - I think its immune system related. Glandular fever possibly as a kid, tick bite untreated as a teen, black widow spider bite in my 30s
Interestingly the night sweats seem to have stopped with vit D
TJagain - Sorry to hear that, I used to think that way and it's a crap place to be. For me sleep was (and to a degree still is in a small way) a problem but it's now a something I don't worry about and have ways of coping that don't really cause any issues (hence my reference to scars previously)
Haven't read this post for quite a while. I still have Chronic fatigue (it's now been 11 months) but thankfully the symptoms have reduced to the point i can do a desk job.
What do the naysayers think of the article in new scientist recently
Tomas and her colleagues measured the efficiency of mitochondria, the energy-generating powerhouses in cells. The mitochondria are the dominant source of energy for all of our cells. The team found that mitochondria in CFS cells can’t produce energy properly.“We’ve shown definitively that it’s a fault in mitochondria,” says Tomas. “It points directly to a physiological, not psychological disorder.”
So what do you say to that Tom_W1987? Are these researchers also Quacks?
I've massive sympathy with you. I had M.E./CFS/chronic fatigue for about 6yrs,and got little help from the NHS as frankly they did all they could. Blood tests normal except slight under active thyroid (fixed), some cognitive therapy as part of a study (presumably under the "it's in your head" remit), etc. Exasperated I tried homeopathy, "reverse therapy" (where I at least learnt working in recruitment was my thing) before I learned about "Perrin technique".
My first visit was life changing. I had a massive reaction to this lymphatic massage technique. I ached, was tired and had brain fog like the worst days of my illness. Worse than that even. I slept. Back again a week later and a similar but less drastic experience and so on. Within a few months I felt I could do more. Within a year, I was able to do longish hikes. Within 2yrs,more. And before 6yrs start to end, I was back on the bike.
That's rather a potted history but my somethingion is that I ride, race, drink and eat when and as I want nowadays and apart from a slow recovery from colds, I'm A1.
I also suspect ME has gotten a bad name as it's become the catch all for all manner of undiagnosed illnesses from mental to physical.
Mental and physical fatigue have had a major influencing effect on my life for a lot of the last ~25 years, mostly down to Seasonal Affective Disorder but also an underlying general depression.
While I've known for a long time that getting outdoors would help alleviate symptoms, which is the major reason I became a postie ~8 years ago, for almost all of the last 25 years I've been awful at simply going out for the sake of going out. If I had a purpose, like we needed some groceries, I'd pop out and get them. But by and large, I've been a hermit/recluse, hiding away from the world indoors as much as I could.
"Discovering" the outdoors through recreational (rather than just commute) cycling has helped me massively this year. Now my SAD symptoms are getting harder, it's nowhere near as easy to kick myself out of the house as it was back in mid summer, often leaving it very late to pop out not long before sunset... But even a shorter blast that planned like yesterday is better than no blast at all!
https://www.strava.com/activities/1295475034
Lymphatics glands permanently inflamed, night sweats to name two.
TJ - I take it your doc has had a full blood count done on you. When you say inflamed lymph nodes, do you mean painful to touch or hard painless lumps?
I recently had some private tests done which are very interesting. One is an ATP profile which measures mitochondrial function
This test measures various aspects of mitochondrial function relating to ATP and ADP in neutrophils: whole cell
ATP, ATP related magnesium, ADP-ATP reconversion efficiency, percentage toxic blocking of active sites and
translocator protein. From the results one can calculate a very approximate overall mitochondrial function score.
the results showed i had very low level ATP and very poor provision of ATP.
>n0b0dy0ftheg0at
Did you try supplementing with d3 at all?
No, tried St. Johns Wart and 5-HTP for a while, the former made me extremely sensitive to any light and the latter had no noticeable effect either way. I've got a Pharos Max lightbox, was one of the best on the market in 2006, no idea how it compares to the modern compact blue light gizmos.
martinhutch - Member
Lymphatics glands permanently inflamed, night sweats to name two.TJ - I take it your doc has had a full blood count done on you. When you say inflamed lymph nodes, do you mean painful to touch or hard painless lumps?
Not painful but I am aware of them. Every blood test imaginable
Not painful but I am aware of them. Every blood test imaginable
Where in the range do the numbers fall? If towards the bottom then won't be optimal.
Not painful but I am aware of them. Every blood test imaginable
How long have you noticed the lymph nodes being enlarged? Is it just in the neck, or did the GP check armpit and groin as well?
For my own peace of mind if I had persistent lymphadenopathy, fatigue and night sweats I'd want to be referred to haematology for a checkover, even with apparently normal FBC.
[url= https://www.researchgate.net/publication/271536688_Evidence_supporting_a_link_between_dental_amalgams_and_chronic_illness_fatigue_depression_anxiety_and_suicide ]Evidence supporting a link between dental amalgams and chronic illness, fatigue, depression, anxiety, and suicide [/url]
Certainly interesting reading. This was the result of my Lymphocyte sensitivity test
[img] 
[/img]
Have you tried any of this stuff? https://www.amazon.co.uk/Doctors-Best-Absorption-CoQ10-Veggie/dp/B00EL74P2C/ref=cm_cr_arp_d_product_top?ie=UTF8
Have you tried any of this stuff? https://www.amazon.co.uk/Doctors-Best-Absorption-CoQ10-Veggie/dp/B00EL74P2C/ref=cm_cr_arp_d_product_top?ie=UTF8
Yep, i'm taking a range of supplements which are helping. heres the results of my ATP profile test
[img] 
[/img]