Biobank. What'...
 

[Closed] Biobank. What's that all about then (In confidence)

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Got a letter this morning - in confidence - telling me that I'd been selected for Biobank. They'd got my details - in confidence - from NHS database, so all information is secure. Seems they want me to take part in a survey - in confidence - so that others will not be ill like I am, have been or might be. All results will be treated in confidence, and after my initial 2 hour interview my medical history will be monitored - in confidence - by access to my GP records.

Anyone know what this is all about.

They seem so damned keen on telling me that everything is in confidence and controlled by the Data Protection legislation that I'm beginning to smell a rat.

Anything this government does that involves databases leaks like a sieve, and as it's the NHS I wonder just what vast resources are being wasted to keep an office block of penpushers in a job.

Is this a worthwile exercise to go through? I don't mindgiving a bit of my time to help research or prevent future illnesses, but I'm left with the feeling that this is just creating more jobs for the burgeoning state sector. Any clues from anywhere what this is all about?


 
Posted : 27/01/2010 12:33 pm
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So, a company you've never heard of has got some of your medical records and contact details, without you having given your docs explicit permission to pass these on. Sounds confidential and secure to me.


 
Posted : 27/01/2010 12:40 pm
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Have you googled them? It looks like some sort of research project. They have a charity registration number and they can't read your records without permission. http://www.ukbiobank.ac.uk/ sorry can't do linky thing....


 
Posted : 27/01/2010 12:48 pm
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Take your tinfoil hats off chaps.

[url= http://www.ukbiobank.ac.uk/about/what.php ]Biobank[/url]

It's not a private company. It's a long-term project to build a database of DNA samples that researchers can cross-check against medical records on an anonymised basis.

If you don't want to be involved you don't have to be but it's a worthwhile thing.


 
Posted : 27/01/2010 12:49 pm
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They want your blood. I reckon it's a front for a vampire bloodbank, Blade stylee 🙂


 
Posted : 27/01/2010 12:49 pm
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It's a big and completely legitimate [url= http://www.ukbiobank.ac.uk/ ]scientific research project[/url] overseen by a highly respected [url= http://www.ctsu.ox.ac.uk/about/biographies/professor-rory-collins ]Oxford academic[/url]. I was invited a year or so ago and participated - I think it took about an hour. There's nothing to fear unless you're scared of needles as they'll take a blood sample....


 
Posted : 27/01/2010 12:58 pm
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Its a national research programme funded by Government with the aim of preventing illnesses through identifying common factors. Your name will have come from the national NHS database not from your GP.

I participated last year in Bristol - took about an hour and found it an interesting experience, and nothing to worry about (unless you don't like having a blood test). Nothing to worry about IMO.


 
Posted : 27/01/2010 12:59 pm
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WAKE UP PEOPLE !

It's some sort of eugenic culling / alien abduction selection scam - 20% of volunteers HAVE NOT BEEN SEEN since their attendance at one of these so-called research centres

I'm saying nothing more, except that a well known burger chain isn't short on meat these days


 
Posted : 27/01/2010 1:03 pm
 Olly
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youve been selected to have an attribute bred into the latest generation of "uber soldat" clones

are you tall? strong? shockingly handsome?


 
Posted : 27/01/2010 1:05 pm
 Drac
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[i]So, a company you've never heard of has got some of your medical[/i]

No, they haven't accessed them yet that happens after the 2 hour interview, in confidence.


 
Posted : 27/01/2010 1:08 pm
 wors
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a mate used to work for ukbiobank, its is as said a database of DNA.


 
Posted : 27/01/2010 1:10 pm
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So....you've "reached a certain age" then!

I went last year. I think it's a good project.


 
Posted : 27/01/2010 1:35 pm
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LOL@ scaredypants!

soylent green anyone?


 
Posted : 27/01/2010 1:36 pm