We really don’t know what the future holds. James has a condition called PNP deficiency for which the principal danger is immune system problems. He’s had two bone marrow transplants and – touch wood – he’s overcome that particular problem. The reduced mobility is a secondary symptom. It’s not so much a lack of strength – the fella is quite strong – but a lack of control and tone.
Since the condition is so rare no one really has enough experience to say what the prognosis is. All I’ll say is that he continues to make steady improvements. I never expected to be posting a video on YouTube of the little fella enjoying riding bikes as much as this, so we’re not without hope… 😀