• This topic has 33 replies, 21 voices, and was last updated 4 months ago by MSP.
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  • Atrial fibrillation
  • mildred
    Full Member

    I’ve had a bug the last couple of weeks; headaches, flu like symptoms & feeling generally unwell. Thinking back I think it may have been Covid as it was very similar to last time but without the loss of taste & smell (they’ve never really come back to pre-Covid).

    Anyway, I now absolutely feel fine but noticed my resting heart rate was high. Suspecting a dodgy garmin reading I manually checked my pulse only to find it was high & all over the place.

    Being unable to get a Dr’s appointment I took myself to the nearest walk in centre & following a load of blood tests & ECG I’ve been told I’ve got Atrial Fibrillation. I’ve been discharged to outpatients & that I will be asked to attend a further appointment for more tests. The Dr suspects it is related to whatever virus I had last few weeks. I was told that it might just go back to normal by itself but I might have to have an electric shock to put my pulse back to normal.

    I’ve also been told that due to having no risk factors usually associated with this, I am ok to continue exercising & living life as usual. That’s fine except I’m now shitting myself as I don’t really know anything about AF & what it means for me long term, let alone over Christmas.

    I’m feeling quite deflated by this, so does anyone have any experiences to share?

    branes
    Full Member

    I wouldn’t be worrying too much yet – AF is definitely one of the ‘better’ heart problems to have. In my case I’m pretty sure it was the booze – gave up and it hasn’t happened since. Covid (and all flu-like viruses I believe) are known to affect the heart, so it’s quite feasible that it will go back to normal.

    https://singletrackworld.com/forum/topic/irregular-hear-rhythm-ablation-experience-to-share/#post-11931293

    Twodogs
    Full Member

    As i understand it there’s several types of AF with varying solutions/outcomes. Some people live with it with no issues, others live with it but take anticlotting drugs to reduce the stroke risk, but quite often the op to put it back in normal rhythm is easy and effective. My type required an ablation to fix (for reasons i never understood the simpler shock operation wouldn’t have worked). I had mine done in 2016 and (toucchwood) it’s been fine since.

    Personally, if the doc says you have no other risk factors, I’d try not to worry…i know,easier said than done.

    There’s several on here with varying experiences of it.

    highlandman
    Free Member

    Short term: be particularly careful while gradually returning to exercise, back off at the least sign until you know the longer term likely prognosis and have been given specific advice.

    Medium and longer term: should be fine, depending on which variety and causal effect you have.  Can’t be more specific than that.

    For info, lots of my many ultra runners who I look after have AF, it is indeed common and it doesn’t stop them getting out and enjoying themselves.  If it has been triggered by a viral infection such as Covid, you do need to be extra cautious about your return to normal exercise, better to be too slow than too quick to get back up to big efforts.  Just make sure you have a very low tolerance for odd signs and head the warnings.

    Twodogs
    Full Member

    For info, lots of my many ultra runners who I look after have AF, it is indeed common

    When i had my ablation, my surgeon said he was seeing more and more cyclists with AF, and he though it was cos cyclists can spend hours on a bike at a relatively low effort and this was somehow causing changes that triggered AF. Fits with it impacting ultra runners i guess.

    swavis
    Full Member

    My wife (HDU nurse) recommended this as a first port of call.

    https://www.bhf.org.uk/informationsupport/conditions/atrial-fibrillation

    Hope you’re all healed and on the mend soon 👍🏻

    mildred
    Full Member

    Thanks all.

    The BHF information is very good, just what needed.

    The Dr say next steps are echocardiogram & Xray. My bloods came back normal.

    I don’t actually feel any different, & had I not been wearing my Garmin I probably wouldn’t know about it.  Bizarrely the wife’s heart rate is now very high, but without any irregular beats. She was also ill over the last couple of weeks with the same symptoms as me. 

    highlandman
    Free Member

    Both probably still post – viral, to a greater or lesser extent. It’s the new normal.

    mildred
    Full Member

    😠

    branes
    Full Member

    he was seeing more and more cyclists with AF, and he though it was cos cyclists can spend hours on a bike

    Hard to say – but I reckon if I wasn’t so generally aware of my heart from riding, HRMs etc I wouldn’t have realised I had AF. My dad had it and didn’t realise until he had a minor stroke.

    That said…. this https://velo.outsideonline.com/cycling-to-extremes-heart-health-and-endurance-sports/

    el_boufador
    Full Member

    Fellow heart arrhythmia sufferer here. Not AF but really strong premature ventricular contractions started in 2021. Felt awful and very very scary, brought on by exercise or lack of sleep, being run down and/or too much alcohol.

    Speaking to cardiologists all sorts of things can trigger AF or other arrythmia. Virus being one of them so it might just be that.

    For me, I had an ablation to sort it out – can be used for lots of AF cases also. That mainly fixed it but I still had a few less severe palpitations.

    Then about 4 months ago they just suddenly stopped. I can’t fathom a reason. Touch wood they don’t come back.

    You have my sympathy its a mind****. Try not to worry.
    That’s easier said than done though…
    The negative affects on my mental health were probably more severe than the heart issue itself (which was never life threatening just felt awful)

    Would recommend the book ‘haywire heart’ for a better understanding. Try to avoid self diagnosis though, and see what the cardiologist says.

    colournoise
    Full Member

    Weird. Was going to start a similar thread today. Think I might still as my symptoms are not quite the same.

    Bloody scary when anything odd with your heart  kicks off though.

    mildred
    Full Member

    The worst bit for me so far was that moment when the nurse who did the initial ECG seemed to double take at the printout look at me, look at the printout again & walked out saying, erm… I just need to have a word with one of the Dr’s. She returned about 5 minutes later, & walked me down the corridor whilst holding my arm, as though I would keel over at any point, to the emergency care unit… that moment right there & then shit me right up..!

    Flaperon
    Full Member

    Fellow heart arrhythmia sufferer here. Not AF but really strong premature ventricular contractions started in 2021. Felt awful and very very scary, brought on by exercise or lack of sleep, being run down and/or too much alcohol.

    I also have this, brought on by lack of sleep. The PVCs have shown on ECGs for more than a decade, but from time to time I suddenly become aware that they’re happening.

    Need to have ECGs every other year for work and my old doctor was brilliant. Retired cardiologist who just kept hitting the button on the machine to do a new scan every time he saw something he thought the CAA wouldn’t like, while at the same time complaining about cyclists and runners confusing the automated diagnosis.

    Ironically he died in October from a ruptured aorta. He was a lovely chap and sorely missed. The replacement is very thorough but has sent my latest ECG off for a second opinion. FWIW COVID and the flu mess with the heart, so don’t rely on a single ECG if you’ve got either at the time of the first test.

    longdog
    Free Member

    Not AF but really strong premature ventricular contractions started in 2021. Felt awful and very very scary, brought on by exercise or lack of sleep, being run down and/or too much alcohol.

    After a recent second opinion this is me too. Not alcohol as I don’t drink, but I’ve gone decaf on tea and coffee (not a massive coffee drinker, mainly tea) and it’s seems to have made a massive difference. I also have terrible sleep and suffer with it. Though my recent, and first, bout of covid sent it seriously racing and all over the place for several days.

    Was also a massive relief to be told I’ve actually not got microvascular heart disease and don’t need to take all the medication they wanted me to. It really had me worried, and no amount of saying don’t worry helped 🤣

    Just need to lose a shit tonne of weight now and try to build my endurance cycling back up without triggering it, maybe even ditch the ebike. #NewYearPoject

    surfer
    Free Member

    I had Covid over a year ago, followed by Pleurisy then developed AF. Had a number of tests and appointments with specialist who confirmed it was relatively common in distance runners (me) and cyclists. It hasn’t gone away but I am on anti clotting drugs. Still running daily (around 30+ mpw) and I get “flutters” every day or so.

    59 now but from my teenage years I probably averaged 40+ mpw running, up to 70-80 at my peak. Talking to a mate last week who also has it (he is 71 and ran 14:30 for 5k as a V40!) and we joked that if you didnt have you hadnt trained hard enough!!

    willard
    Full Member

    Welcome to the club! first things first: try not to worry too much. As has been said, there are much worse things to have. AF can be a range of things from annoying to making you miss exercise or take it easy for a couple of days, but just try not to worry.

    mine was diagnosed in 1999 after an admission to ER at my local place. I got a nice all day stay in cardiology (pulse at about 70 bpm, HR up at about 200) and then they zapped me a few times to make sure it went back to normal sinus rhythm. That was hilarious. I had ablation on in 2008 to fix it and, despite the odd episode even today, it is pretty much gone. Certain things will trigger it again, usually extremes stress, combined with exercise or cold, or really, really needing to pee (for some reason), but otherwise my life is normal or better than it was/has been since diagnosis.

    Anyway, long story without a real point to it. The big thing I wanted to say is that this is both controllable and treatable, but it is also something that pretty much exists in a mild form when people are run down as well. Something like a cold or recovery from one will for sure see me avoid super-heavy exercise because I know that is a trigger for me. For you, this could just be exactly that… a one off brought on by something as simple as running up the stairs to pee whilst stressed from a Zoom call and recovering from a virus. Just rest up for a bit. And try not to worry about it.

    Twodogs
    Full Member

    Thanks for that link, Branes…interesting read.

    Twodogs
    Full Member

    Incidentally I get very strong palpitations periodically when I’m stressed. I was worried that it was my AF returning, but happily not. Had a long talk with a GP who had a personal interest in palpitations, and he put my mind at rest….they’re almost always harmless and not related to AF in any way.

    ton
    Full Member

    14 years in and out of AF.

    3 x cardion version. failed.

    2 x ablation. both worked, then reverted.

    1 x surgical ablation. open heart surgery. worked for 7 years, then reverted.

    currently in permanent AF.  but not as acute as previously.   more like a very erratic heart beat.

    sometimes, your heart can prefer to be in AF. my consultant told me that mine must do, has it does not hold me back in any way really now.

    good luck.

    tpbiker
    Free Member

    Not AF (hopefully) but does anyone get a racing heartbeat occasionally for no reasons? I had an episode this morning, came in from a dog walk and my pulse was showing around 125. Pulse was steady (confirmed by an app I have on my phone), just about 20 beats per min higher than I’d expect it to be. I’m thinking too much alcohol over past few days and not enough water maybe the cause. Went down fairly quickly after a sit down

    MSP
    Full Member

    When I was diagnosed at a drop in center, they wouldn’t even let me walk to the ambulance, insisted on wheeling me out. Although to be fair my main symptom was difficulty breathing the afib meant fluid was building up in my lungs.

    Apparently most people can feel the irregular heartbeat, I think my only notable symptom before the difficulty breathing was what felt like bonking while exercising, which became more and more frequent but I just dismissed the effects of aging. But in the end I was in permanent afib and atrial flutter.

    I had 5 or 6 cardioversions, and 3 ablation surgeries. Been ok for 3 or 4 years now but probably on bisoprolol for the rest of my life. 

    I have massively cut down my alcohol and caffeine intake now, they are both well known triggers. And there does seem to be a link to endurance sports.

    smogmonster
    Full Member

    I point all my patients towards patient.info, tells you what you need to know about pretty much everything:

    https://patient.info/heart-health/atrial-fibrillation-leaflet

    surfer
    Free Member

    @Ton you recounted your experience with AF on here some time ago which coincided with me experiencing it. Sounds like you have had a tough time and I feel for you. I am glad to hear it is not holding you back to much.

    Apparently most people can feel the irregular heartbeat

    Yes mine is unmistakable and unnerving. Not sure it will be picked up by a HRM as that only takes samples so in my case I had an extra beat then a missed beat every 10-20 seconds so over a minute it looked pretty normal. When hooked up to an ECG however it was concerning and bouncing between 50 and 153!!

    fadda
    Full Member

    Reading this with interest.

    I was diagnosed with paroxysmal Afib in August and almost the worst thing about it for me is the psychological effect of making me feel older and less “robust” ( I’m 59 and have enjoyed very good health).

    All this conversation and the links are so helpful for me – I’ve cut down on caffeine (I love good coffee…) and alcohol (not so fussed, not a big drinker anyway), and have noticed it seems to come on more when I’m tired and often a day or two after strenuous exercise. Generally lasts for a day or sometimes two and them resets on its own, after which I can be fine for a week or two.

    I’m starting to understand that the best thing for it is to actually exercise more and get fitter, rather let yourself give in to it, but any talk of an increased risk of stroke is quite scary, even if it’s not greatly increased.

    mildred
    Full Member

    Well, alcohol definitely seems to be playing a part; I had 3 bottles of IPA & a brandy last night & looking at my Garmin this morning, my heart rate didn’t drop below 100bpm all night.
    In fact my Garmin reckons I was awake most of the night 😳
    I do like a drink but I’m not a massive drinker, & due to being on call every few weeks I often don’t have a drink for weeks at a time.
    As part of a weight loss diet leading up to the Megavalanche earlier this year didn’t drink any alcohol at all between March & July so cutting it out again isn’t particularly daunting; I think I’ll be more upset at giving up coffee..!
    Thanks all for your input. I definitely had an Oh Shit! Moment when I realised something wasn’t quite right.
    Again, referring to my Garmin data I can actually pinpoint the day it went funny. Saturday 9th December I did a 15 mile walk then went out for Chinese buffet meal with the family. I remember thinking at the time that everything tasted mega salty & I would’ve definitely been dehydrated from the walk. I drank orange & soda throughout this meal.
    Anyway, I remember that I felt shocking the next day but put it down to a night of poor sleep & salty food hangover. That week I never really felt much better, with the main symptoms being sore throat, wheezing chest, blocked/inflames sinuses & a weird feeling like my head at too much pressure in it, causing a stalking headache all week.
    I didn’t wear my Garmin much that week or last week, so I only have periodic snapshots, but it appears it all started weekend of the 9th.
    To those who’ve identified some sort of a trigger, do you find that if you remove the trigger, your heart goes back to normal after a while ?

    Twodogs
    Full Member

    my heart rate didn’t drop below 100bpm all night.

    Not surprised after 3 bottles of brandy 😂

    stevemakin
    Full Member

    Along with all the other stuff noted above, MSG is definitely one of my stronger triggers, had a Chinese takeaway last night and a can of beer, hardly slept due to the irregular pounding in my chest, I’ve had it for going on twenty years now and finally agreed to beta blockers about two years ago, they definitely work for me unless I drink too much, coffee is a trigger but also kicks off my IBS, the downside of the beta blockers is that these days a thirty mile ride wipes me out, that’s hard to take after many years of riding long days but at least I’m still able to get out and ride every day and am slowly accepting that a twenty mile ride is as enjoyable as a hundred mile ride, just a different type of enjoyable

    To answer your last question, yes removing all the triggers does result in a normal regular heartbeat for me, but where’s the fun in that 😉

    ernielynch
    Full Member

    I point all my patients towards patient.info, tells you what you need to know about pretty much everything

    I wish I hadn’t read that! I don’t have AF but I did have an ECG about 3 weeks ago because my GP was worried that I had an irregular heart beat, plus a much higher than normal resting HR and higher than expected BP.

    Everything turned out normal as did by then my HR and BP (had been issues for a couple of weeks).

    Things seemed to kickoff after a covid booster jab, I don’t know if there was a connection with that.

    Edit: My brother has been plagued with AF for many years, we have similar health backgrounds in terms of ex heavy smokers and he does a fair (but less) amount of exercise, and genetics obviously. The big difference I guess is that he drinks alcohol and I don’t. He has had loads of treatment for AF and yet he has told me that it has been triggered by just one alcoholic drink. I have no idea how anyone could enjoy a drink of alcohol knowing that.

    rone
    Full Member

    Mum got close to death with this – this year. A last minute desperate rush to Hospital (because she would not get it checked out earlier) turned everything around with pretty amazing treatment.

    Now back to ‘normal’ but lots of tabs.

    It seems fairly common.

    woodlikesbikes
    Free Member

    I developed AF as side effects to my second covid jab (phizer). After lots of tests etc. it disappeared after about 6 months. Was a bit worrying but nothing bad happened.

    The conversation with the GP was hilarious. “Do you think i should have the booster jab?”

    “I can’t really advise you either way. You might be fine, you might die!”

    ernielynch
    Full Member

    I developed AF as side effects to my second covid jab (phizer).

    Interesting, so perhaps my issues were caused by my last covid jab then. I will probably still have next year’s covid jab though, I can’t imagine that a bad dose of covid has any less risk of causing a high resting HR or palpitations.

    “I can’t really advise you either way. You might be fine, you might die!”

    The same can be said concerning covid.

    MSP
    Full Member

    I point all my patients towards patient.info, tells you what you need to know about pretty much everything:

    Interestingly that doesn’t mention sleep apnoea as a cause, which I discovered I had while in hospital getting treatment for my afib, and the specialist said was probably a significant factor in me developing afib.

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