Forum menu
have been quite miserable and have moaned about the missus's health on here quite a bit, sought advice, moaned about the NHS, etc etc.
basically I look after the missus full time since her chest conditions and other stuff got worse about 18 months ago, we're both only 30 btw.
we had resigned ourselves to a slow degeneration, and things were pretty bleak, shes been in hospital more than out just lately, didnt realise quite how much this had taken its toll until a junior doctor found some immunology test results a couple of months ago.
she got very excited about the results, and immediately referred us to go and see a specialist, we didnt dare hope tbh.
this morning we had "the meeting" with the specialist, a very nice lady with an intimidating intellect, who looked at my wifes test results, explained all the confusing conditions/symptoms which had been completely stumping her other consultants and the root cause which is a genetic immune deficiency.
she then went on to outline the treatment, and the likelihood of improvement, which is very high.
its difficult to put into words what this feels like, its a bit like being shut in solitary without hope of getting out, then getting parole, and winning the lottery...
really quite chuffed.
Absolutely fantastic news mate, I sincerely hope your wife makes a speedy recovery..
That sounds like wonderful news 🙂 I hope she sees a real improvement on things soon. Keep us posted.
Hurrah! Ace news!
Get well soon Mrs D.
😀 😀 😀
It really can be a lottery with who you get to see.
However that is great news. Best wishes to you both.
Great news. I hope that the various docs and medics can sort her out soon, now they know what the problem is..
🙂
Great news. Good luck to you both 😀
Wahay, nice one. Best of luck to you both.
lots of smileys.....
nice story. hope things turn out sunny.
Nice one pal, very pleased for you both
😀
Great news!
🙂
It's very reassuring to hear "someone in the know" say the things you so desperately wanted to hear and after so long. It must be a huge relief as you begin to move away from all that uncertainty.
Wishing you the very best of luck to your missus on her road to recovery. I hope it will be swift and complete.
Fantastic news, Tim! All the best to yer missus! 😀
Excellent - all the very best to both of you 😀
Play the lottery this Wednesday, you lucky man!
Another one!
My wife has common variable immunodeficiency (CVIA) - for years in and out of hospital and being told by GP to stop wasting his time as she was a tired young mum. Finally took a friend who is consultant and a locum at GP's to get her referred. She has been home subcutaneously injecting immunoglobulins for about 16 months - and is now at the lower end of 'normal' for an immune response, and so much better. no more chest infections etc every few days. It has been a slow response - no miracle cure - and she is on it for the rest of her life, but its great
drop me an email if you want to know more - if your area doesn't do sub. cut. home treatment, you should ask and pester for it as its much better than the intravenous fortnightly or monthly treatments. matt_outandabout AT hotmail.com
common variable immune deficiency indeed !!
I sooo hate having anything "common"
After about 6 years of repeated chest infections... you name it I had it....and repeated bad diagnosis ( I was told by docs I should eat better.. get more sun.. this kind of idiotic statement that I presume you've heard also) I was diagnosed with CVID when I was about 27. As my IgA and IgG are boderline low I only go for IV IgG infusions on an infrequent basis.. currently about 3 times a year.
Anyway the upshot of all this is I am now a fine , healthy (ok , ok mostly ) 54 yr old, and I no longer dread winter and my repeated bouts of pneumonia.
After a few IgG treatments I'm sure you'll see your wife drastically improve.
I'm really happy you have finanly got a proper diagnosis.
anyone for a CVID -STW club?
http://www.pia.org.uk/forum99849144/read.php?1,1348
http://www.healthboards.com/boards/forumdisplay.php?s=0d59609c47ae3072eaba9d78261f2865&f=73
http://www.immunedisorders-discussions.com/cvids/1/
some further good news today (all is smiles in chez drayton tonight)
shes had a couple of treatments now, last week had a nasty reaction (first big dose) but this week much better, and her first antibody levels have come back, and have increased.
yay
they predict them being back to normal regions in about 2 months.
she has been diagnosed with CVID btw (until they get more specific)
cheers all for the advice/links chaps
😀 😀
(i'm rubbish with words Tim so I'll let the smileys do the talking!)
Wow!! It's great to have some warming news on here!!
Well pleased for you & all the best for the future!!
I shall have a cheeky glass of red on your behalf & raise my glass.....(well, the bottle's open already! :wink:)
Tim, a glass is being raised here! Marvellous to have some really good news!
cheers from here too.
thats ****ing great, must be amazing having her health/life back
Did you have a good look at the lady specialist? What does she look like?
🙂
P/s: Oh ya ... good news indeed for both of you.
Sweet, sweet news - congrats to you both!!! Really puts other things into perspective.
excellent news, and as sv said, really puts other things into perspective.
Tim,never met you probly never will, but thats put a smile on my normally misserable boat tonight!
Good luck to the missus & you!
Bon chance, to both of you!
that's great news 🙂
Thanks for that Tim, you have considerably cheered a poor start to a crap day.
Please give her an extra hug on my behalf.
Hope it carries on for you both in this vein.
G
awesome, some good news for once *big grins*
great news, very happy for you both 😛
How wonderful it is to hear some really good news - I sincerely hope that things just get better and better for you both from now on.
My very best wishes.
Great news - I hope she goes from strength to strength.
I'm so glad you've finally got a name for what's caused all those months of uncertainty (the not knowing is awful) and that you can now look forward to better times. Bravo!