Sarcoma Tumor (GIST...
 

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[Closed] Sarcoma Tumor (GIST) - Need facts ASAP

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Not me, but I am going along as a second pair of ears tomorrow afternoon. Due to dreadful (non existent) comms from the referring hospital and denial from the sufferer I am now trying to get facts ASAP so I can ask the right questions and listen well

Can anyone point me at decent sources of info, specifically 'measures', stages, complications, different/likely treatments. Wiki gave me an overview. Macmillan some generic info about Cancer, but I feel like I need more info

I know Bullheart went through Sarcoma, but I cant find the thread 🙁 I am also sure there is some good info in there, but need to drill down to detail facts quickly and may not have time to read the whole thread

TIA


 
Posted : 10/10/2012 7:53 pm
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You'll have to google it, and read each one with an open mind. It's rare and so the info is not common.

Good luck.


 
Posted : 10/10/2012 8:02 pm
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have you tried the [url= http://singletrackworld.com/forum/topic/sarcoma-tumor-gist-need-facts-asap ][b]Sarcoma UK[/b][/url] site, there maybe some useful stuff there.

Good luck


 
Posted : 10/10/2012 8:08 pm
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...and do try to relax a bit. Cancers don't grow overnight and the treatments for said cancers don't happen in the time it takes to stamp your feet.

Relax a bit, for your sake and for the person with the diagnosis.


 
Posted : 10/10/2012 8:12 pm
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I cant give you any expert advice, just wanted to pass on my best wishes and to say hav a look at

www.cancer.net it provides details on staging etc.

Good luck for tomorrow and my best wishes.


 
Posted : 10/10/2012 8:17 pm
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lots ofinfo here.
http://www.gistsupport.org/about-gist/what-is-gist.php


 
Posted : 10/10/2012 8:21 pm
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[url= http://singletrackworld.com/forum/topic/i-think-im-about-to-be-diagnosed-with-cancer-and-im-fairly-scared ]the original bullheart thread[/url]


 
Posted : 10/10/2012 8:27 pm
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Have a look at the following for an overview of GIST and the treatment available for it:

http://cancerhelp.cancerresearchuk.org/about-cancer/cancer-questions/what-is-the-treatment-for-gist-gastrointestinal-stromal-tumour


 
Posted : 10/10/2012 8:31 pm
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This is all good stuff and much better than my google research so far.

Thanks for all your help so far.


...and do try to relax a bit. Cancers don't grow overnight and the treatments for said cancers don't happen in the time it takes to stamp your feet.

Relax a bit, for your sake and for the person with the diagnosis.


Very valid point. Apparently my input is important because I seem "calm and confident". I am obviously a better actor/poker player than I thought


 
Posted : 10/10/2012 8:37 pm
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Email me. Lets have a chat.

thebullheart@gmail.com


 
Posted : 11/10/2012 8:13 pm
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OP - how did it go?


 
Posted : 11/10/2012 8:17 pm
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+1 for BH (as per)


 
Posted : 11/10/2012 8:39 pm
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Sorry for the slow response, it's been a bit hectic for the last 24 hours

As before, the links posted were great and invaluable to me when we saw the consultants. I don't want to post too much detail on here, but the outcome (so far) is very positive and we both feel relieved that we have a confirmed diagnosis and a comprehensive plan for the future.

Bullheart; Thanks for getting in touch, you have mail

Thanks STW!


 
Posted : 12/10/2012 9:53 pm
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We're good on help for cancer here. Well done us!


 
Posted : 13/10/2012 1:47 pm