was thinking it comes across as extreme anxiety
Probably a better term, that extreme overthinking that anxiety can bring on
Yes, didn't mean to be unkind but also I mean that honing in on the one piece of 'evidence' that might cause worry instead of the dozens that reassure does make me think there might be an underlying issue such as anxiety to address, but anxiety and paranoia are two close clonditions.
I know, I have had paranoia in work before.....
The symptoms of paranoia can include:
-
Being defensive, hostile, and aggressive
-
Being easily offended
-
Believing you are always right and having trouble relaxing or letting your guard down
-
Not being able to compromise, forgive, or accept criticism
-
Not being able to trust or confide in other people
-
Reading hidden meanings into people’s normal behaviors
The checking happens at the end of the process to keep the thousadns of doses rolling fairly efficiently; for every person who even declares an allergy, there'll be loads who don't and can go pretty much straight through (though some other checks are done too). Most folk who report a history of allergy can also go straight through after a quick review of their history.
Regarding "allergies", yours sounds like a more complex case than most and nobody's going to ignore a history like that once you mention it. Do you know what substances kick you off and what they do to you ? (I'm assuming that your "fancy antibiotic" didn't result in a life-threatening reaction, but only because patients usually know the exact name of a product that did that to them)
Although all vaccines (and pretty much all medicines) can produce allergic reactions of various types, the RNA vaccines like Pfizer's have very few ingredients (and no "virus shell") to react to and so, for example, you can generally ignore most antibiotic allergies as there aren't any in there.
HOWEVER - people who've had severe reactions, particularly to injectable drugs including other vaccines are sometimes reacting to other components of the product ("excipients") rather than the active drug itself.
We look carefully (at my place) at patients with significant hypersensitivity histories to try to work out if they might react to one of those components. Luckily the prime suspect in the Pfizer and AZ vaccines is a different substance so often we can decide that one product is a better bet for "you" than the other, even if you are one of those cases
The vaccine excipients are listed in their SPCs: (googling "covid pfizer SPC" gets you the first one)
If I wait and get given a different vaccine is that likely to be good/bad? Will the second vaccine (if it ever happens) be randomly selected or will it take into account the first vaccine?
This is Britain under the Tories, we're probably getting sugar water.
I expect to see vinegar and brown paper available in prescription form shortly.
Just reading through this thread and it’s like reading a bunch of Flipboard articles regarding anti-vaxx and QAnon conspiracy covidiots in the States! I had my first jab back in February, because I’m 67, and part of one of the vulnerable groups because of my age. As it happens, it was earlier than I expected just because my local health authority seemed to be particularly well organised, I had a text from my surgery giving me a date, with three choices of time to turn up. I turned up about thirty minutes early, and was sat down being given my vaccination at exactly the time I was booked in for.
This is how it should work, and it did. My second vaccination is twelve weeks after the first, I see no reason why that should change; however, I have received a communication from my surgery asking me if I’m prepared to take part in a research project centred around having a different vaccine for the second jab, as I’ve only had the first, and I’m seriously considering it. I know the texts are coming from my doctors surgery, because they say so, just like the ones about having my annual flu vaccination.
Honestly, why do some people have to make a simple process so sodding complicated?
To start with, there were two vaccines available in the U.K., you got given what was available to a particular health authority.
I rather wish mine had been the other vaccine, because of what happened to my g/f, the significance being everyone would have had the BioNTech instead of the Ox/AZ, but leaving that aside, if I decide not to go ahead with this trial, I’ll be getting the second shot of the Ox/AZ vaccine next month, y’know, twelve weeks after the first, just like the media has been saying from the beginning, after it was decided to extend the gap due to supply constraints, a decision that has subsequently been proved to be exactly the right one, as the effectiveness appears to improve significantly given a bigger gap between vaccinations.
The priority groups were chosen through searches that are embedded in every GP system. The COVID priority searches are mostly age based apart from group 6 which were predominately (but not entirely) the same group that we invite for a flu jab each year, and suffer from similar diseases (asthma, and other respiratory diseases) In most practices those searches were done by admin staff. The same staff that run these sorts of searches all the time, and a better at doing this work than the doctors are.
So any consultation with your GP that ended with him deciding you have a disease will produce a code that’s in your history. The COVID searches looked for those codes. In so much as those codes are only placed on your records by GPs, they have (in effect) been selected by them
it produces a list of names and tel numbers that’s used to send invites (through AccuRX) to patients. Any patients that don’t have a mobile are funnelled to a second list that GP staff called directly on land lines. What hasn’t happened is any additional work to look through those lists of 100’s of patients for any possible adverse reactions, as we just don’t have the staff or time to do that, and normally patients are switched-on enough to tell the consenter (at the vaccine centre) if they have any issues that they think we need to made aware about.
This is what I wanted to know and this also matches exactly what I thought was happening... why wasn't I told this.
Since I get the flu notifications I assumed (and if what you say is correct) this is why I got the Covid and it was done from a list.
I'm personally concerned about this because my GP often consults my rheumatologist as I have had adverse reactions to many pharmacutical excipients.
The anti-biotic, I have no idea. I was in no condition to take notes when it was changed. I was just told afterwards it had been changed because I'd had an unexpected reaction to it. I don't even know if it was a IgE reaction, just I was told I'd reacted badly. [I wasn't fully conscious at the time and I have no reliable memories of 2-3 days around that time]
HOWEVER – people who’ve had severe reactions, particularly to injectable drugs including other vaccines are sometimes reacting to other components of the product (“excipients”) rather than the active drug itself.
We look carefully (at my place) at patients with significant hypersensitivity histories to try to work out if they might react to one of those components. Luckily the prime suspect in the Pfizer and AZ vaccines is a different substance so often we can decide that one product is a better bet for “you” than the other, even if you are one of those cases
Again, this was what I wanted to know...
I wasn't selected based on age (I'm only 52) so it must be another reason.
All I wanted to know is WHY, and who had been consulted on the specific vaccine I was being offered.
I fully expected I would be told when I arrived but instead I was given a booklet and told "we don't know, do you want the vaccine you are being offered or not" and a load of questions that I felt should have been answered with someone qualified (not me) or from my medical records before I arrived and was put at risk in a disused office block with hundreds of people.
HOWEVER – people who’ve had severe reactions, particularly to injectable drugs including other vaccines are sometimes reacting to other components of the product (“excipients”) rather than the active drug itself.
We look carefully (at my place) at patients with significant hypersensitivity histories to try to work out if they might react to one of those components. Luckily the prime suspect in the Pfizer and AZ vaccines is a different substance so often we can decide that one product is a better bet for “you” than the other, even if you are one of those casesThe vaccine excipients are listed in their SPCs: (googling “covid pfizer SPC” gets you the first one)
All of this would have been useful information BEFORE I arrived.
It's of very limited use once you arrive and are put into a production line or to someone without a smartphone/signal. [given I was an exception by age most people being vaccinated would be older and might need to be able to ask someone more tech/medical savvy - or someone not suffering from Alzheimers etc]
CountZero
I know the texts are coming from my doctors surgery, because they say so, just like the ones about having my annual flu vaccination.
Based on the above that seems to fit my experience exactly your text didn't come from the GPsurgery but from a list, an algorithm and a bunch of operators.
As it happens I have a bunch of texts saying they are from:
HMRC
DVLA
Royal Mail
Several banks I don't bank with
(and lots of others) perhaps you'd like me to forwards them and you can give them your personal and banking details.
This is how it should work
Sorry, but what are your qualifications to say that?
Jonv
Yes, didn’t mean to be unkind but also I mean that honing in on the one piece of ‘evidence’ that might cause worry instead of the dozens that reassure does make me think there might be an underlying issue such as anxiety to address, but anxiety and paranoia are two close clonditions.
I know you mean that well... but its a matter of perspective.
My banks security team worded it differently for example when I escaped a very convincing and well executed scam that I was told by the security officer they may well have fallen for themselves.
dyna-ti
This is Britain under the Tories, we’re probably getting sugar water.
Well there certainly seems to be an unprecedented amount of nepitism under this specific government as well as straight out lying.
COVID has, on the whole simply been a way to give contracts and positions to mates and family to this government whilst bypassing oversight.
That’s AccuRX Plus, it has some other stuff built it and you pay for it. Boggo AccuRX-Lite is a free add on, and that’s all that’s most GP surgeries need as we have access to other patient texting systems (that are also free as it happens) the only reason accuRX was used (as I’ve already said) was because both Pharmacies and GP could use it.
Assuming you work for them ... as I said who made the decision ?
If you didn't work for them wouldn't you think the timing is exploiting covid to gain a wider footprint?
There are hundreds of free texting solutions .. spammers and scammers use them all the time, its just that they are not on the NHS procurement list. Given the current government's pre-disposition for appointing unqualified but connected people and promoting companies with the correct connections I find it suspicious that Surgery's and Pharmacies have been forced into a single solution.
No, Ms Harding isn’t involved in the vaccine programme, she does Track and Trace, and that’s completely different.
Harding was also appointed interim chief executive of the new National Institute for Health Protection, later renamed the UK Health Security Agency.
You may see track and trace as "completely different". I don't. I see the two as a case of nepetism to appoint totally unqualified people to prepare the NHS for sale and bring in 3rd parties whilst getting the patients used to 3rd parties.
I regard a list provided by a gp's surgery and a text sent by a gp's surgery as different.
CountZero illustrates this exactly. They think it is actually SENT by the GP because it says so.
My banks security team worded it differently for example when I escaped a very convincing and well executed scam that I was told by the security officer they may well have fallen for themselves.
I understand what you are saying, and I agree that we should have transparency and clarity of communication wherever we can. I'm also suspicious of the Gov on many things they've done, but on this a slightly badly worded communication looks to me like Hanlon's Razor.
I say that because as I said before, when you dig deeper the answers are there, not hidden, and all make sense. Unlike digging into eg: the PPE procurement where the further you go the less it makes sense.
This Gov is crap, but they do still get some things right.
CountZero illustrates this exactly. They think it is actually SENT by the GP because it says so.
You really need to back off from criticising CZs incredibly calm and thorough comments.
Jonv
It’s not withheld, scientific publication is in the main a subscription service. You will have had access because your work paid for it, just as mine does for me. Publishing’s a business, and in scientific publishing there’s not the same demand for advertising to bolster the income as there might be in mass circulation
It's the same thing if you don't have access.
Just reading through this thread and it’s like reading a bunch of Flipboard articles regarding anti-vaxx and QAnon conspiracy covidiots in the States!
The issue is the scientific publishing business is not fit for purpose in 2021.
There are in effect 3 very different sources of information.
1) Peer reviewed scientific journals
2) Edited, over simplified and usually plain false official coverage of these
3) t'internet
The issue with 2 is these over simplified sources are usually observably false and self contradictory or simply misleading.
Covid examples: The official narrative, it's no worse than the flu... masks increase infection risk... it can't be spread through the air underlain by "we are following scientific advice".
Then there is the deliberatly misleading .. e.g. "children are not at risk from Covid" ....
The above statement is true but being deliberately misused. No-one serious ever suggested kids had a high risk of personally dying... simply that they would transmit the disease to people who are.
The same goes for the vaccination program, people were given official messages it was about THEIR risk. Again false messaging that leads to people not getting vaccinated as they don't feel to be particularly at risk.
Then there is the deliberate not listening to experts / telling them what they can or can't say.
typified by
Q "is there any evidence children are at high risk of dying"
A "no but... they can pass on the virus"
I didn't ask you that, its a yes or no answer unless you want to be replaced.
Unfortunately after they publish this to "joe/jill public" they then have to contradict themselves later.
Out of 100 sources on t'internet they will doubtless find more than expose the lies than not, even if the rest of the stuff they read in the same sources is total la la fantasy involving reptile aliens.
The issue here is the official narrative flipped. (e.g. masks increase risk of transfer to we must all wear masks when outside the house) .. whereas the lizard people alien site will have said one or the other from the off.
The anti-biotic, I have no idea. I was in no condition to take notes when it was changed. I was just told afterwards it had been changed because I’d had an unexpected reaction to it. I don’t even know if it was a IgE reaction, just I was told I’d reacted badly
I'd suggest that it's very much in your interests to know this and make sure it's as thoroughly documented as possible (what drug, what route, what happened and when in relation to the dose). Patients with vague histories of a mystery antibiotic (that may or may not be in sufficient detail on their electronic GP record (if they've agreed to have one)) that made them "really ill" get, to varying degrees, treated sub-optimally - there's published evidence that a documented allergy can have less good outcomes to hospital admissions (it limits the range of drugs we can use and end up using less effective or more toxic alternatives to avoid the (often penicillin-derivative)). That's fine when it's a genuinely severe allergy to a known drug but much harder when it's a vague reaction to an unnamed drug - what do we avoid in that case ?
You clearly have an interesting history so own it, learn it and if necessary, write it down yourself
Covid examples: The official narrative, it’s no worse than the flu… masks increase infection risk… it can’t be spread through the air
I don't remember that official narrative - when was that (and was it the UK?)
Q “is there any evidence children are at high risk of dying”
A “no but… they can pass on the virus”
I didn’t ask you that, its a yes or no answer
It's cleary NOT a yes or no answer unless what you want is
Edited, over simplified and usually plain false official coverage
You really need to back off from criticising CZs incredibly calm and thorough comments.
I'm not criticising, I'm pointing out a text SAYING it's from HMRC isn't.
(I'm sure you know that)
My default (call it paranoia if it makes you feel better) is not to trust anything until I can verify the source.
Based on what others wrote above (which makes perfect sense to me) if he is on the flu jab list then the text DID NOT come from the GP.
In my case I think this is also the case.
Hence why as my GP usually checks with my rheumatologist who makes a "best guess" based on "patients similar to me" I was concerned when the people at the vaccination centre said they didn't know why I was selected, this vaccine appropriate or have access to my medical history.
I’d suggest that it’s very much in your interests to know this and make sure it’s as thoroughly documented as possible (what drug, what route, what happened and when in relation to the dose). Patients with vague histories of a mystery antibiotic (that may or may not be in sufficient detail on their electronic GP record (if they’ve agreed to have one)) that made them “really ill” get, to varying degrees, treated sub-optimally – there’s published evidence that a documented allergy can have less good outcomes to hospital admissions (it limits the range of drugs we can use and end up using less effective or more toxic alternatives to avoid the (often penicillin-derivative)). That’s fine when it’s a genuinely severe allergy to a known drug but much harder when it’s a vague reaction to an unnamed drug – what do we avoid in that case ?
Yeah, I know that and I just keep forgetting. (Usually because I only see a GP when I'm really ill or potentially really ill and you only have 10 minutes)
Last GP visit was because I was bleeding from my bum... GP did as she should and booked the specialist .. for reasons you probably understand I forgot to ask "oh what's that antibiotic"... because the GP was more concerned about bleeding from my bum and I assumed this is on my medical records.
I don’t remember that official narrative – when was that (and was it the UK?)
Boris Johnson, March last year... whilst he was busy "shaking hands with Covid patients"
Matt Hancock .. the pair of them saying 2m whilst stending less than 2m apart.
It’s cleary NOT a yes or no answer unless what you want is
Well, yes.. Ask Ruth May.
https://www.theguardian.com/politics/2020/jul/20/englands-chief-nurse-dropped-from-covid-19-briefing-after-refusing-to-back-cummings-ruth-may
This is exactly the sort of questions I got asked daily...
Sales Manager: Can we customise OUR software to look like it does something useful for the client.
When the answer is "YES but"... because it will be far inferior to their needs than the software they already have for example and not meet their requirements.
Later assuming we won the contract because the sales mgr has wined and dined someone in procurement I'm then expected to lie to the client as to why "our" software is better and why this HUGE gap in FR's isn't filled and then turn it around and blame the client for not asking "the right questions" and get them to buy more crap software to fill the gap.
Jonv
I understand what you are saying, and I agree that we should have transparency and clarity of communication wherever we can. I’m also suspicious of the Gov on many things they’ve done, but on this a slightly badly worded communication looks to me like Hanlon’s Razor.
I say that because as I said before, when you dig deeper the answers are there, not hidden, and all make sense. Unlike digging into eg: the PPE procurement where the further you go the less it makes sense.
This Gov is crap, but they do still get some things right.
I'm a big fan of Hanlon's razor in general but with this government "Follow the Money" seems to be the primary driver.
Totally unrelated but my Mum (and many others) have a decking at her caravan. Its inconveniently 6" too short (to allow the gate to open) but fitted by the only allowed contractor. If it was 6" longer it would require a whole extra length to be cut down.
The park owners own the relationship as you have to book through them and any other decking contractor is not allowed.
Hanlon's razor ? Or does the fact that companies house shows the site owner is a director on the decking company have anything to do with it?
Yes the people who fitted it were incompetent (for other reasons such as unable to line a gate up) but they were following instructions on how many lengths they can use.
Incidentally there are 20 or so caravans of the same make/style with the same problem. Had they not been so hell bent on minimising material costs they could have added a foot to each for barely any cost but now they would need to completely redo the whole side.
Assuming you work for them … as I said who made the decision ?
I don't work for AccuRX (why make that assumption?) I'm a PM in a inner city GP practice. As I said earlier...I don't know.
If you didn’t work for them wouldn’t you think the timing is exploiting covid to gain a wider footprint?
And as I keep saying, AccuRX was chosen because it's one of the few systems that both pharmacies and surgeries can use, as well as a really quick and easy booking system, your GP surgery needs to know if you've had a vaccine. AccuRX is being used as the report system to transfer data back into usable date for the GP surgery as well. it's one of the few off-the-shelf systems available that could do this work in the time scale that was needed. If they get more business from it, then fine, they were johnny on the spot.
Your posts are wildly schizophrenic, you require detailed information, and then make wild accusations or draw fantastical conclusions from dull and straightforward answers. Seems to me you've drawn your own conclusions about the vaccine programme and are just looking (reaching really) for anything that you feel backs up your pre-existing assumptions I'm out. I don't think I'm helping you.
I don’t work for AccuRX (why make that assumption?)
You seem very defensive of this company and used "we"
I’m a PM in a inner city GP practice.
As I said earlier…I don’t know.
And that doesn't bother you?
Someone unknown made decisions .. for reasons they didn't deem to tell you and you don't even know who that person was or THEIR motivations or if they are remotely qualified to make those decisions?
Track and trace is a perfect example (though Harding's position as interim chief executive of the NIHS/UK Health Security Agency is more telling).
On one side they chose possibly the least qualified person in the country to look after people's personal data. Certainly the highest profile one (the poster child for GDPR) for being completely incompetent to be let anywhere near anyone's personal data. It would be like putting Cummings in charge of DVLA eye tests...
On the other hand she has a 100% voting record for voting for what she is told to vote for and is married to a Tory MP.
And as I keep saying, AccuRX was chosen because it’s one of the few systems that both pharmacies and surgeries can use
Again, doesn't that bother you?
Who made the decision to prevent other companies being able to compete and on what basis?
Was it the same person that chose which companies could make ventilators or PPE for the NHS ? (that's rhetorical but I hope you get the point - government appointed, totally unqualified people made the decisions and completely ignored the medical advice)
Myself and tens of millions are somewhat reliant on people like you to check this.
Unless a text says otherwise and claims to be from a surgery we are going to assume:
1) It actually came from the surgery
2) Because it came from the surgery and doesn't say otherwise we have been sent this based on a clinical need that has been assessed by a doctor.
it’s one of the few off-the-shelf systems available that could do this work in the time scale that was needed.
Again I'd want to know what "available" means and what you mean by "timescale"? (Because I'm guessing this is what YOU were told...)
I find it hard to believe that no other company could have come up with a system to send a SMS in the last decade or so they had to prepare.
Who wrote the requirements ?
Who puts the companies into the procurement list and excludes others?
This is especially important in the current government where there is no parliamentary scrutiny.
Given the debacles on PPE/ventilators/track and trace I really don't see how a default position of this was awarded to a company for "services/donations/nepotism" is a paranoid place to start until proven otherwise.
If they get more business from it, then fine, they were johnny on the spot.
No they will be johnny on the spot (future tense)... at such a point as the NHS has no other choices these extra services will be forced on them as the free services are incrementally crippled and the necessary ones are bundled.
That's how it works in the "real world". (Check out any STW Sky TV thread ... for example)
The problem for the NHS is they have been correctly (IMHO) shielded from this in the past and left to do medical stuff without worrying how they get out of a contract when the supplier changes the packages.
Doing something almost identical but way more advanced (remote offshore medicine with a private company) their first question is "exit strategy and lock in") and contractual assurance that base services that they determine cannot be unbundled.
Their (in your words paranoid/schizophrenic) approach is because they have been stung in the past and had very expensive exit strategies.
Their procurement would never allow a single supplier to be the only one able to offer critical services and if for any reason they sole sourced it would be very very heavily scrutinised.
To go back to the point of the invites... any requirements should have communicated HOW and WHY people have been "invited" along with sending the pre-read.
(This is Change Management 101) I (and anyone else who rolls out large scale IT projects) would do this as a matter of course with something as trivial as a time writing module or meeting room booking, let alone sending people for a vaccine.
If someone has been selected because they are on a flu vaccination list then the invite should say so and note that no competent person has reviewed their suitability beyond this so they should phone their GP or ask at the vaccination centre and they should take any allergies with them not rely on it being in the NHS system.
Non of this is rocket science ... it's actually what companies of any significant size do as a matter of course.
My personal opinion is it shouldn't be left up to you and YOU should be receiving information packs noting who decided what and why and if you wish to comment or raise an issue so you can have confidence it has been done correctly..
You shouldn't be put in the position of not knowing who made the decisions or the reasons for them.
To go back to the point of the invites… any requirements should have communicated HOW and WHY people have been “invited”
My wild guess is that its something to do with this pandemic thing that's going on.
Either have the jab, or don't have the jab. If you aren't sure due to your specific medical issues, talk to your GP for advice first.
It really is that simple.
You shouldn’t be put in the position of not knowing who made the decisions or the reasons for them.
Have you actually contacted your GP and asked?
And that doesn’t bother you?
@stevextc that's a big fat NOPE. I care that my patients are getting a vaccine that will help protect them...beyond that, I'm not really interested.
@nickc - I'd go with your previous comment and opt out for now. I don't think you will ever provide an answer that doesn't lead to more twisted logic attempts.
You guys in practice have been hammered and done amazing job in very difficult circumstances - keep up the good work (I'm healthcare but totally different area - don't envy you in the slightest)
BadlyWiredDog
Have you actually contacted your GP and asked?
Firstly "contacting the GP" is an adventure in itself. I'd have to queue outside and get an emergency appointment or follow the website and dial 111.
I know that because I got a text from the actual surgery ... from THEIR number before they changed to their "pandemic appointments" and they specifically asked that people don't book non urgent appointments.
The last one I had I was queued in the "get an appointment line" feeling bleeding from my arse was taking a appointment with someone more in urgent need than I was.
Secondly and most importantly this should be provided BEFORE I got the vaccine the invite not "Do not contact your surgery".
Like with the change in appointments .. rather than simply not answer the phone and have people turn up randomly when they can't get through they informed the patients in advance.
MoreCash
My wild guess is that its something to do with this pandemic thing that’s going on.
Either have the jab, or don’t have the jab. If you aren’t sure due to your specific medical issues, talk to your GP for advice first.
It really is that simple.
No it really isn't... what happens when my GP no longer exists?
What happens when they are forced to use and pay for services they don't want or need because of the contract?
My GP's practice has a dire patient to GP ratio to start with let alone the demographics meaning their average patient is over 60 something. (The numbers come from last year when the CCG were trying to close down our local surgeries and the walk in centre... I don't suppose they have improved since then)
If the PM in a inner city GP practice doesn't care then who does?
Put it another way, are you happy to use a Dyson ventilator if required... and keep the real ones for people who don't think Dyson should have been given the contract and perhaps someone who makes ventilators or at least medical equipment already might have been better.. if only they had supported Brexit as loudly and donated to conservative party funds?
How do you see this as any different ?
No doctor I know of thought Dyson would develop a safe working ventilator ... but that was conveniently avoided by not asking actual doctors...
Deliberatly deceiving patients just isn't on and the pandemic gives no excuse.
If someone is sent a text because they meet a criteria then its no harder to include the reason on the text... equally if for expedience a group of people meeting certain criteria were selected without clinical assessment then its no harder to include that in the text either.
We have had at least a YEAR for the covid vaccines to be rolled out ... (ignoring the ignored preparation recommendation for a viral pandemic) and no amount of incompetence alone can explain why this information wouldn't be sent with the invite.
I'd need to check and can't be arsed but I'd guess had these been sent by post they would have been very very illegal. You can't just pretend to be sending a letter from a GP ... use their headed paper etc. (surely)
I'd just like say how impressed I am that CountZero can contribute in such a measured, useful, considered way at this time. What an amazing person.
I’d just like say how impressed I am that CountZero can contribute in such a measured, useful, considered way at this time. What an amazing person.
Absolutely amazing strength, calmness and composure.
so back to the point of the invites… any requirements should have communicated HOW and WHY people have been “invited”
You think it would be acceptable to send text messages to people saying "you've been invited to this appointment because your GP says you have HIV" or even "you've been invited to this appointment because your GP has indicated you have stupidly high BMI". Even something that probably isn't that "sensitive" like - you have been invited because of your historically high blood pressure is personal information that the text message company really don't need to know. There were media stories of people who got invited unexpectedly early (if you have RA - it presumably wasn't unexpected) who after a bit of effort were able to work out why - e.g. one had been recorded as completely the wrong height (I think it was something stupid like mixing m and cm) so had the BMI of the moon. I'm sure there would be a few others who suspected a mistake but grabbed the opportunity.
In amongst all your hysteria above it seems you have a genuine concern about possible contraindications for some of the non-vaccine ingredients. That is a question which should have come out in the discussion with the clinic staff. Firstly they should have been asking if you've ever had allergic reactions to other medication (if they didn't this is the only time in my entire dealings with the medical profession that they didn't ask this); then when you said yes there are special protocols to follow for working our which vaccine is most appropriate - they should have been able to get you to someone who understood your concerns and was able to get you personal advice.
However, given your approach to this thread I imagine you probably tackled this like an excited Border Collie and went snapping away at people who had no idea why they were the target for your enthusiasm and were more interested in creating a drama.
I don't know if you actually got the vaccine or not - but if you decided not to - I'd have a chat to your RA consultant who seems to understand the issues you've had before and get advice on which vaccine is most appropriate for you. For 99.9% of people (at least until the AZ issues emerged) it will make no difference - expecting the system to work well for the 0.1% is niave.
I thought I got the invite due to being on the list for Flu vaccinations?
Which if so was NOT from my GP... but simply a list of people on the flu vaccine list handed over by the GP.
It's hardly melodramatic to expect that a SMS claiming to be from my GP should actually be from my GP and I should be able to rely on that.
This is how it was pre-covid...
Pre-Covid - I'd assume an SMS from my GP had been clinically assessed and if the GP thought necassary would be cross checked with my rheumatologist.
The "new normal" seems to be that a third party can take a list and send a SMS and claim it is from my GP. The GP has not necassarily clinically assessed (and from what I understand if I was sent this because I'm on the flu vaccine list it was sim[ply because they handed over the list) this nor had the chance to cross check.
Whereas I can cope with that now I do worry that if I get older and have cognitive issues (as seems to run in my family) I won't be in any position to assess that.
How hard is it to see that many people rely on something from their GP as actually coming from their GP? In the past when the receptionist sends something (like test results) she will PP the GP ... making it clear the GP has not actually sent the letter but has said to forwards the results.
I then assume if any of those results (I don't understand) mean I need to see the GP she will schedule an appointment. If not then I assume there is no need.
For example:
Dear Mr XtC,
I now have the results of your recent stool test back from the laboratory. This does not show any evidence of infection.
It is sensible that we have referred you to the specialist for some more investigations.
Please make an appointment to speak to me by telephone if you would like to discuss the results further.
Best regards,
Dr XXXX
TEL xxx-xx-xxx
I assume that the GP has dictated this and considered my medical history
I'd also assume that when the GP texted me at 10pm urging me to book the specialist ASAP it was for a reason... not just a random automated text.
I got a letter from my GP inviting me to contact them to arrange an appointment as for some reason, they didn't have a mobile number for me (although I've had the same number forever, it must have been at least 8 years since I've had to visit my GP so maybe they've updated their systems or something).
Phoned them up, got through on the second attempt and I'm booked in for my first vaccine on Wednesday. I didn't even bother asking which one I'd be given as I won't have any choice in the matter.
Best of all, it's a 5-minute walk from mine. 🙂
In amongst all your hysteria above it seems you have a genuine concern about possible contraindications for some of the non-vaccine ingredients. That is a question which should have come out in the discussion with the clinic staff. Firstly they should have been asking if you’ve ever had allergic reactions to other medication (if they didn’t this is the only time in my entire dealings with the medical profession that they didn’t ask this); then when you said yes there are special protocols to follow for working our which vaccine is most appropriate – they should have been able to get you to someone who understood your concerns and was able to get you personal advice.
Clinic = disused office building
I'd already been sent a text that for every possible reason looked like a fake... no number, do not phone your GP etc. but after checking out it seemed legitimate.
Yes they asked so I asked if they meant IgE mediated only to which the nice bloke who'd taken an interest in my cycling t-shirt said he didn't know what immunoglobulin was.
I told him about the anti-biotic and said it would be best to check it on my medical records then he told me he didn't have access to them.
I started to wonder how I'd got this invite and why? I knew I wasn't in the age range being vaccinated so it must be another reason so I asked and got told they didn't have access to that information either.
I'd been given the literature 15 mins ? earlier ... the GP is closed (8pm) so I can't even try and find out and I'm told "its up to you if you have it or not"
The last time I actually spoke to the GP (in person when my bum was bleeding) she had told me she would be looking carefully into the vaccines and possible side effects for me given my history and would if necassary consult my RA. At the time we both expected some nice results from my stool test ... some easy treatment and move on. She booked the emergency examination/biopsy as a precaution due to possible (Covid) delays then after the email for the negative stool she texted me at 10pm at night to urge me to get an appointment ASAP.
So perhaps you can see why I'd take a "text from my GP" as being "a text from my GP".
However, given your approach to this thread I imagine you probably tackled this like an excited Border Collie and went snapping away at people who had no idea why they were the target for your enthusiasm and were more interested in creating a drama.
Because all has been said is lie after lie... pretending the text was from my GP when it wasn't. It was an automated text pretending to be from my GP and the last thing my GP said to me face to face is she wanted to monitor the vaccines and side effects and consult with the RA.
I don’t know if you actually got the vaccine or not – but if you decided not to – I’d have a chat to your RA consultant who seems to understand the issues you’ve had before and get advice on which vaccine is most appropriate for you. For 99.9% of people (at least until the AZ issues emerged) it will make no difference – expecting the system to work well for the 0.1% is niave.
I got the first vaccine... (AZ) partly because I worked out when I had the cancer scare I don't really mind if I live or die. I worked out the life insurance is actually more useful to my son so WTF and partly because I don't want to be responsible for passing the virus onto someone and our home is very high risk.
I feel let down by my GP (who I like as a person) because the last thing she told me was she was going to look into the vaccines and my medical history, not just hand over a list of people eligible for the flu jab who would send a text pretending to be from the GP.
GP prepares list of people to invite for vaccine
Sends list to widely used third party service provider
3PSP send texts out to the people the GP asked them to.
where do you stand on Royal Mail delivering letters from your GP? Do you think they should get the admin staff to bring them round personally?
where do you stand on Royal Mail delivering letters from your GP? Do you think they should get the admin staff to bring them round personally?
That made me chuckle. Quite a lot.
Pfft - I wouldn't recognise the admin staff from my GP's surgery, anyone could turn up claiming to be from the surgery. No I'd need the actual doctor on my doorstep just to be sure, but not the one I saw last time as I think he was a locum and will have moved on, and the one before that left to go on mat leave, so there was the one I saw before that who was a partner in the practice - I think I'd still recognise her. And she'd need to have my medical records with her just in case I had any questions about why she'd come round. Though perhaps I'd need someone from the GMC there to confirm she was still a doctor, but how would I know they were really from the GMC?
GP prepares list of people to invite for vaccine
That is not what we are told happens.
What we are told was
The priority groups were chosen through searches that are embedded in every GP system. The COVID priority searches are mostly age based apart from group 6 which were predominately (but not entirely) the same group that we invite for a flu jab each year, and suffer from similar diseases (asthma, and other respiratory diseases) In most practices those searches were done by admin staff. The same staff that run these sorts of searches all the time, and a better at doing this work than the doctors are.
where do you stand on Royal Mail delivering letters from your GP? Do you think they should get the admin staff to bring them round personally?
I already covered that.
I expect that if the letter is signed by or for (PP) the GP that the letter has been prepared, dictated or at least checked BY the GP.
If the letter has been sent out by admin staff I expect it to clearly say so.
Unless I'm wrong it would be very illegal to pretend a letter was actually written by your GP if it wasn't.
Unless I’m wrong it would be very illegal to pretend a letter was actually written by your GP if it wasn’t.
I do work on behalf of a minister of state. He very rarely has time to check that the routine work I do for him is correct, and the hundreds of thousands of pounds I pay out or recover has been done properly.
Then I think you have unrealistic expectations.
'The GP' to me is someone working at the practise with the capability and authority to do the level of work needed. I want my GP to have time to see patients and deal with their health problems. I'm perfectly happy if the admin staff / practise management are running mail merge searches to invite people meeting particular criteria to have whatever work done. Heck, I'm even OK if they're writing the letter to say that I'm invited for a vaccination, or a wellman check, or whatever - I trust and assume they are doing it with the knowledge of the GP's / partners / Management team of the practise rather than freeforming it.
Sorry, can't really add more than that.
I feel let down by my GP (who I like as a person) because the last thing she told me was she was going to look into the vaccines and my medical history,
TBF to most GPs, the vaccine invites timings are largely out their individual control, so she might have a look at this, but not realized you'd already been invited for a vaccine. After all, GP workloads are pretty heavy right now.
not just hand over a list of people eligible for the flu jab who would send a text pretending to be from the GP.
You think some random person in a GP practice is just handing over flu vaccine patient data via a politically chosen IT company who're then sending texts to patients? Have I got that right, that's what you think is going on?
I do work on behalf of a minister of state. He very rarely has time to check that the routine work I do for him is correct, and the hundreds of thousands of pounds I pay out or recover has been done properly.
Do you sign it with their name and try and make it look like the minister has personally written the letter? (rhetoric)
More importantly if someone sends me a text "from HMRC" what should I do with it?
a) Give my bank details
b) Report it as a scam
c) ignore it
d) check it, find it's genuine, accept it
wrote some stuff, with hindsight it'll be used for more blather.
I'm taking my own advice from earlier.
Histrionics.
Melodrama.
Paranoia.
And it's not the first time.
Steve, get some help - and not off some randoms on a cycling forum.
You think some random person in a GP practice is just handing over flu vaccine patient data via a politically chosen IT company who’re then sending texts to patients? Have I got that right, that’s what you think is going on?
Yes, that is succinctly put from reading what has been written on here. (though perhaps random person isn't accurate but overall yes)
One minute you say I'm invited because "everyone is" then next "The COVID priority searches are mostly age based apart from group 6 which were predominately (but not entirely) the same group that we invite for a flu jab each year"
TBF to most GPs, the vaccine invites timings are largely out their individual control, so she might have a look at this, but not realized you’d already been invited for a vaccine. After all, GP workloads are pretty heavy right now.
Which I totally understand ... our GP's are screwed year round due to the patient ratio and demographics.
To answer Jonv on the way
OK if they’re writing the letter to say that I’m invited for a vaccination, or a wellman check, or whatever – I trust and assume they are doing it with the knowledge of the GP’s / partners / Management team of the practise rather than freeforming it.
All my letters I can remember from NHS doctors and consultants have very clearly indicated if its written by, dictated by etc. or from admin staff.
I am simply saying sending by text should be different.
Remove the SMS complication ... if I got a letter from the Admin staff it would clearly say so... I spent ages trying to get results from a consultant to my GP and his admin staff (correctly IMHO) refused to send them UNTIL he had checked them.
This doesn't seem unreasonable to me.
You think some random person in a GP practice is just handing over flu vaccine patient data via a politically chosen IT company who’re then sending texts to patients?
Hence why I'd want to know who is making these decisions and what qualifications they have to make them.
Given the debacle with personal data and track and trace and the choice of person (political appointee) making those decisions
Appointed interim chair of the UK government’s National Institute for Health Protection at its inception in August, the Conservative peer Dido Harding has been handed one of the most high profile—and highly scrutinised—jobs in England.
https://www.bmj.com/content/370/bmj.m3332
The stakes are high: the new agency has been tasked with overseeing England’s covid-19 response, after the government’s controversial decision to disband Public Health England and merge its health protection functions with the Joint Biosecurity Centre and the NHS Test and Trace service, which Harding has led since it launched in May.
(bold mine)
As I said a few times... the poster child in the UK for losing personal data and not giving a toss.. her only credentials are never having voted against the Tory line and being married to someone that openly wants to disband the NHS.
Before test and trace she was the example used for how not to treat personal data yet put in charge of track and trace to make decisions. Pretty much akin in putting Cummings in charge of DVLA eye testing.
If she was the one making these decisions (with-holding numbers, don't call your GP) I can't see why anyone wouldn't be worried.
Her statements from Talk Talk times are taken as the defacto way not to deal with personal data. Picked out by the Information commissioner etc. If there was something like bankruptcy law applied to people allowed to hold positions handling personal data... she'd be banned for life. (As Elizabeth Denham the information commissioner made clear)
So when it seems the process is "someone made the decision" and "we only had one system" I'd find that disturbing when the interim chair of the National Institute for Health Protection and tasked with overseeing England’s covid-19 response was this same person at this time.
I'd worry that the same logic as awarding Dyson a contract for ventilators whilst not using any biotech companies prevails and these decisions are more about breaking up the NHS and removing the limited autonomy of GP's
Because it uses AccuRX, and that withholds numbers, I think it was a national decision, to stop folk automatically phoning their GP as soon as they got a text. so as not to overwhelm GP surgeries.
So I find it disturbing that all of a sudden the NHS has only a single authorised supplier for a SMS gateway.. like no-one thought of this until we had a vaccine ready to deliver? As was said earlier it could be incompetence but it would need to be of stellar proportions. Like appointing the UK's worst person for keeping personal data safe to handle track and trace.
Given the history of the UK Covid response it beggars belief this can be pure incompetence then hey ho a single company waiting in the wings already on the NHS procurement ... "decisions made at executive levels" etc.
d) check it, find it’s genuine, accept it
but
https://www.gov.uk/government/organisations/hm-revenue-customs/contact/reporting-fraudulent-emails
HMRC never send notifications of a tax rebate or ask you to disclose personal or payment information by text message.
Which bit of "check it and find it's genuine" did you not follow before throwing up the HMRC thing?
Which bit of “check it and find it’s genuine” did you not follow before throwing up the HMRC thing?
The bit when you get the text and instead of pressing the link to some scam you instead go and check the HMRC site that tells you categorically they don't.
I'm here being called paranoid and schizophrenic for doing what I have been trained to do for the last 10 years, the last 6 of which working for one of the largest global IT companies in the world (the 4 before that with a smaller (250,000 employee) company) where we were constantly tested with fake emails and texts to our company phones/email.
"Your phone is due for renewal..click here" .. you are sent official looking mail and texts once or twice a month and formally tested and certified yearly. We were taught you NEVER EVER assume who sent a email or text based on who it says as by default any email from an unknown account or text from an unknown number or worse withheld is assumed to be a scam.
You might think this is paranoid, obviously 2 huge IT multinationals don't it is what they are teaching 1/2 million staff...
My experience is in my personal phone/email I have managed not to succumb to any of the many scams including ones pretending to be from HMRC, DVLA and my own bank.
On one my banks security officers after I reported and documented it confided he might have been caught out himself but my paranoid behaviour saved me.
So the HMRC you went and checked and verified and they said they never send those messages. So you reject it as a scam. Correct.
But a quick google on 'accurx covid vaccine scam' throws up dozens of responses including some about the actual vaccine scam (misspellings, asking for card details to verify identity) and many more from Gov.uk, nhs.uk and multiple local surgeries all saying that accurx is genuine.
And yes, also the accurx site.....
Like I said before - check, verify and proceed. Your diligence is good, but you're going beyond that. IMHO
Anyway, enough, I'm out as I feel we're going in circles.
But a quick google on ‘accurx covid vaccine scam’ throws up dozens of responses including some about the actual vaccine scam (misspellings, asking for card details to verify identity) and many more from Gov.uk, nhs.uk and multiple local surgeries all saying that accurx is genuine.
And yes, also the accurx site…..
Like I said before – check, verify and proceed. Your diligence is good, but you’re going beyond that. IMHO
Which was exactly where I was back in Feb ... I assumed the text was genuine and from my GP's surgery.
Some slightly concerning lack of details and knowledge by the team in the vaccination site... and hey ho.
There I was until the other day a mate asks me if I had the second jab yet...
Um ... nope forgot about it.. I guess they'll contact me.
Then he says how he went back to the NHS site and got a earlier second booking... so why not try.
So I think, hey why not I'll try and meantime OH has booked on NHS site and. Texts me to say its yesterday in Fleet and a second date for the 2nd jab...
I say cool.. well done and give her directions. (given she is teaching staff seems a good thing to get as early as possible and I go to Fleet quite often and I know she'll panic at a particular junction-about you might know the one I mean over/across the M3) then 1/2 hour later she texts me back... she's just had a text from "GPsurgery" inviting her to book a vaccine and is confused as she thought she just did. My mate say's "I didn't get a text, i just went to the NHS site" ... so at this point I'm confused.(more accurately realised I was confused). how can you have 2 completely separate systems?
Given I'm looking after my mum it would be kinda good if I could do what my mate suggests and book a spare slot on the NHS web site but then I wonder how will they know what the GP had decided and why.
All along I'd assumed my GP had actually done what she said she would and that is why I got the invite...
Then I get told ... on here
You didn't get an invite in Feb unless your over 65 (well I know I did but hey I'm 52 and my memory isn't what is was so I check on my phone)
Yep... turns out my memory isn't that bad.. and it was Feb
Then I get told lots of reasons I was "invited" ... whilst simultaneously being told I wasn't or "because everyone is being invited". Umm my mate says not, he says he went to the NHS site and booked... is he lying? If EVERYONE is being invited then why have the NHS site... ???
All I want to know at this point is did my GP actually send the text as she'd said she would.. then I'm told its a group of admin people using markers in the records... then I'm told no its not .. then I'm told god knows what...
I have the freakin texts on my phone and people are telling me I didn't get them?
I'm told they are from the GP, not from the GP ... that someone nameless took a national decision to with-hold numbers and say "Do not contact your surgery"...
OH is texting me asking if she does this one from the GP what happens to the one she did.. will it know?
Take a look at page 1 before people accused me of being paranoid and telling me you didn't get a text etc....
As far as I know there are two routes; wait for your GP to contact you (by letter, SMS or phone call) or book via NHS website. The NHS website does some verification of who you are, either by your NHS patient number (I didn’t know mine) or by registered name, DOB and postcode you’re registered at with your GP.
Personally I could of waited for my GP to get in touch but my practice is frankly shite at everything they do, so when the age of eligibility dropped to 45 last week I was in quick and got an appointment booked for 72 hours later. Nice and simple.
I’m guessing that I’ll have now been removed from my GP list as they should know I’ve gone via the national booking system. And same for second jab as national system books both of them for you at the same time.
From my experience the process was about as complex as booking a hair cut and start to finish at the vaccination site, took about the same time. Superbly organised given the pace and scale at which it has had to be delivered.
I’m guessing that I’ll have now been removed from my GP list as they should know I’ve gone via the national booking system. And same for second jab as national system books both of them for you at the same time.
That was also something I was trying to ascertain but forgot.
Having done the GPO list thing (whatever that actually is) if I did go the route of trying to get my 2nd jab off the NHS site (which I have more confidence in as it appears my GP wasn't involved) will they know my first jab and medical details if I go the NHS route.
