Juan
You can beat this, it ain't easy or pretty.
My boy is coming up 5 in June, he has just passed 3 years with it with no sign of it disappearing soon, I find inspiration in him when I see every traumatic experience he goes through BUT he still gets up smiling on his little bike. Waffle I know, but you can beat this horrible thing.
**** CANCER
Great to hear there's a plan for you now, OP - a massive upturn from the start of all this
interesting disease, too (viruses, malaria 'n'shit)
I think you may have won today's internet
Great news, something to focus on. Fight it and remember this is all temporary, you'll get through this and life will be what it once was again 🙂
Nail it to the floor.
Good Luck Juan. Big love to you and your nearest (and to the other STWers facing challenging times)
Good news that it's treatable, man. Reading that yesterday made my evening.
Good news.
Best of luck with your treatment.
That, in relative terms, is brilliant news. So happy for you.
Hope you and your family are doing well, keep that positive attitude going. God bless you all.
My thoughts are with you buddy.
Afternoon all.
Well was formally admitted to ARI last Wednesday and the treatment began Wednesday evening so no time was lost.
Thankfully now they understand actually what's going on they were able to drain 11.5 litres of fluid from my abdomen which you can imagine made a huge almost instant difference. The chemotherapy is already in full swing and am almost half way through my first session. Fortunately I seem to be ok with the therapy being given and have had few side effects so am going to slug this out.
The consultants are fabulous and my consultant is of a similar age and outlook on life and wants me well and discharged back to normal life as soon as possible and expects nothing less.
In myself I feel fine and no different than I did previously which is one of the strange things with berkits (for some) by all accounts. Apparently it's one of if not the fastest growing out there but because it's so agressive it responds equally as well to treatment once identified.
The Welsh contingency left yesterday now that all seems to have stabilised so it will be good for them to get back to some sort of normality.
Soontobe Mrs King is still epic and an unwavering rock who is doing incredibly well under the circumstances. Our daughter Cerys is as always a constant source of joy, fun and emotion and our world.
The revised prognosis really does feel like we've won the best lottery ever and that is the only way I can explain it. It literally feels as if I have been granted a second chance by someone so the sense of relief, hope, future and all those normal things we take for granted will happen.
Thanks for all the kind wishes and thoughts they mean a great deal and beware the Aberdonians as once I'm back I'd love to finally meet you.
Thanks all.
John
Go 'n boy. Smash it. 😀
Nice one!
Really, really happy to hear this - although it must be an unimaginably bad thing to have to go through, I can only believe it will help you become a better partner and dad as well as give you a better outlook on life and the future.
(Not that would have any reason to think you were not already, just being a bit kack-handed in trying to say what I mean)
All the best to you and yours.
Glad you're making progress in the right direction and you're feeling so positive about the future - must be a huge relief.
Thanks for the update, sounds very, very promising.
I wish you all the best and continuing improvement.
Bet losing 11.5L was a relief!
11.5 litres! That will do your power to weight ratio a favour. Keep on trucking!
Fantastic news. Great to hear from you.
11.5 litres 😯
Instant diet. Treat yourself to a nice slice of cake.
🙂
So glad to hear that the prognosis is good. Keep fighting and definitely get a slice of cake 🙂
Great news , your prognosis seems to be improving week by week . I think the oncologist who suggested that any care you received would be palliative should be on the end of a serious bollocking , I an only imagine how awful that must have been for you and your loved ones .
glad to hear your making progress in the right direction.
I'm also in Aberdeen and live near ARI so if you ever need anything just ping me, grot mags, bacon butty's, rum etc etc. But I'm expecting you to smash this, then we can go ride the local trails and smash out some STRAVA! KOM's
Grant
Maximum "Ave it" !!! 🙂
#****cancer
Go John, thinking of you and wishing you the best
Well I'll Look forward to the Aberdonians party when you have smashed this.
Can't believe how this has changed over the course of three weeks.
Wooooooo
No doubt it's a long tough road ahead but you, your family/friends and your docs got this by the sounds of it. #teameffort
That's a great read on wet and windy Wednesday morning. Really hoping that this carries on in a positive direction but if i can offer one piece of advice. Chemo can be a fickle beast. As you work through the sessions you might feel fine, fine, fine, absolutely bloody awful, then fine again. So although your not feeling too bad on this session that might not be the case for others. If you do have one or more where you feel awful don't be disheartened it all part of the process and it will pass.
Hi John, hope you are feeling ok. I have you and your family in my prayers pal.
Just read this, great to hear treatment is going well. Sound like the immediate and wider family have your back too. Stay strong fella.
Morning all,
Thanks for the messages and comments guys appreciated.
So there is currently some disagreement between various haematology consultants as to whether I have pure Burkitt's or diffuse B Cell lymphoma or B cell lymphoma with some Burkitt's traits... The main difference being Burkitt's responds well to a higher grade of chemo whereas the diffuse B cell responds well to a less intensive plan. So far i am handling the more aggressive chemo well so my consultant is of the opinion let's continue with the plan as Burkitt's and review after a cycle has been completed.
I got the impression he was outlier whereas the other consultants would have been happier to treat me for the lesser b cell with the milder chemo but he simply wants whatever is going to give me the best chance of full recovery.
Good news that there is no trace of it in the bone marrow or spinal fluid so again hopeful signs for the road ahead but acknowledge it's going to be a slug.
In myself i still feel ok and managing to get some work done from hospital which is a welcome distraction and have just been told i can go home for the weekend for a break!
As always SoontobeMrs King is epic and a rock and look forward to spending the weekend with my daughter.
Have a good one!
John
*thumb*
🙂
Brilliant stuff! Very pleased to hear you have got a weekend pass - I am sure that's just what you need! A dose of family life and a bit of normality is a big thing.
Have a good one.
Jay
You are an inspiration. I wish you all the best in your recovery.
Weekend pass is good news. Brightened up my weekend after the mike news this morning.
Hope you had a good weekend and your little daughter git lots of chocolate. God bless you and yours. I have you in my prayers pal.
Hope you had a good weekend and your little daughter git lots of chocolate. God bless you and yours. I have you in my prayers pal.
Hope the weekend was a good one Juan. Keep fighting it 🙂
Morning all,
Thanks for the responses they are much appreciated.
I'm happy to say I'm back home again for 2 to 3 weeks while the business end of the R-IVAC phase kicks in. So I am now at the midway point of the treatment cycle having completed R -Codox M and IVAC initial cycles. I understand the next couple of weeks could be tough as my bloods might reach zero so need to be careful but am happy to manage that from home rather than be stuck in hospital basically doing nothing.
I was literally let out on pass yesterday for the break so having a family dinner at home last night and having tea and toast in bed this morning was priceless. I'm pretty sure I even woke up smiling!
So far all has progressed well and and not feeling too many side effects of the treatment but appreciate this can change. My consultant and team are happy with my progress so take a great deal of confidence from that. They appreciate I don't live too far from the hospital, have a young family, am still in good shape and won't do anything daft so have given me greater freedom than most perhaps.
I think my family has been single handedly supporting the oil price with the amount and frequency of visitors travelling up from Wales which is greatly appreciated. It was also great to see a bunch of my oldest mates travel up to visit just so they could check on me with their own eyes. Personally I think it was a bit of an excuse to be away from their families and have a few beers either way it was grand.
Looking forward to spending the next couple of weeks tidying and planting the garden up, tidying the garage, a gentle pootle on the bikes and eating lots of lovely non hospital food.
I know and understand we are only half way through but I'm feeling strong and positive so take that as a win. The soontobe Mrs King is an inspiration and wonderful mum who is tackling all of this with amazing strength and determination any woman ought to aspire to.
Enjoy the remainder of your Easter Weekend all and give all those close to you a kiss or a thought.
Thanks.
John
Top news! Keep going strong
Nice....!
This gives me so much confidence.
Mum was diagnosed with leukaemia last week and is undergoing her first bout of chemo. Fortunately she is responding well to treatment. If it wasn't for the tubes hanging out her arm you wouldn't know she was ill.
Good luck with this, fella.
Stay positive....
Great news. Good to hear from you on here.
Fantastic news Juan, stay strong.
Great news juan.
Brilliant news, that made me 😀
Hi John, hope you are well. Keep us updated on here when you can. God bless you pal, I'll have you and yours in my prayers.
