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@poopscoop That's rough news, sorry to hear it! I was diagnosed with CML (chronic rather than acute) in my early twenties, 20 years later I'm still here. Treatment was unpleasant and boring but not as bad as I feared and I'm sure the science has got way better since then. Happy to answer any questions about my experience, but I'm sure you will get good (and more accurate) information from your doctors!
All the best!
charliedontsurf
Full Member
...I have a hydrocele issue. Google that one… very similar symptom, the left one, bloody massive...
You are Danny Hart and I claim my five pounds
All the best for your treatment Poopy.
I'm not going to resort to cheap gags like other posters, but I'd just like to say I've always thought you were one of the forum's most impressive members.
GWS
All the best with treatment.
My mum was diagnosed with CML, she was put on a trial drug, given a very conservative outlook. Twenty years on, she takes a tablet a day and its virtually undetectable. Good luck.
Bloody hell Poops. All the best for your treatment. 👍
Quick update. Having no phone charger is a bitch.
I'm having a penile implant at some point as I've managed to break mine. It looks like an aubergine in shape and colour.
The implant? You literally grab a ball and pump your cock up. Google it if you don't believe me you obsolete humans. Reminds me a bit of my gaffer taped cola bottle bodge I use for tubeless setup. I'll be more conservative on PSI in this instance though
In my head I'll be part Iron Man, part cyborg. In my partners head I'm now called Frankencock.
In other news the guy taking a bone marrow sample complemented me on the hardness of my bones.
He has no idea. No. Idea.
Only skimmed thread as battery life is limited but thanks for the gags and support. Means a lot.
Just loled at cha****ngs compliment.😁
You literally grab a ball and pump your cock up.
To think that used to be my party trick and now you can get it on the NHS (presumably).
Frankencock would make a great forum name though.
Hope the treatment goes well for you.
When I was nine or ten I took a mini football full pelt to the knackers and one of them swelled up to the size of the football itself. Could barely walk.
All the best with your treatment, Poopscoop.
Get well soon.
At least if it ever punctures you’ve got plenty of jizz to seal it
(Really hope all goes well)
You definitely have to change your username to frankencock now.
Does it come with a pressure guide? 10psi for medium hard, 20psi for trying to break the bed?
Frankencock would make a great forum name though.
+1 and if poopascoop agrees to it I think we should ask the Powers that be to make that change in honour of his contribution here.
Best wishes for your recovery er, “Frank”. 😉
Yowzers poops. Hope you heal up soon. 👊 🍆
'What pressure for riding fully rigid?'
Tyre threads will never be the same now 😀
Hope it all goes well @poopscoop.
Just loled at cha****ngs compliment.😁
Mission accomplished.
🙂
Well, you learn something new every day! How will your robo-bollock react to stutterbumps and washboard? You might have to adjust your sag setting? 😮
Thanks for the update. Sending you best wishes. I hope you're on the mend soon and the meds treat you well. I'm sure the nurses will have it all in hand.
Was carted down for an MRI today.
On my cock.
I was taken down in a chair so at least I could hide the huge new extension from the numerous people in the hallways with my hands/arms.
Once there, I was given tape and told I had to tape the little fella destroyer of worlds vertical, pointing up at my chest.
Had the MRI which I only just fitted in once a cage type thing was put over my todger.
All done and wheeled back to ward. Then remembered the tape and spent an agonising 10 minutes in the shower gently peeling the tape from some very delicate and hyper sensitive skin.
To round the day off, a nurse asked me how the other nurses hooked up my paracetamol IV to the machine. She struggled on for a while but I genuinely got worried and said I didn't need the pain control anyway. I'd love to say I'm making this part up but it's completely true.😐
To round the day off, a nurse asked me how the other nurses hooked up my paracetamol IV to the machine. She struggled on for a while but I genuinely got worried and said I didn’t need the pain control anyway. I’d love to say I’m making this part up but it’s completely true.😐
That's a bit scary. Maybe ask for some Oramorph until next shift.
Hope things improve.
If you can get someone to drop in some ear defenders. For me it makes a hospital stay much more tolerable.
a nurse asked me how the other nurses hooked up my paracetamol IV to the machine. She struggled on for a while
Intrapenisly?
You know how they get a ship into a bottle? Well that’s why you had to tape the little fella down for the MRI machine .
Bloody hell.
Same nurse but this time I had to accept the paracetamol IV as my balls are aching like buggery.
Again, asked me how to connect it up, even which "port" on the canular. I have no idea. Never really watched the other nurses do it.
In the end another iv machine is brought in (other nurses just use the same machine, just stopping the saline feed and switching in the paracetamol) and messed around with for a while.
I'm then asked to keep pressing the mute button on the other machine every time it beeps alerts as it still thinks it is connected to me.
This nurse is also giving me all my other meds including the new chemo one.
Friggin hell. At least they are all in tablet form.
That is awful from the nurse. Its fine not to know but if you don't know you get somone who does.
That is awful from the nurse. Its fine not to know but if you don’t know you get somone who does.
Agreed, same in any role - I have no problems walking colleagues through tasks so that ehy can do it, but if you bodge it and I have to clear up afterwards I will not be pleased. Maybe next time either tell the nurse to ask for help, or raise it with the ward sister?
This has to be one of the bravest posts I've seen on STW in all the years I've been on here.
destroyer of worlds
Epic stuff. Have you tried the Avengers line when they need the Hulk to calm down?
Just been given some terrible news frankly.
It's likely to be an aytypical type of CML, not AML.
Bone marrow transplant stuff basically.
I'd give you a hug if I could stand close enough.
Just been given some terrible news frankly.
It’s likely to be an aytypical type of CML, not AML.
Bone marrow transplant stuff basically
Fack!
Bone marrow transplant stuff basically.
aw bollocks :(. I really hope that good news comes your way really quickly. You are doing an amazing job at dealing with it but it can't be any fun at all
So no chemo? Or chemo as well?
Shit man, that's not good to hear. Hope they can give you positive news at some point
Ah shit man! Sending virtual hugs Poop! Wishing you all the best and give this thing a kicking.
Shit, sorry to hear that. Hope they are able to find a donor sooner than later!
After I was diagnosed, I was put on a medication called Glivec which at the time was brand new on the NHS, basically what they called a "magic bullet" drug that stops the CML progressing any further. I was on that for about 6 months before they found a match for me (none of my family were) and then I went through the transplant process.
I'll be honest, it was pretty rough but the worst part was the boredom. About one week of intense radio and chemotherapy and then 5 stuck in an isolation room waiting for the transplant to take and the immune system to recover. Didn't have easy internet access or TV streaming at that time so I read a lot of books and played PS2 for most of it!
The transplant wasn't invasive, just a blood transfusion, but because of the chemo/radio it feels like you have a real bad hangover and flu at the same time, all the time. It will give a really sore throat too, which meant for about two weeks all I could eat was protein milkshakes to keep my weight up. Then about 6 months of a "clean" diet, basically no fresh food, just microwavable meals so they can be sure that no bacteria get into your system. That eases up over time once your blood work shows improved immune strength.
Took me about 2 years to get back to "normal", lost a lot of fitness due to being stuck inside and being tired all the time at the beginning, but afterwards I was probably in better shape than before. I definitely made a few life changes after as well, eating better and exercising more and just generally trying not to take things for granted so much.
I know it sounds horrible, and it is, but it is survivable. I'm here 20 years later because of the excellent NHS care I received and I'm sure the technology and medicine have only improved since my time.
Please feel free to ask on here or PM me if you want to ask me any questions!
Cheers, Leo
Heck poop, all best wishes
****. GWS Poop!
This thread keeps getting more and more sobering. It's Friday afternoon, though. Is it, er, too early for a stiff drink?
Crap… We’re all behind you
Dude that's poor.
Get well soon
Oh man, what was a meant as a light hearted thread keeps getting worse. One day you will joke about this. Get well as soon as possible. Virtual hug sent.
Well that is crap. This thread is just a complete rollercoaster.
Best wishes Poop
Bone marrow transplant stuff basically.
Thats two birds one stone stuff surely?
Erection jokes.... Lol
Edit: och bum i forgot the important bit. Obviously I'm sorry to hear the crap news. BEst of luck with the treatment!
Jeez man, that's a shit one. Thinking of you.
That's a lot to take in a couple of days. Get stuck in and kick its arse.
The STW community will be here to help out and take the piss whenever necessary.
Sending healing vibes, brother. 👊
Give it a good hoofin', Poop!
Get well soon.
Crap… We’re all behind you
You wouldn't want to be in front would you?
Crap news kick its arse
You wouldn’t want to be in front would you?
🙂
Hope the jesting helps Mr Scoop. Wishing you all the very best 👍