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PEG feed-tube exper...
 

[Closed] PEG feed-tube experiences?

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Hi, do any of you have any experience of PEG (Percutaneous endoscopic gastrostomy)
Feeding Tubes please?

Specifically riding with one...


 
Posted : 17/03/2014 10:30 pm
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Used them at work, no experience of them in the big wide world, but can't see much of an issue. Obviously cake might be difficult, but beer should be fine.

I'd ask your medical team for starters, but I don't think it should make much difference. You might have to take a big syringe for the pub.


 
Posted : 17/03/2014 10:36 pm
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Ha ha

No that's not the issue, it's been 'in' for a month or so. I'm trying to maintain at least some riding which is causing irritation - basically riding tops gently tugging away at the PEG.

Wondering if anyone has a recommendation either for a specific top/material or some form of barrier or shield to protect the area...


 
Posted : 17/03/2014 10:43 pm
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Again from my limited experience, we tended to coil the PEG tube and stick a square of gauze over the top to prevent it dangling about. I think that would seem the best option, plus a tight fitting base layer too.

Obviously depends whereabouts on you it is, but would wearing bibshorts help to cover or support it?


 
Posted : 17/03/2014 10:47 pm
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http://www.benik.com/peds/wrap/g-tube

I wonder if a bigger version of this might help?


 
Posted : 17/03/2014 10:51 pm
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Missus is a dietitian, so thought I'd test her knowledge!
She says that you can buy a form of belt called a "G-Tube Belt" which you can tuck the end of the PEG in to, preventing any irritation or movement.
They're not available on the NHS, but she thinks Merck sell them under licence in the UK.
Alternatively, depending on why the tube is in, she says you should be able to request a button rather than a PEG as its affecting your quality of life.

She can't be any more specific as she really only work with children, but hope that helps!


 
Posted : 17/03/2014 10:51 pm
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i'd ask your medical team for starters

What about the other courses?


 
Posted : 17/03/2014 10:55 pm
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What about the other courses?

I suspect he'll be having the soup...

( sorry, probably an extremely bad taste joke!)


 
Posted : 17/03/2014 10:56 pm
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A fair bit of soup tbh

Great for weight loss (though that's not why it's in)


 
Posted : 17/03/2014 11:02 pm
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I think I'd go for two tight fitting, like really skin tight baselayers, with a hole cut in the inner one. The second layer should help hold the tube itself and reduce the movement.

Other than that, I think a square of gauze and a strip of tape would be the best option.

I appreciate I've made light of it, but good luck with the issue, whatever it may be. ๐Ÿ™‚


 
Posted : 17/03/2014 11:09 pm
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Cancer & radiotherapy mate.

Some good ideas and links though thanks

I'll give my nutritionist a call re the options available as well - it helps that she's a rider too.


 
Posted : 17/03/2014 11:21 pm
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Just occurred to me, and I've been doing it all winter; what about a mesh base layer with a normal one on top? The mesh could hold a pad in place?

Like this;

[img] [/img]

You could even fold the bottom half up for more support.

I'm not one for good luck stuff, but I hope you get fixed and get riding.


 
Posted : 17/03/2014 11:27 pm
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Worth trying, thanks.


 
Posted : 17/03/2014 11:36 pm
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+1 for Crikey. We used to coil them up too- really stops them snagging. BTW Grtdkad- can't say that if I had what you did I'd still be riding. My admirations!


 
Posted : 18/03/2014 12:15 am