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^^ That might require a little not material than when I currently have to work with.😆
Scaredy- I could build you a wheel but I suspect you'd end up in hospital soon after riding it too.Lol
She called me, had a go at me for 20 minutes along the lines of me expecting her to put her life on hold
So you’re not the only massive dick in your family.
Oof. Saw the first two pages of this thread, haven't popped back in as I thought there was a limit to how many penis jokes I could take. And I'm not that funny or creative, so didn't post anything.
Was not expecting what followed. Really hope you are doing a OK as you can be. And your sister bailing sounds lovely 🙄
While the prognosis seems awful for aCML, the very brief reading I've done has mentioned that stem cell transplants work in some cases. I presume you're on the list for one now?
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5909725/#:~:text=The%20prognosis%20of%20aCML%20patients,amounting%20to%20approximately%2011%20months.
Anyway, all the best, and hope you get to have plenty of fun with that implant!
(Failing that, you could always have a stroke… )
It’s a good thing I read that before I picked up my can of beer and took a swig…
<span style="font-size: 0.8rem;">A quick glance at one source shows that median age at diagnosis is reportedly 70-73</span>
Well, as it’s my 68th birthday in a couple of weeks time, that give me something to look forward to, and save up for - no coke, that leaves me more to spend on a better class of hooker…
Nothing to add over and above what's already been said.
But definitely take your time to work out what treatment options you do or don't want to pursue.
And I’m not that funny or creative, so didn’t post anything.
There's no need, he's got a hand on things now.
Another one who has come back for the knob jokes and didn't expect the sting in the tail.
Good luck with whatever treatment you decide to take, an absolutely bizarre way to find out though. As for your sister, you learn a lot about people in times of stress and hardship. At least you know early on and not finding out when you don't have time or energy to make alternative arrangements.
Why do i think your having some
Grafted in?
Remember Bullheart (or Petesgaff as he was originally known) who was given a prognosis of "six months" with a very rare, aggressive form of cancer - but who managed another ten years before it got him, in which time he very much lived life to the full
https://singletrackworld.com/forum/topic/rip-bullheart/
All the best @poopscoop, I wish I could offer something more than platitudes and knob gags. Although I think the news of cancer is hard enough to swallow, without the (semi rigid) knob gags...
(and no, I ain't posting any images of knob gags, though I'm sure they exist)
Hey @Poopscoop. It's been quiet here for a couple of days. Don't feel u need to check in or anything. Just wanted you to know you my mate had to visit A&E last night with a broken/dislocated finger and when he was feeling sorry for himself, I mentioned your 'downstairs' issue and I think it rather put things in perspective and he had a bit of a word with himself 😂
I'm sure now things have had a bit of time to sink in, it's tough going but we are all with you. Take care fella.
Was thinking the same - hope everything is going OK today.
Hello all.
Firstly, thank you so much @charliedontsurf and all at STW for the parcel! My son is now at my place look after my mother and I asked him to open it whilst on the phone to me. He commented, "that's a really nice thing for them to do", to which I replied, " been telling you for years, STW is much more than a bike forum and mag."
A truly lovely gesture guys.
RoboCock augmentation delayed till next week as my bloods still need a little work vid the chemo. I'm fine with that, im no hurry to have 2 plastic rods rammed up the old todger.
Now the big news.
Some results came back from the Royal Marsden. They used DNA sequencing, I believe, to see if the they could pin down if it actually is the "Philadelphia chromosome" that is faulty, though initial testing says it wasn't. That was bad news and meant I likely had aCML and would likely need a stem cell transplant if viable.
Well, the Marsden DID find that the Philadelphia chromosome is faulty after all. The actual error within it is not the usual type (hence the initial testing didn't find it) but none the less, it's that chromosome .👍
That changes a lot. It means I have a slightly unusual CML but I've not got "atypical" (aCML).
It now means that I should be able to be treated with a drug from a small stable designed to target this chromosome. Hell, its even possible that, one day, I might not even need the drugs. Not that I mind taking them.
The knock on effect is also that I shouldn't need a transplant.... So no worry over finding a way to keep my old mum out of a care home whilst I had the transplant and recovered. That's a huge weight off my shoulders.
There could be issues along the way I'm sure ( I have an echo scan on my heart tomorrow) and I'm almost scared to have a little hope now as that rug was pulled out from me a couple of times over the week but this might, might just be a manageable condition after all.
This experience has already changed me. I've never looked my own mortality in the face like this before and I would like to say I met it's stare bravely and unflinchingly but in most ways I did not.
Over my life I've attempted suicide a couple of times, I don't find life easy, I've always struggled with it and always will.
Now?
As Roy put it, "I want more life, f***r".
I've never valued just being alive as much as I do today, I've taken out for granted. Life is still going to be tough because my mind makes it that way but bloody hell, it does beat the alternative.
I'm sure there'll be more to post in this thread if only about the Cyborg Cock implant but I want to say again, thanks for all the humour, piss taking, support and everything really. You have no idea how much it has helped.
Great stuff. I had a very similar experience to yourself with the initial diagnosis being somewhat different to the final diagnosis with the benefit of biopsy/bloods/bone marrow.
Search for me and read my thread from 5 years ago and hopefully it'll help. Feel free to pm for a chat mate.
That all sounds much more positive. Have everything crossed for you.
That’s such good news. It’s just got a bit dusty in here just now. Best of luck with the treatment. I hadn’t been in this thread for a while, and bloody hell its taken some turns since I last looked.
Great news! ( I’d write more but I’m half asleep)
Edit
This thread has had more ups and downs than … fill in your own punchline
That’s great news poopscoop.
That's great news!
I should be able to be treated with a drug from a small stable
Horse tranquilisers?
^^Damn it! I knew it didn't sound right!
Oh my, that is incredible. I do hope that the small stable has something appropriately stallionish for you
Stay strong Poopscoop. You've got this.
Are we still doing Thread of the Week?
Hell, its even possible that, one day, I might not even need the drugs. Not that I mind taking them.
Again, I'll refer you to my mum. Paraphrasing, she said that it'd be easy to fall into thinking how crap it was that she had to take all these drugs. Her take is, isn't it bloody brilliant that I can take all these drugs and not die!
” been telling you for years, STW is much more than a bike forum and mag.”
Probably a decade ago I coined "STW: you'll come for the bikes; you'll stay for the bollocks." Now here we are, you're not providing the bollocks exactly, but, eh... probably in the right ballpark.
Great news poopscoop.
… so, has it gone down yet?
Yay!!!!
Great news! You might just look back on this for the better at some point in the future if it changes your outlook on things. But please, no photos post-op, not even artist impressions…!
That is awesome news!! Even though you may still end up as a cybernetically enhanced porn star ("What home automation for cyber-cock" thread soon?) I am really happy to hear that, in this case at least, the drugs are good.
Keep on with the living and the positivity, but i echo the "no pictures" comment.
****ing fantastic news! You’ve got this poop
Good news poops.
Robocock could be achieved through a couple of pipecleaners....with added benefit of seasonal decoration.
What home automation for cyber-cock
Poor Alexa...she didn't sign up for this.
Feels weird to say, but it's great news that you have "regular" leukemia 🤣
I still find it amazing that something that would have been a death sentence 50 years ago can now be taking care of by popping a couple pills each day.
Obviously still a lot to go through, but stoked for you and your family that the outlook is a lot brighter now!
I haven't been able to open this thread since "that" post a couple of pages back, I'm really pleased and relieved that the outcome looks somewhat better now.
Your sister sounds great. BTW...
Keep your spirits up...and you know, that other thing as well.
Talk about a thread of ups and downs.
Well mentally up and down, physically it is clearly mostly up
Hell, its even possible that, one day, I might not even need the drugs. Not that I mind taking them.
That's brilliant news 😊
Fingers crossed that it is as positive as that sounds like it could be - caution required, but I'm very pleased for you. I'm another one reading this and wishing you a speedy recovery. The twists and turns of life eh!
Sounds great news.
Amazeballz
I remember learning about Philadelphia chromosomes in medical school, and the new drugs that had just become available to treat it - they have revolutionised the treatment and prognosis of some cancers. That was only 10-15 years ago. Those interested might find the story of the development of Imatinib really interesting, it's targeted at a specific gene product (suspect it's one of the many things @TiRed knows a thing or two about, too).
So while I don't really know how all that relates to you, it sounds like you've been given some really good news 🙂
Loving the lust for life Poopscoop, crack on!
Keeping all fingers crossed (and possible malleable penile tissue too?).
I also saw “small stable of drugs” and thought of Shetland ponies taking MDMA and the like. So, you know, could be fun?
All the best!
Echoing the above and a big "Yayy!" from me. Good to hear positive news, keep kicking its arse!
Shetland ponies taking MDMA and the like
Everybody on board the party pony!
Great to hear some more positive news for you Poopscoop - also love the Roy Batty quote, you cant beat a bit of Bladerunner...(or some more life..)
keep up the fight...
Best wishes - U.z.
This is great news. Hope you see a rapid response on treatment.
Imatinib and other targeted therapies have really changed outcomes for patients in a magic bullet way. In the first ALL trial the results were already transformative. And 21 years later most advances in cancer, beyond immune stimulation, are using the same targeting similar well-understood pathways. KRAS in lung cancer being the latest (previously believed undraggable).
And on that good news, I'll now post the comment
It isn't over till the fat lady sings
Must surely have been the euphemism of the day. Deserved more credit.