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[Closed] One armed cyclist - an update

 TN
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Hi all.

I know a lot of you have been interested in how J was getting on with his riding and I have been rather absent on here recently.
Well, the reason is, his sarcoma came back, in his lung this time - this is officialy 'a bit of a pisser'. All indications are that this is again an isolated tumour which is a bit of a good nugget, I suppose.

He's endured 5 months of chemo and I have dropped him off at the hospital this afternoon to have surgery tomorrow to remove the affected part of his right lung. Which turns out to be most of it, as far as we can tell.
It is his full intention to kick this thing up the arse again and get back out on the bike by spring, although I think he is just using this timescale as an excuse not to go riding in the cold weather. ๐Ÿ˜‰

Anyway, I just wanted to ask those of you who have been following his progress and who were so involved in getting him back on his bike last time to think happy and healing thoughts for him tomorrow and to will this tumour into oblivion.

Thanks,

Trudi


 
Posted : 30/11/2011 8:46 pm
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*positive vibes*


 
Posted : 30/11/2011 8:49 pm
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Hope it all goes well, be back riding soon hopefully


 
Posted : 30/11/2011 8:53 pm
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healing thoughts

*out nasty sarcoma - begone with you*


 
Posted : 30/11/2011 9:06 pm
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All the best J!

(And TN, for that matter!)


 
Posted : 30/11/2011 9:07 pm
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All the best to both of you. And may [s]The Force[/s] Bullheart be with you.

X


 
Posted : 30/11/2011 9:08 pm
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Will be thinking of him tomorrow. Good luck.


 
Posted : 30/11/2011 9:14 pm
 TN
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Thanks all.

God, I feel sick...


 
Posted : 30/11/2011 9:33 pm
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It is his full intention to kick this thing up the arse again and get back out on the bike by spring

With a mindset like that, he [b]will[/b] beat it.

Healing vibes & positive thoughts sent from me.


 
Posted : 30/11/2011 9:47 pm
 flow
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All the best to him


 
Posted : 30/11/2011 9:49 pm
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I think he is just using this timescale as an excuse not to go riding in the cold weather.

๐Ÿ˜†

Any excuse, eh?


 
Posted : 30/11/2011 9:49 pm
 TN
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Any excuse, eh?

Well, he IS a bit nesh. ๐Ÿ™‚


 
Posted : 30/11/2011 9:51 pm
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healing vibes from Kernow coming your way & we will be thinking of you [b]both[/b] tomorrow.

Looking forward to seeing pics of J back on his bike again in the New Year or when it's warmer ๐Ÿ˜‰

Take care


 
Posted : 30/11/2011 9:54 pm
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Best of luck to you both and thoughts with you


 
Posted : 30/11/2011 9:56 pm
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Trudi,

I looked at the update thread you put up two years ago and saw the FB photo's - what a guy J must be, good on him. Absolutely no doubt that with spirit like that he'll give this cancer a big kick in the balls.

All the very best.


 
Posted : 30/11/2011 10:01 pm
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All the best and good luck - fingers crossed that the op goes well.


 
Posted : 30/11/2011 10:12 pm
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A load more good wishes here - take care both. Give it some!


 
Posted : 30/11/2011 11:05 pm
 TN
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Thank you all of you.
I have to admit to having a bit of a wobble at the moment but I am sure J (and the surgeon) can do the necessary to kick some tumourous butt and get him fit and well again.
I feel kinda selfish to be honest - I am not the one going into theatre tomorrow - but he's going to get a nice few hours out cold tomorrow and I am already in a state about it... Thank goodness for annoying litle sisters!


 
Posted : 30/11/2011 11:13 pm
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A lot of people send me emails from all around the world, asking me about my fight with sarcoma, and about who or what inspires me. Funnily enough, the last person was a reporter a couple of Saturdays ago. My answer always starts with the line;

[i]"...there's this guy with one arm called Julian in Sheffield..."[/i]

He's one of the reasons I'll never, [b]ever[/b] give up. I owe him everything.

Godspeed you two; no backing down, no matter what. I love you both x


 
Posted : 30/11/2011 11:24 pm
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Best of luck.


 
Posted : 30/11/2011 11:40 pm
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Bugger, I thought this was goIng to be a 'good' update, that he was riding the Fort William red or something... ๐Ÿ˜ณ

Hope you get to post that one soon enough though.

Good luck (the both of you).


 
Posted : 30/11/2011 11:48 pm
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Jesus Bullheart. That post is ****ing -ing beautiful.


 
Posted : 30/11/2011 11:50 pm
 TN
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Metalheart - we did Whinlatter red in May, if that helps at all? He was better at it than I was. It's quite embarrasing!

Just had a good long chat with Bullheart and we have decided J is going to be fine and kick some sarcoma arse. We have the best cardiothoracic surgeon on side, a great oncologist and the good vibes of hundreds of friends - you're all ace and we appreciate your support more than you can possibly imagine.

And that good update will be coming soon - keep watching!


 
Posted : 30/11/2011 11:53 pm
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TN, yes I have had the embarrassment of being passed on an uphill by a man with one arm... I think I posted this on your original thread?

A red run is plenty good enough for me. I'll look forward to that thread in due course. ๐Ÿ˜€


 
Posted : 30/11/2011 11:58 pm
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hope everything goes well, from a fellow Stanningtoner


 
Posted : 01/12/2011 12:01 am
 ton
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best wishes to you both.


 
Posted : 01/12/2011 12:05 am
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J needs to beat it so you can come up here to ride soon! X


 
Posted : 01/12/2011 12:43 am
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All the best, I really hope it all goes well.


 
Posted : 01/12/2011 1:35 am
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me too , good luck ! ๐Ÿ™‚
[img] http://www.ukou.info/g.php [/img]


 
Posted : 01/12/2011 8:08 am
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Fux sake Bullheart, long day at work, too much wine , your post = major dust in both eyes. ๐Ÿ˜‰


 
Posted : 01/12/2011 8:14 am
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Trudi

Hope everything goes well. Send Julian my regards when he wakes up - mind you, he's tough enough to just need a local!. Anaesthetic that is, not a pub. See you soon.

Chris @ tony b's


 
Posted : 01/12/2011 10:53 am
 Drac
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Best of luck and keep the spirits high.


 
Posted : 01/12/2011 10:55 am
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Prayers from me as well, hope all goes well.


 
Posted : 01/12/2011 11:04 am
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Best of luck, and tell him to kick cancer in the face for... well, everyone.

Also, if you could let us know when and where he'll be back on the bike. I've already been overtaken by a sumo-suit wearing singlespeeder and a unicyclist, I'd like to add a one-armed, one-lunged man to my collection.


 
Posted : 01/12/2011 11:08 am
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TN Don't feel selfish - you have to acknowledge your fears and needs as well. sometimes being the supportive one is hard - but it helps to share that load as much as you can. I thank you for sharing and I hope we can in little ways help you.

*sends positive vibes*


 
Posted : 01/12/2011 11:15 am
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Healing vibes from sunny Wirral. Best of luck!


 
Posted : 01/12/2011 12:05 pm
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May you both live long and prosper

[img] [/img]


 
Posted : 01/12/2011 12:08 pm
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its only a flesh wound. wish you guys the best


 
Posted : 01/12/2011 12:38 pm
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good luck with it folks


 
Posted : 01/12/2011 12:51 pm
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good luck!


 
Posted : 01/12/2011 12:56 pm
 TN
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Hi all.

Well, what a long day - almost 7 hours from taking him to theatre to him arriving back in ICU. The good vibes did the job though and apparently there were no dramas and the surgeon did what he intended to do. I don't know whether they got the whole tumour out - not spoken to anyone on the surgical team yet - but I am assuming they did as they took some of his diaphragm away and patched it with Goretex - that's dedication to the gear freak cause, isn't it??
He's in ICU at the moment but all his numbers look good (he looked shit, but he has had a pretty rough day, so I will let him off) and they took the breathing tube out as soon as he got settled, which is apparently pretty good. They expect him to go back to the general ward tomorrow, all being well.
So, thank you all for your continuing support, especially yesterday evening when I was really struggling.

T


 
Posted : 01/12/2011 9:11 pm
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*mops brows*

sounds as good as it could be. ta for the update.


 
Posted : 01/12/2011 9:13 pm
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Here's to a quick and full recovery.

Thanks for letting us know how things went. Surely you need some rest now.

Bunnyhop x


 
Posted : 01/12/2011 11:12 pm
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All the best to you both.

*sends nore healing vibes*


 
Posted : 01/12/2011 11:26 pm
 TN
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Oh aye, I sure do Bunnyhop.
However, hospital has just rung and said he's off back into theatre because he's bleeding into the chest drain, but they said it is fairly common after cardio/thoracic surgery and didn't seem overly concerned. J asked them to ring and let me know because I think he knew the earache if they didn't would be far, far worse. ๐Ÿ˜‰ Apparently he was okay in himself and his stats were looking good, so I guess it's (kind of) like knocking a scab off your knee really...
So anyway, I am up for the next couple of hours waiting to check he is okay again.


 
Posted : 01/12/2011 11:29 pm
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[fingers crossed]


 
Posted : 02/12/2011 12:11 am
 TN
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They went back in and didn't find anything specific bleeding, so they just cleaned it all out and fastened him back up. His blood isn't great after the chemo - it's good 'for him', but compared to a healthy person it's kind of watery.

So, after Thursday nights little drama, he has gone from strength to strength and has had all the wires and pipes removed, apart from the chest drain. It is still draining more than the surgeon would like but he's not too concerned and says it just needs some time and is probably just a 'hangover' from the 5 months of chemo.
He's now eating well (he requested takeaway onion bhajis for tea and had a huge salad for his lunch) and is walking about pretty well. Various friends and family have visited and all have said he looks great and not at all like a man who had major surgery less than 3 days ago.
I think the consensus is that he's nails. ๐Ÿ™‚ I am not going to disagree with that.


 
Posted : 04/12/2011 10:47 pm
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Cool!


 
Posted : 04/12/2011 10:49 pm
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I hope he pulls through and gets back on a bike.

Respect!


 
Posted : 04/12/2011 11:03 pm
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He's tough.

It is still draining more than the surgeon would like but he's not too concerned and says it just needs some time and is probably just a 'hangover' from the 5 months of chemo
.

My GF finished 24 weeks of chemo just 6 weeks ago and has only just cleared all the fluid off her lungs, abdomen and legs. She's looking so much healthier now. You are in our thoughts.


 
Posted : 04/12/2011 11:03 pm
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๐Ÿ˜€ is all really.


 
Posted : 04/12/2011 11:06 pm
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Good news.


 
Posted : 04/12/2011 11:33 pm
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Dunno what to say other than major healing vibes heading your way and stay strong for each other*

* Unnecessary as clearly you both are ๐Ÿ™‚


 
Posted : 04/12/2011 11:39 pm
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How we doing today?


 
Posted : 06/12/2011 8:30 pm
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I think the consensus is that he's nails. I am not going to disagree with that.

Yup


 
Posted : 06/12/2011 10:10 pm
 TN
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Hi. Sorry for disappearing for a few days - been kind of busy.
He was allowed home on Wednesday last week with 36 staples and a chest drain. He's had the staples out now and the wound is healing nicely, but the drain is still in.
He says he feels like he was kicked by a horse. (he even joked that he wasn't sure about the theatre but the play can't've been much cop as he slept through it AND the encore. ho ho!)
But, living up to his 'nails' reputation, we went for a steady walk up to the local library on Saturday morning and he did great - only a 15 minute walk, but it is slightly uphill all the way and he was less out of breath than before the op, which strikes me as a good thing. He said he felt better for using his legs!

Seeing the surgeon tomorrow for the 'debrief' - could be a bit scary, but he has already said that (as far as he can say, knowing what cancer is like) he got it all out. Just a case of hoping the 5 months of chemo blatted any floating cancer cells.
He is bored now. He can't drive for 6 weeks, he hates relying on others to get out and about. He can't lift anything heavier than a kettle of water for 6 weeks (so he can still make me a cuppa!)
He wants to get on his bike but can't put his riding arm on for a while anyway, as the strapping goes right over the area where his operation site is. So it's turbo only for a while. He *does* have a green light for exercise when he feels like it, but no real cycling for at least 6 weeks.
So, getting there - a minor setback, but we all know how persistent he is. ๐Ÿ™‚

And Buzz Lightyear - all the best to your girlfriend (and you, of course)


 
Posted : 13/12/2011 7:36 pm
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[img] http://t1.gstatic.com/images?q=tbn:ANd9GcS0AvRkGIK3fmBrYagqKHgPiwCAgQCHLjap-wFUx8FjVUFREKN6 [/img]

Will call you both later.


 
Posted : 13/12/2011 7:41 pm
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my best wishes for a speedy recovery (and back on your bike ๐Ÿ™‚


 
Posted : 13/12/2011 7:45 pm
 TN
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Back from seeing surgeon - he's (as) happy (as he can be) he got all the tumour out and the extra bits he took out that looked a bit dubious have come back all clear from pathology. The chemo had done a job on the main tumour too, so the news is as good as it can be. That's officially good news.

From J's point of view, the best bit is that his chest drain came out today too. And that means, once that wound has healed up, he can have a long awaited soak in the bath. ๐Ÿ™‚

Close surveillance at Weston park again now, but we can deal with that.

Just need to get the muscles healed up so he can get back onto his bike comfortably/safely.

So, onwards and upwards. Again.


 
Posted : 14/12/2011 5:17 pm
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Thanks for the update. Glad to hear the news is good. wish you both luck.


 
Posted : 14/12/2011 5:36 pm
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Amazing.

Just amazing.


 
Posted : 14/12/2011 5:40 pm
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Good news, thanks for the update. All the best to both of you ๐Ÿ˜€


 
Posted : 14/12/2011 5:56 pm