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Long story short, I started getting really fatigued in Oct/November last year and took a week to work from home / light duties and put it down to a stressful year.
Sort of back on track and muddled through till xmas training ish when I had a 2-week break from work.
On top of the fatigue, I was getting heart palpitations pins and needles confusion, and clumsiness had blood's done which showed nothing of note ..
Then early Jan Started getting sore toes randomly with discoloration and massive reaction to cold where id never had an issue in the past .. another GP appointment and she believes I have covid toes (Its a thing check out the internets) and its likely that I'm suffering from long covid given all the other random symptoms .. I have had 4 negative tests and GP said maybe it's from the first time around and was asymptomatic.
All a bit random but still feeling absolutely worn out at the moment which is not like me.
Anyone else suffering similar things if so how long did it last as DR just said we don't know sorry look after yourself and got some B12 bloods done.
Dr was great I'm not digging anyone out just trying to gather some hive knowledge and experience as its all an unknown at this point.
Id really like to start feeling like normal me again soon .. Its the uncertainty i don't like.
Cheers
Until you get more solid info from elsewhere, I'd suggest researching the treatment for mild to moderate frostbite and use that as an interim guide for how to look after the toes. In other words, be B***** careful and prepare for the long haul. Sorry cannot be of more help, we all have so little experience to draw on as yet.
There is a have any of us caught it thread which goes back to around March / April.
Thanks Highland - have been doing that already and she's given me some steroids which have helped with the soreness.
OAP - will run a search thanks
Madame had chill-blained toes in March last year (first time in her life). It was 20°C and the doc was as confused as she was at the time, this was a week after severe conjuntivitis (first time in her life) and two weeks after a very sore throat and fatigue. We'll never know if it was Covid as the negative blood test five months later was beyond the window for a relaible blood test result. Anyhow the "Covid toes" were very itchy, purple and swollen for about five days then slowly returned to normal.
Id really like to start feeling like normal me again soon .. Its the uncertainty i don’t like
Yup,you and thousands of others.
As highlandman says ,it's all a bit too new to nail down yet ,if you have a look through the more recent pages of this thread you will see examples of what others have been left with.
Take care and look after yoursef
https://singletrackworld.com/forum/topic/have-any-of-us-actually-caught-the-coronavirus-yet-then/
my sons got long covid from March it was mainly fatigue and breathlesness,but i have noticed he catches every cold and bug around and although his chest has improved he still has bouts of fatigue and his blood tests have been ok as well. i dont think anyone really knows the answers as to how long this can last as its a new virus.
I've been making some slow and steady progress since November with my fitness and FTP, having caught Covid towards end of last March (not helped by having so stop fitness training in August after surgery on a golf ball sized abscess on my back in late July, having had a benign lump for ~6.5 years), but I still feel fatigue from races/TTs/workouts far more than I used to. Back to back days of intense stuff now leave me completely wiped, this time last year I was doing harder days and doing three days back to back and I swear I didn't feel as bad as I do now after two.
Others on here caught Covid around the same time as me and are still really struggling to do much exercise at all.
Top tip is don't start doing substantial z4+ intervals in the first few weeks after your symptoms go, even if the symptoms felt very mild at the time of being ill.
You may eligible for an NHS anti-body test. You can apply on gov.uk
In a way the 'Covid' in Covid Toes or any other long running symptoms might be a red herring. Many of the conditions referred to as Long Covid are really 'post-viral' - mostly auto-immune conditions that have been triggered by a viral infection. You can get many (probably any) of these symptoms in the aftermath of any kind of infection really. Its definitely notable as an after effect of a covid infection, maybe because covid tends to give people's immune response an especially vigorous workout - but these are not conditions unique to a covid infection. The volume of cases might be unique to Covid but we don't really monitor other illnesses in anything like the same way or attribute post viral conditions to any particular bug
I've been hospitalised twice by post viral conditions in the past - just common or garden coughs and colds. The only pertinent question at the time was 'have you had a cold or flu recently' - it was never really a question as to what particular strain cold of flu I'd had as by that point its irrelevant - the issue is with my immune system going on the wonk, the bug was a trigger but is no longer the cause.
Its only because we're monitoring covid infections closely that we're drawing links between recorded cases and long term autoimmune conditions- but on an individual basis, without a positive test to link to, your symptoms could be the result of any sort of lurgy really.
My tongue is as rough as a badgers ass after covid!
Thank you all for your time and comments and direction to other thread , lots of good info I’ve sat and digested it .. cripes
Covid toes not chilblains?
With the fatigue have you had significant joint / muscle discomfort or stiffness and any loss of weight?
Dr said Covid toes , I’ve never had chilblanes ever before in my life (42) before , I cycle in the cold wet , snowboard etc so would be a bit random but not impossible
Wurzel- joint pain tick , muscles tired . Sadly no weight loss feel like I want to eat every thing
No covid toes for me, but everything else checks out.
https://singletrackworld.com/forum/topic/long-covid/
Took me around 9 months before I really turned a corner. Was very up and down before then - thought I was improving then BAM, worse again. I'm not back where I was fitness-wise pre-covid, how much is temporary loss of fitness and how much is permanent damage to lungs/heart etc. I have yet to ascertain 🙁
10 weeks into long COVID here. Mild case at point of infection and better in 6 days, but then ongoing hangover. No COVID toes but persistent headaches, fatigue and heavy lung congestion causing shortness of breath. Also the top of my right leg is randomly swollen (no DVT). Work occ health and line managers have been v supportive and I’m down to working 16 hours a week atm. I have been trying to follow the ‘pace, plan and prioritise approach’ and have stuck to walking and Pilates (yesterday I did my first 10 min v light weight session as I’ve had a reasonable week). Also started taking OTC antihistamines and Quercetin as there is a possible link between long COVID and mast cell activation syndrome, which given personal and family history could well be relevant for me. No alcohol. I have seen a difference in the last few days - all symptoms still there but the tiredness and brain fog aren’t so bad. That said I’m typing this during another night of disturb sleep - have a feeling today won’t be so good. I won’t start any cardio now until 12+ weeks based on all the reading I’ve done and I’m really trying to avoid boom and bust cycles with the fatigue. As said above - much of my issues are common to general post viral fatigue.
Good luck. Even for me only 10 weeks in this REALLY drags. However we can thankfully learn from those in the first wave.
My tongue is as rough as a badgers ass after covid!
We had something we dismissed as a cold back in September - runny noses (which were supposedly a marker of something other than covid), mild temperature for 24 hours, no cough etc. My wife had something akin to the newly-identified 'covid tongue' though, so we're wondering whether we've had a scrape with it.
My lung capacity/fatigue/power has been less than ideal over autumn/winter, and had an episode of bad breathlessness/asthma symptoms over Christmas. Thought it was just overtraining, TBH.
Also started taking OTC antihistamines and Quercetin as there is a possible link between long COVID and mast cell activation syndrome
Montelukast for asthma has made a fair difference for me over the last few weeks, which supports the idea of mast cell involvement in ongoing symptoms.
Thank you all for your time and comments and direction to other thread , lots of good info I’ve sat and digested it .. cripes
One thing I'd say, after ten-and-a-half months of long covid, is don't pre-judge it, everyone's experience is different. The various FB support groups - shout if you want links - are a great source of lived experience, information and ideas on what works and what doesn't, but everyone is different. Some people recover after only a few months, others are still struggling almost a year after their initial infection. The medical establishment is still playing catch-up.
This YouTube channel is really good.
https://www.youtube.com/c/RUNDMC1/videos
Check out the stuff around the NAD+ deficiency theory and the supplement stack suggested. It seems to have helped a lot of people, me included. Hope you make a rapid recovery 🙂
Thanks again all - I certainly don't feel as hard hit as some of you - Just really lethargic and tired. I was managing low-stress turbo sessions most days but it was a struggle to get on the bike rather than a joy .. i did feel better but wiped out after if that makes sense . I kinda think that this sedentary lifestyle isn't helping either - WFH Im Far less active than id normally be. Not really done anything but work for last two weeks as had a knee operation .. Im thinking that going from training most days to zero isn't helping but I cant even really do Yoga at the moment so just have to be patient !
Haven't had any long Covid that I've noticed, but it's overlapped with a new baby, so it's rather blurry anyway! Had Covid toes quite badly last April. ended up blistering, bursting, scabbing over before they healed. Was about a month before IU could wear shoes again.
Didn't know the link to Covid at them time, just thought it was an amazing co-incidence that I have this toe issue that meant I couldn't wear shoes at the same time there was this pandemic going on that meant I was working from home and didn't have to!
I'm 2-3 weeks into another bout of The Toes now, but nowhere near as bad as last time.
Is the doctor certain it’s long covid? A family member had Polymyalgia; I think think though it typically affects 50 years old and above.
Symptoms may not fit as joints and muscles ached and were weak; it was quite debilitating as lacked energy to walk up stairs or do any form of excess. It affect appetite which doesn’t seem to fit with your symptoms
So looks like I have CV toes too, wondered what it was. Specifically both little toes. Not had CV19 that I know of, spelled cold sweats and dizziness in DEc 20 and cold/chest cough at new year. No noticeable fatigue or other symptoms. Have had the toes for best part of 2 months now tho and trying hydrocortisone creams.
Am still cycling or walking most days for my sanity so maybe I need a break for my toes
@makkag interesting topic you've brought up here. Have you had problems with both feet? The reason I ask is for the past few months I have been having real trouble with my right foot. While out walking or cycling my toes on my right foot go completely numb for no good reason. I've never had any circulation issues in the past so I'm completely stumped about what the issue could be.
It started and is most prevalent in my right foot 2nd toe from the end - but I did have trouble with the left and have - mega cold feet like you when walking or cycling - Ive kinda stopped in the last two weeks but the right toe has not got any better .. Definately worse on that side - I have been given a steroid cream but cant say its making much difference .. Wierd