http://cmajblogs.com/bill-c-442-and-chronic-lyme-disease-the-parallels-with-chronic-brucellosis/
'Chronic brucellosis' disappeared following the medical community's insistence that no evidence supported the diagnosis, and yet, despite similar concerns and skepticism, the idea of chronic Lyme disease is only gaining momentum today. This trend of patients dictating the details of their disease coupled with physicians hesitant to offend or upset can only result in confusion, misdirected care, and ultimately harm to the patient.
Ya'll suffering from mass psychosis.
Does this guy seem sane to you?
Someone that you should listen to and think, yeah AIDs isn't caused by a virus....it's caused by something else!!!!!!
Lol....also....UC Berkley again. Anyway, don't get upset - once I've banged the idea that you're not sick into you, you'll magically get better. It's amazing.
Let me add, people don't even know how to be scientific mavericks these days either. You don't go on tv with some SOB story about your life and some anecdotal evidence, you go and quietly beaver away for years on some ground breaking work so that the evidence is utterly convincing - shock the world and then say "I told you so" to everyone that doubted you, win a nobel and walk away from it all never to be heard from again - so that you're talked about in hushed tones in dimly lit academic corridors for the next 50 years. If you think you're right, walk the walk.
Let me be a little bit controversial, and recommend a psychologist to cure your chronic lyme disease.
Tom - if you want to be listened to then you'll need to lose the above insult. No need for that, it's not conducive to intelligent discussion.
Hmmm, says the woman who suggested not long agi that 'the NHS' just want some people to go away and die. Pot meet Mr kettle
Thanks Tom. It might be confirmation bias at work but that long quote supports my own feelings on the matter.
I seem to remember reading somewhere about remote people in the tropics, ie with fairly constant day length and no clocks. They'd be up at dawn, active in daylight, then sit around by firelight for three hours or so before sleeping. I guess that would be our default state before we got civilised.
There was a recent study IIRC that dismissed this idea. They simply went to the most un-touched hunter-gatherer societies they could find, lived with them a bit, and found that they sat around the camp fire chinwagging til late at night just like everyone else does.
I'm not sure if there's misguided cynicism or just bad trolling going on here.
I can tell you, from first hand experience, that it is very, VERY unpleasant to become ill with an disease that the NHS is woefully unequipped to diagnose, let alone treat. And we're just talking about LYME here, not even co-infections that often massively complicate things.
NHS have barely even heard about those, so you had better hope you don't hit the jackpot when you're out biking, Doxycycline will barely touch Babesia or Mycoplasma that often come with tick bites. You mention those terms to a GP and they will likely look blankly and go scurrying for a reference.
Co-infections like these OFTEN make mono antibiotic therapy fail, EVEN if you catch it early enough.
So imagine if you've had your standard 2-3 week Doxycycline therapy and your GP says "oh you're fine, off you toddle" – when you still have a Babesia co-infection that won't go away until you treat it with Mepron and Zithromax. Sometimes Babesia will hit the patient 2 months after exposure, long after that Doxycycline has finished.
Oh but wait... you've had your 3 weeks of Doxycycline so you're fine. Best go and see a psychologist then? 😆
This is why Lyme Literate doctors are required, until the point where GPs become more aware and specialists less entrenched in outdated means of testing, treatment and understanding. It is a highly complex disease and it's not going away.
I'm stunned that we are still so backward in how we look at this.
Chronic Lyme disease doesnt exist or at least isnt caused by virus left in the body, saying that it does/is - makes you as bad as an aids or global warming denialist. It is literally that simple. That's the level of opposition to evidence that lymies operate at.
Everythung you've just stayed is quite literally made up, people laugh at some of Jambalayas opinions on brexit - but he hasnt got anything on the above post.
But yes, psychogenic disease is terrible and requires treatments other than high doses of various antibiotics.
Quite why you think you're entitled to multi drug long term anti biotic therapy despite a lack of evidence for their effiacy is beyond me.
Antibiotics are a strategic resource for all of humanity, that are rapidly losing their effectiveness due to over use. The level of arrogance to think that your western yuppy disease warrants their further deterioration pisses me off to the core.
Tom, I'm not sure if you are just a hobbyist or an over-zealous med student, but perhaps read Buhner's work as I have suggested. It is quite enlightening.
Once you have done that, if you want to attempt to pick apart his work be my guest.
Many have wanted to and failed, because he has done his homework, he is a biochemist at heart and has been treating Lyme and co-infections for years.
Perhaps look at the bigger picture. Not much more I can say without wasting the rest of my evening doing your research for you.
CG you have Mail
Im not even going to waste my time with him, if he had something real to say it would be found in a literature review in Nature. He doesn't, so he wrote a book. Btw, all the current systematic reviews indicate that there is no evidence for co-infection in Lymes.
I'm a BmedSci grad, that's been accepted on an Infectious Disease masters at a top school - with a few years experience in molecular biology...not some med student or hobbyist.
I'm suprised some of the other angry scientists and medics like Zokes and DrJ havent weighed in.
It will have been a taxol derivative that the yew clippings were used for - a cancer drug. Very complex natural product that cannot be synthesised in a cost-effective way in the lab, so has to be made from natural pre-cursors.slowoldgit - MemberI remember trimming yew hedges and bagging up the cuttings to be picked up by a truck. They were used to make tamoxifen, I believe.
Tamoxifen is also an anti-cancer drug but a different molecule that is easy to synthesise.
I assume Tom_W1987 also still thinks the world is flat. 😀
Just because something cant be proven by current levels of research/understanding doesnt mean its not real for those who have it.
But then again its clearly just easier to deny its real and suggest that we all need to see pyschologists than have an open mind.
See also; ghosts, aliens, fairies and religion.
You missed off unicorns and yetis
@ c_g - I'm willing to believe you're no longer a teenager, but young in mind still...
... the things could still be a distraction.
And Garry, thanks, I guess the management thought the detail was beyond the grasp of we gardeners. I ought to add - we took it seriously, nothing but yew was collected, we took care to exclude anything else, there would be no trace of weeds, dead leaves and such.
And things that go bump in the night, eh?
slowoldgit - thanks! Have been pretty diligent re EMF so extremely rarely have a phone in the bedroom and, in any case, there's no mobile signal where I live. Had made a conscious decision to limit use of mobile phone. Tablet stays firmly in the lounge, Kindle battery ran out yonks ago as it just doesn't get used, never had a telly in the bedroom either.
It's the overwhelming fatigue though, never had anything like it. 😐
c_g: there might be something for you here...
https://www.newscientist.com/round-up/sleep-guide/
... I have the copy if the linky doesn't work.
Thanks sog and a shame that there's only a limited amount of info due to it being subscription only.
May be worth experimenting with stopping PC use a couple of hours before retiring but I think the biggest problem is that my mind won't switch off due to excessive reading. Appreciate there's an adjustment period due to becoming inactive although I do try to get out regularly for little walks to enjoy these gorgeous Autumn colours.
Don't really want to take any more pills but may have no option.
slowoldgit - thanks! Have been pretty diligent re [b]EMF[/b]
It gets even better.
Are you trolling?
I assume Tom_W1987 also still thinks the world is flat.
I assume that you still think that Phrenology is a real subject.
'Genes and age determine susceptibility to Lyme disease'
https://www.sciencedaily.com/releases/2016/11/161104102026.htm
Some interesting research there.
Is it not pretty much true that
?'Genes and age determine susceptibility to [s] Lyme[/s] disease'
I think this Tom_W1987 chap needs to stop sitting on the fence and just speak his mind for a change...
Interesting stuff.
Anyone got any knowledge of doctors in central Scotland which good knowledge of Lyme? I am getting a flare up of symptoms which fit the pattern of lyme which I have had on and off for decades. Of to my GP next week but I want to be well informed beforehand.
Tom - medicine is not static. What was once not thought to be true can become the accepted truth - see the acceptance of chronic fatigue syndrome for an example. Even the nHS now accepts there could be long term implications from Lyme - completely denied a few years ago
I'm a long-term lurker on the forum, and regularly find myself coming here for advice from like-minded people on everything from tyre choice to kitchen appliances! Resurrecting this post as I've been having some issues over last 6 months, wondering about Lyme as cause and looking for some advice / experiences of testing and treatment options. Would anyone on here be willing to PM?
paul0 - have sent you a PM.
