First of all my sympathies. Never nice to be sick even worse when it’s unexplained.
I unfortunately have had lots of experience with CFS. Here is what I think:
Don’t do anything based on random googling, what people on here say etc. unless there is real peer reviewed evidence for it. Think of any health fad you’ve ever heard of and google it (Detox, gut microbiome, exclusion diets, supplements, therapy, lightning process etc.). You’ll find someone who claims it cured them of CFS and others who will happily take your money. I’m not saying that they are lying but there is no evidence for any of these treatments. No one person knows what made them better. It could have simply been the passage of time and they are claiming it was the goji berries they eat.
You need every other cause ruled out (physical and mental) before it can be confirmed as CFS. This will take months/years. hopefully you won’t be sick that long!
So having said that here’s my advice:
In the absence of a diagnosis, give yourself every chance of healing yourself. Eat sensibly, try to get outside a bit, rest loads and try remove any sources of stress. Plenty of documented evidence for all of these.
The hardest thing is to just do these simple things and not look for a miracle. But I’ve been in patient groups where people have spent 40 years following every faddy cure/diet and have certainly made themselves worse.
On the plus side many people get better especially ones who realise early that they are sick and don’t push themselves too hard.
So in short:
Rule out other causes, No fads without real evidence, eat sensibly, try to get outside a bit, rest loads and try remove any sources of stress. Boring but really important.
