I have it, diagnosed about 6-7 (maybe longer) years ago after suffering from severe hip pain i.e. painful to walk let alone do anything more active. I suffer more when I don’t exercise (as is the case now!) and can find it difficult / embarrassing to actually get on and off the bike.
The eye condition that you mention is I think iritis (uvitis sp?). I’ve had that three or four times and if you get it you need to get seen at an eye clinic pronto. Last episode led to next to zero vision in one eye within three days of ‘getting that feeling’! It is very treatable as long as it gets seen to early.
I am now having fortnightly Humira injections (get to stab myself) and still take sulphasalazine, methotexate etc. For me it has been transformational (the Humira bit) and I now take anti-inflams rarely. There are strict NICE guidelines that must be met before you will get Humira as it is expensive. You almost have to degenerate to a certain level before they will prescribe it. However, it works for me and I consider myself lucky to be getting it although I was persistent and bloody minded and never stopped chasing for it. I had regular NHS physio for years including acupuncture and all of that helped. Never underestimate the ‘self-help’ element i.e. keep up the stretches etc esp if you are a desk jockey like me!
EDIT – biggest pain for me has been the monthly blood tests as its very difficult to get convenient appointments. My GP has been less than helpful and has until recently refused to issue more than one blood form at a time. That seems to be changing and getting a few at a time means that I can just pop into the hospital at a time that fits in with work and am out again in 5 minutes.