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http://www.mnd2010.org/petition
Heard about this in an interview on radio 4 this morning. They aren’t necessarily asking for more money. Sufferers currently get admitted to hospital in the latter stages, which costs a lot of money. They are looking to be cared for at home and to be able to be with their family’s. They just want the government to draw up a decent plan for their care. There currently isn’t one.
There is no cure. Sufferer’s minds stay lucid, just their bodies slowly stop functioning.
Simply signing the petition could help.
Double posting eh?
Ok signed and good luck!
Heard the interview. My mum died of MND, fortunately my Dad was able to care for her until she died in her sleep at home but there was very little support from the NHS services. Some kind of co-ordinated approach would be a start. Signed.
Must be a very depressing and soul destroying illness.
Very sorry to hear that ddmonkey. I have to say I have no personal experience, what I heard being said by intelligent people seemed to make alot of sense and I saw there weren't that many signatories so thought I would post it here.
It sounds like your experience backs the fact there is a need to do more.
dogmatix,
Thank you for posting this link. My Dad died of MND nearly 3 years ago and so know the effects of the disease well and the support offered. My Mum looked after him at home to the end. Local Hospice proved amazing but they rely on donations with no NHS support. Would have been good to have the same levels of support offered by the NHS. However they were brilliant in their own way and the doctor and specialists concerned couldn't have been more supportive to my Mum and Dad.
Thanks again,
Matt.
My cousins husband died of MND about 5 years back, Good luck.
Just signed. My aunt-in-law has recently been diagnosed with MND.
Signed.
I've worked with a few people with MND and it's a horrible, horrible disease. I can't see the type of care needed for people to remain at home in the latter stages being funded unless there's a massive change in how social care is delivered. Signed the petition anyway though.
Same here ,the old man passed away 4 years ago due to MND. Horrific to watch a fit, active 64 year old disintegrate away to a mere shell.
completely relate to what everyone else has said about MND - horrific to watch - lost my granddad to it about 10 years ago and there was no palliative care - not really surprised things haven't changed in the NHS. Signed
There is a link on the website above to the item that was on bbc4 incase anyone wants to listen to the issues to find out more.
A really evil condition, just creeps in from either your feet or hands, killing off your nerves until it reaches your body and starts to paralyse your chest, my Mum died in her sleep because she stopped breathing. I'm so thankful now that this is what happened instead of her being dragged into hospital and kept alive for longer with no quality of life. This is partly what this petition is about, dying with dignity at home rather than wired up in a hospital bed.