Tried to explain where Mom’s been the past couple of days, and what’s happening.
For about 2 weeks she’s been having migraines. Vomiting. Loss of vision. He’s five, and been great. Just goes off to the kitchen, get’s a bowl. “Here’s a sicky bowl, Mom”. Lies in bed with her, cuddling.
Last Thursday I sent her to the docs. Doc says he’ll do a referral for a head CT which notes a 26mm mass in right ventricle. Still getting headaches, so he thinks a MRI is needed. On Friday night I say she should go to ED, explain the symptoms and get them to organise an MRI, but at the weekends they say it’s not possible to get one done, will have to be after the weekend. Check her out, phone consult a neurologist and think she’ll be fine for the weekend.
Monday, she keeps the boy off school, takes him with her for the MRI. Results go back to GP who phones and wants to see her pronto.
GP confirms mass, appears to be tumorous. So Monday afternoon we’re trying to find a private neurologist to see her ASAP. After a few calls and in some cases “we’ll get back to you in a couple of days” we decide it’s a good idea if she goes to another hospital where the neuro consultants and professors are based.
She’s been in since Monday night. Neuro is 90% sure it’s a benign tumour, but will have to be removed, so looks like surgery on Monday. She had another MRI today (a wafer mri) which the surgeons will work from.
I’m optimistic, on the whole. I was a little worried when she told me social workers and welfare officers had been to see her as “you have 2 young kids” which I’m not sure is standard protocol for brain surgery, or damage limitation for the worst case scenario.
Neurologist says might turn out sinister but at this stage doesn’t think so. Impossible to be certain though. Might affect speech, sight, memory, movement, can’t drive, may have seizures. 6 weeks plus recovery time. Maybe physio.
My boy says “can’t they use a special gun and turn her brain inside out and just get it?”
Naturally everyone is shocked, stunned, mortified. First couple of days it didn’t sink in for me. I work in mental health, I’m well aware of how this all works. One of the docs / friend from work has been messaging me as I went in to see her yesterday in a sort of “WTF, got any decent neuro mates?” way.
I”m gonna be off work until the end of the week but I’m planning on going back on Sat.
Mental.
Keep having flashbacks of things we’ve said. Notably early last week when I finally booked a vasectomy (it’s our ten year anniversary too) and she jokingly said, “are you sure you want to do this? what if I die and your new wife wants kids”
Well, I think I’ve waffled enough. If you got this far, thanks. I always see these type of threads and think it’s good to just write it all down. Clears things in your head a little.