Autism anyone?

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  • Autism anyone?
  • A very dear friend of me has an autistic sister, so I cannot really comment on the bike piece, but I very much understand what this means to you.

    Whereabouts are you? I’d certainly hope someone on here would be able to offer to help out on a local level

    Good luck!

    LoulaBella
    Member

    Hey,
    We are in Portsmouth on the south coast, although my other half hails from Cumbria, its his fault for making me crazy about mtb’s. Hampshire maybe not that great for rides but it has its moments. I think the day we get a full suspension special needs bike is a long way off, theres a challenge.
    Would so love to meet some like minded parents!

    Premier Icon Capt. Kronos
    Subscriber

    Out of interest – have you been intouch with the RDA? My Mum runs the Westmoreland group and has had HUGE success with Autistic children so it would be worth persuing.

    The RDA are indeed great people.

    See if you cand find CliveA on here. He’s involved with cycling development in Hampshire, so could be a good contact!

    zaskar
    Member

    I used to teach the children who had this.

    Credit to their parents and themselves.

    ernie_lynch
    Member

    Although not at all as profoundly autistic as your Joel, one of my nephews is autistic. Or perhaps I should say was because although he was quite severe when he was a child and he needed to go to a specialist school, they helped him so much that it is pretty hard to detect these days. He got married about 4 years ago and is extremely happy. Sorry I can’t help with any suggestions, but I just wanted to say that in my family’s experience the help which is available to an autistic child is truly remarkable. And the improvements it brings are stunning and permanent. Good luck with a bike for Joel.

    LoulaBella
    Member

    I think it may be the same Clive from CTC who did the fab talk on special needs riding at Alice Holt forest. Didnt get much of a chance to talk to him as I had to dash off afterwards but he seemed a throughly nice bloke.
    Who are RDA? Im familiar with the NAS. Its always great to find new sources of knowledge.
    Can I also say I have only been a forum user for a short time and its been ace, what a decent bunch of people. Have loved reading Singletrack for awhile now. Do the readers have any kind of social gatherings or events?

    ernie_lynch
    Member

    Do the readers have any kind of social gatherings or events?

    Not too far from you I believe :

    http://www.bigbikebash.co.uk/location.php

    deadlydarcy
    Member

    what a decent bunch of people.

    You’re still new aren’t you?!

    [JOKE]

    LoulaBella
    Member

    Hello,
    Wondered if anyone has or is affected by autism.
    My 4 year old son is profoundly autistic, we are looking at custom special needs bikes. Very very pricey.
    I was hoping to organise a fund raising ride that can help families afford special needs bikes.
    After attending a great talk by CTC we are now hopeful that some way our son will be able to enjoy the freedom that cycling brings.
    Joel cannot speak or sign.
    If we sit him on a saddle he just falls off and doesnt even understand how to grip the handle bars or peddle. I had a go on a lovely bike where he can sit on the front, he loved it!
    Would love to hear from other parents and carers who are passionate about bikes and autism.
    Lou x

    Yep, that’s Clive! Top chap!

    RDA are Riding for the Disabled Association. Horses, not bikes, but great people.

    tang
    Member

    hi there

    i work with young autistic people so know this could be such a positive thing. i live near jon whyte (the guy who started whyte bikes) he retired from the company and as far as i remember part of what hes doing is designing specialist equipment for disabled users. i bump into him and his wife on their tandem while cycling to work, sponsored them on some mad race in the arctic (related to the above mentioned work)! dont know how to get hold of him Next time i see him ill be sure to ask. pretty sure hes got a design consultancy now. may be worth some contact (poss via whyte bikes)?
    2nd RDA. i work esp with one young woman and horses allot and its a great thing.

    Premier Icon Capt. Kronos
    Subscriber

    As said – Riding for the Disabled. It works fantastically as it gives the kids something really positive, and it seems that the horses bring the children on in all sorts of ways. Some start unable to hold the reins or sit on the saddles, but with perseverance they develop the ability to do so. It has great results on their whole lives.

    Home

    I’ve had a lot of involvement with our local Special Adventure Playground,where a few autistic children attended. They have some great trikes there,designed and built by the late,great George Longstaff. Thankfully,they are still making bikes and trikes.Got to be worth a phone call. (Longstaff Cycles) I will look for their contact details.

    julianwilson
    Member

    mrs julian knows a rather successful cyclist who is also teaches autistic kids (hers are older and speaking/reading ones but her colleagues teach non-speaking/signing kids). if she gets any pointers from her, i will pass them on.

    Premier Icon midlifecrashes
    Subscriber

    Hi LoulaBella,
    my niece has had a few issues in the past, having Noonan’s syndrome. Specifically troubles with balance and her mind wandering off the task in hand. We were able to manage with a trike, but with an adapted seat with seatbelt so she was unable to fall off. Before that it was a trailer and she has progressed to a regular adult trike. There are a lot of weird and wonderful vehicles out there from tandems to rickshaws to cargo bikes which might be worth a look, some of which aren’t ridiculously priced (everything is relative on this site, many people on here have bikes worth thousands) since they aren’t full custom jobs. Have a look at this from ebay, there are some handy links to manufacturers sites in the description

    Dutch cargo bike

    Also have a look at the Mission Cycles website, even if they don’t have the answer, they will be worth talking too as they have seen most of the possibilities and might point you to the right person. Good Luck.

    LoulaBella
    Member

    Thank you soooooo much. This looks perfect for us, im so excited and smiling happily. Everyone has been so helpful. I also think the Big Bike Bash looks ace and shall be purchasing tickets directly!

    http://www.missioncycles.co.uk/disdetail.asp?Products_Action=Find(%27ProductID%27,%27216%27)&Products_Position=FIL%3ACategory%3D%27Piggy%27ORD%3AABS%3A3KEY%3A216PAR%3A

    Not sure how to make that link a wee bit smaller
    I think we will go for one of these!

    just a thought but you may get some advice from some of the more established disability sports groups especially the Uphill Ski Club. Probably a good way of getting in contact with groups who encourage such things and parents who involve their children in sporting activities. One of my aunts was very involved with that group (she has cerebral palsy).

    oh it’s not called the uphill ski club anymore http://www.disabilitysnowsport.org.uk/

    Premier Icon AndyRT
    Subscriber

    LoulaBella,

    My son is 4 and is autistic, but has shown interets in balance bikes, but pedaling seems a bridge too far at the moment, either that of he prefers to tur the bike over and spin the wheels…

    Couple of things:

    1: There is a meeting for parents and children wih autism at the Aviary childrens centre in Eastleigh this saturday morning. Just a chance for those who are directly involved, to share and learn together, and not feel alone.

    2: I am intending to get some bikers together to ride the South Downs Way for the National Autistic Society in early July, and will just say, the more that want to do it, the more we can raise!

    Happy to talk if it helps.

    Premier Icon Stoner
    Subscriber

    another vote for RDA – my mum used to chair/run the Cotswold RDA at various times ofver the last 35 years (her sister had Downs and loved it there).

    There’s a guy in my parents village who takes his autistic 15 year old son on a tandem a lot. He seems to really enjoy it despite normally having great difficulty in public/noisy/open environments.

    Premier Icon smartay
    Subscriber

    Hi

    A subject very close to my/our heart. My son Matthew has a diagnosis of Aspergers syndrome, part of the ASd range.
    I’ve tried Matt on bikes and although he can ride the steering and pedalling/ braking is completely lost on him.
    Recently we obtained aplace at our local RDA center in Llanfynydd, only couple of miles from us and he has taken to it. They have enrolled Matt on the vaulting activity and he loves it.

    Cant say enough good things about the staff.

    As a dad who loves mountain bikes I cannot express the frustration of not being able to intrest/involve my son in my hobby

    Premier Icon AndyRT
    Subscriber

    Hi smartay, I foud my son the same, until he was amoungst his peer group locally, who are now riding without stabalisers. You can imagine how my heart sank, knowing how much more of a challenge it is for Nicholas, but seeing his friends ride has given him a renewed enthusiasm for bikes, and he enjoys being on the bikes now, which is a major step forwards! I think a balance bike might help, as movement is up to him, which seems very important. I can’t help thinking that there has to be some kind of a process that I can employ to help him to enjoy bikes.

    Premier Icon miketually
    Subscriber

    I’ve dropped Clive a link to this thread via Twitter

    grynch
    Member

    I’ve nothing to add to this thread other than I am continually amazed at the depth of knowledge and experience here on STW.

    kudos to all of you.

    MicArms
    Member

    As per AndyRT and Smartray, my 10 year son is also aspergic. We had Jordan diagnosed very early on ( Special needs statement by the time he was 4).

    Jordan is the most clumsy bugger you could even hope to meet, trips over fresh air, can’t catch a ball if his life depended on it, and his mind wonders off anthing unless it’s his core interests, which this year are the Titanic, and Indiana Jones movies/ games. But, **** me, put him on a bike and he loves it. ( apart from uphills) He rides really well.

    As per the other guys, it just took him a bit longer to master. He had it cracked by he was 6 , his younger sister was stableizer free a good year earlier. Just give them a bit more time and you will be amazed.

    LoulaBella, my mates at work, his daughter has MS, and rides in a three wheeler. Next time I’m in, I’ll grip him about where he got it from. ( but suspect it was via George Longstaff)

    Macgyver
    Member

    My bosses wife can’t cycle comfortably on normal bike so they have a half recumbant. In know that it’s used to take his grandchildren to school but not sure if its kiddy cranks attached or if there’s enough range in the standard adjustment for it. This ones called a Periscop and I think the replacement for it is called a Pino. Much more socialable form of tandeming in some respects as you can talk face to face more easily.
    Not cheap but it might offer some inspiration. See picture here with the ex mayor on the front.

    http://www.ealingcycling.org.uk/SiteImages/PeoplePics/KenL&Peter.jpg

    Premier Icon johnikgriff
    Subscriber

    My oldest son doesn’t have Autism but is severally disabled. Making sure he is part of our family activates is very important to us. We raised money for his school to buy one on these, which we borrow at weekends. Would probably be a bit more than you need as it takes wheelchairs, but goes to show where there is a will there is a way.

    I am however considering get something like this, if it can be adapted for him.

    Keep looking for a solution, its usually out there and from my experience its worth finding to see the smile on Thomas’s face 😀

    alpin
    Member

    i saw one of those wheelchair/trike thingies the other day.

    i also spotted this sometime last year

    this was in germany. no idea who manufactures the parts/puts the bike together.

    Premier Icon miketually
    Subscriber

    Company Of Cyclists, based in York, might be able to help: http://www.getcycling.org.uk/specialneeds.html

    LoulaBella
    Member

    Im so over whelmed by all these wonderful posts!

    LoulaBella
    Member

    Hey AndyRT,

    I would be totally up for doing a ride to raise some money for Autism!
    We were thinking of doing a ride next year from Hampshire to Cumbria if anyones interested.
    My email address is visible on my profile if anyone wants to drop me a line!

    deadlydarcy
    Member

    Absolute stars the lot of you. Great level of compassion and constructive input on this one.

    I know little of your sons condition. I have a client who teaches autistic children – an incredible and patient woman and have an acquaintance with an autistic child. Sadly, I’ve not come into contact with these kids enough and feel I’d like to know more.

    Best of luck to you in your quest to get him on a bike.

    This thread makes me smile.

    LoulaBella
    Member

    Do you think there is any chance of the lovely Singletrack mag running an article on special needs riding/those who work in that area/and or custom bike builders companies etc? It seems there is a huge need to get the word out there that hopping on a bike isnt as straight forward as you think it is, but that it is POSSIBLE.
    Go on Singletrack you know you want too…..
    Some pics of Joel
    http://www.flickr.com/photos/31010851@N08/?saved=1

    I have an Autistic Son and he loves going for his rides with RDA on Saturday mornings it fills him full of confidence he loves to trot and do various exercises and the girls/ladies who run it are brilliant, as he attends a special school they introduced him to RDA and we looked out for extra classes. He is not that keen on riding bikes however I do try and give him gentle nudges now and again into having a go, he gets spooked and his coordination is a bit awry so I don’t want to put him off by pushing him unnecessarily.

    I have taken him up to Llandegla with the rest of my family for walks and he does not like it because of all the bikes, now his speech it coming on hopefully we can find out more about what it is about the bikes that makes him uncomfortable. However is common for people with ASD not to like crowded or busy places. Saying that he loves centre parks and is not bothered about bike there, so its a bit of a mystery in some respects.

    Premier Icon StirlingCrispin
    Subscriber

    Velovision did an issue dedicated to special needs cycling. Might have some useful info for you

    http://www.velovision.co.uk/cgi-bin/show_comments.pl?storynum=559

    PapaWheelie
    Member

    MicArms wrote:
    “Jordan is the most clumsy bugger you could even hope to meet, trips over fresh air, can’t catch a ball if his life depended on it, and his mind wonders off anthing unless it’s his core interests, which this year are the Titanic, and Indiana Jones movies/ games.”
    My God, that sounds exactly like my son Alex!
    We started him off being pulled in a buggy behind my bike, then seatbelted into a child seat behind my saddle, then his own bike with stabilizers.
    He was almost 5 before he wanted the stabalizers taken off.
    Then we let him coast down grassy hills so he learned balance and by the time he was 5 he was riding.
    When he was 6 I took him to Vancouver’s North Shore (the easist trail) and he still brags about that.
    Lotsa patience, lotsa time, losta love and eventually it came around.
    Good luck.

    Dibs
    Member

    Hi,

    Not sure if some of these types of products are of any use to you

    http://www.pashley.co.uk/products/robin.html

    Cheers

    Dibs

    cbike
    Member

    Bikes
    Compagnon
    Kynast mobilty 3 RAD
    Quetzal Cycle

    Organisations that know stuff
    http://www.Quest88.co.uk
    http://www.Encycleopedia.com

    Premier Icon smartay
    Subscriber

    I’ve just read the remaining posts on here, do you thimk autism is more wide spread now or do you think the diagnosis has improved.

    Matt had his diagnosis as he moved from infants to juniors. He now attends a special unit at a local school. He has also been accepted at a local secondary comprehensive with support staff/ unit.

    The bike thing may come overnight, Matt could read or write until he was 9 years old although we tried constantly to get him to read, then he started reading and writing stories. it was if he had no intrest but the ability was always there!

    “Flippinheckler” you mght of seen Matt and myself at Llandegla walking a black lab, I use it as away of trying to encourage the bike intrest, but I think the hot chocolate at the end of the walk is the real bonus for Matt

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