Anyone here dated somone with ME (chronic fatigue syndrome)?

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  • Anyone here dated somone with ME (chronic fatigue syndrome)?
  • I’m just starting to see a girl with ME, she’s explained a lot about it, but I wondered whether anyone had any advice?

    loddrik
    Member

    Yuppie flu…

    Get used to making the tea…

    craigxxl
    Member

    A friend of my wife suffers with it. She has the days were she can’t do anything but other than that she is a normal person if that’s what you’re worrying about.

    Premier Icon mboy
    Subscriber

    nah, but I had suspect Post Viral Fatigue/Chronic Fatigue Syndrome for almost 6 months back in 2008/9.

    What to expect? She will probably sleep a lot more than most people, and have less energy! Other than that, can’t tell you a lot else… It can affect different people in different ways. Some people live almost completely normal lifestyles, some peoples lives are ruined by constant sleep and/or no energy ever! It doesn’t affect all people the same way.

    Oh, and many people recover from it…

    Just be patient with her to be honest, and let her dictate the pace. Don’t treat her like she’s an invalid either, she’s probably quite normal a lot of the time, just gets a bit tired a bit easily.

    cynic-al
    Member

    Doesn’t sound like you will get your hole much. Well not while she’s awake.

    jamesca
    Member

    sound ideal “while you’re lying down we may as well make the most of it and stop that crying!”

    user-removed
    Member

    Oh Christ.

    druidh
    Member
    grumm
    Member

    You guys are hilarious, really. 😐

    Diane
    Member

    Cynic – al I nearly spit my wine out!

    Well, her ME isn’t a problem for me and doesn’t change the way I feel. I liked her before I knew anything about it.

    Anyway, it’s a condition that I know very little about so I just figured I’d ask for some real life experiences.

    Diane
    Member

    Good for you sir! πŸ™‚

    druidh – Member

    PM me.

    Emailed you

    spacemonkey
    Member

    My missus had ME for about 5 yrs. Incredibly debilitating and indeed life changing (for good or bad depending on how one deals with it).

    She finally “got rid” of it after going on a Lightning Process course – recommended by two ME suffering friends. Check out: Linky

    Transformed her literally overnight (as it did with the other two women). And that was 2 years ago now. Since then she’s back to working full time, being a mum and generally putting a whole lot more into life.

    PM if you want any more details …

    PS Loddrik and anyone else who tries to be witty: I too used to wonder about the sincerity of ME sufferers and there may well be a few who “aren’t unwell” – but seeing it first hand ain’t pretty. ME can destroy lives. Grow up.

    druidh
    Member

    OP – you have PM

    fourbanger
    Member

    Is this the disease where there are no clinical examinations to confirm a diagnosis?

    druidh – Member

    OP – you have PM

    Thanks very much, just replied.

    loddrik
    Member

    Spacemonkey, if it is total sincerity you’re after, better to ask on an ME forum than an Mtb forum perhaps…

    Regardless of the medical validity of the condition, it will always be met with a degree of cynicism and derision I’m afraid. Better to make light of it…

    loddrik – Member

    Spacemonkey, if it is total sincerity you’re after, better to ask on an ME forum than an Mtb forum perhaps…

    I was going to, but they didn’t want to know when I asked them whether I should buy an Orange 5!

    In all seriousness, you often get a more honest viewpoint outside of a specialist/special interest forum.

    Premier Icon mboy
    Subscriber

    Regardless of the medical validity of the condition, it will always be met with a degree of cynicism and derision I’m afraid. Better to make light of it…

    The level of responses from some people over the last few days on topics such as redundancy, time off work because of stress, and now ME… Well it just stinks to be quite honest! Since when has “I’m alright thanks, **** you” been acceptable really?

    I hope that in all cases ignorance does equal bliss, and those taking the piss out of those less fortunate really do never come to any ill themselves…

    spacemonkey
    Member

    Regardless of the medical validity of the condition, it will always be met with a degree of cynicism and derision I’m afraid.

    Agreed (unfortunately).

    Better to make light of it…

    Easy (but ignorant and disrespectful) if you’re distanced or uninvolved.

    Shameful if you’re not.

    loddrik
    Member

    Mboy, so what are your illnesses and afflictions so we can take the piss?

    Premier Icon mboy
    Subscriber

    Mboy, so what are your illnesses and afflictions so we can take the piss?

    Illnesses… Hmmm… Well got to be mountain biking I’m afraid!

    Afflictions… Well, spending too much time on this bloody forum of late it would seem!

    πŸ˜‰

    loddrik
    Member

    Aww c’mon, there must be something better than that…

    grum
    Member

    Since when has “I’m alright thanks, **** you” been acceptable really?

    Thatcher. πŸ˜‰

    spacemonkey – as a current (what’s the word?) sufferer? of ME/CFS – that stuff about the Lightening Process is very interesting. I’m naturally skeptical and it all seems a bit cult like but I have heard good things. It seems to cost a lot of money…..

    BTW I think my gf has found it pretty hard coping with me being ill – but that’s a bit different cos we already lived together etc

    Elfinsafety
    Member

    EDIT: Nowt to see here. As you were.

    Premier Icon mboy
    Subscriber

    What do you want to hear me say loddrik?

    Elfinsafety
    Member

    Nothing too intellectually challenging; we don’t want him hurting himself…

    loddrik
    Member

    Silence would be good πŸ˜‰

    Right, bollox to this, I’m off to listen to Dr Karls podcast.

    spacemonkey
    Member

    spacemonkey – as a current (what’s the word?) sufferer? of ME/CFS – that stuff about the Lightening Process is very interesting. I’m naturally skeptical and it all seems a bit cult like but I have heard good things. It seems to cost a lot of money…..

    You have a right to be skeptical – that’s to be expected. I was too, as was Mrs Spacemonkey. However, one of our (properly genuine) friends had had ME for 2-3 years and she went on it in early 08 on the recommendation of another friend who had suffered for a long time.

    The transformation for all three is remarkable – and literally overnight. And I say that with absolute sincerity, e.g. working full time, running/gym, parenting, social life, energy, enthusiasm etc.

    Seems to be a mix of self-coaching/hypnosis/NLP blended with other stuff.

    I recommend calling a couple of practitioners local to you and just seeing what they have to say and how they come across. You might be pleasantly surprised …

    PM if you want more

    spacemonkey
    Member

    EDIT: Nowt to see here. As you were.

    I much preferred your original post πŸ™‚

    What is it with people editing entire posts these days?

    Elfinsafety
    Member

    Sometimes, speshly when dealing with the Hard of Thinking, it’s best to keep schtum.

    spacemonkey
    Member

    Nuff said. πŸ˜€

    B.A.Nana
    Member

    A pal of mine has had it on and off for 10 years now, Rugby player, in the Police, constant chatterer and definitely not work shy or anything like that. At first he Just dissappeared off the radar one day, virtually never left his house for months or a year. He now seems to go thru good patches and bad. The trigger seems to be if he’s doing too much or maybe under stress. With him it’s almost like mental exhaustion, but it’s not been diagnosed as that, so i guess the symtoms are very different. The latest trigger appeared to coincide with a relationship breakdown, but in the past we (his friends) saw a seasonal trend (going downhill around March, uphill mid summer). TBH, the seasonal trend is still there this time around, but we’re putting it down to something else on this occasion. Part of the problem is he’s a real go go type, so as soon as he gets better he tries to do it all again 110% and then relapses (which is probably more the trend we are seeing than anything seasonal).

    fourbanger
    Member

    So is it considered a physical condition or a mental illness?

    spacemonkey
    Member

    B.A.Nana, one thing that many “sufferers” suffer from is “boom bust”. i.e. they feel they can suddenly do stuff > go overboard > and then pay for it big time. Not saying that accounts for your friend, but it does happen.

    spacemonkey
    Member

    So is it considered a physical condition or a mental illness?

    Not really for me to say – best left to those “suffering” with it. IMO possibly more of a psychological imbalance that creates both physical and mental debilitation.

    cynic-al
    Member

    Diane…I’ll take that as a compliment and keep trying…

    Go On Fred, don’t be lame, let us hard of thinking benefit from the wisdom of your unedited posts…the world needs you!

    Premier Icon molgrips
    Subscriber

    A friend of mine is recovering from it, so it seems. It’s taken her 20 years tho, or thereabouts. Brilliant, devastatingly intelligent but unable to actually DO much of anything besides lounge around and watch TV or read a bit for most of her youth – least of all have an education or a career.

    She’s trying to catch up now tho which is good.

    Anyway just cos no-one knows what it is doesn’t mean it doesn’t exist.

    clubber
    Member

    My wife had it when she was 16/17 – went from being hugely active person doing sport everyday to being unable to get out of bed and having to be carried downstairs.

    She eventually ‘recovered’ and was back to her active life at uni though she does noticeably sleep a lot and gets very tired sometimes.

    She found a lightbox helped a lot during winter particularly.

Viewing 40 posts - 1 through 40 (of 48 total)

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