Viewing 21 posts - 1 through 21 (of 21 total)
  • a shout out to folk in AF.
  • Premier Icon ton
    Free Member

    just a quick post to all the AF sufferers on here. just wondering how you are all coping ?

    after being in normal rhythm i reverted back into Af last wednesday.
    it was brought on by a chest infection.

    **** awesome………… ;o(

    Premier Icon bonni
    Full Member

    Sorry to hear that. AF sucks big eggs!

    I’ve recently started back on the bike – up hills – after a 2nd ablation. Seems to be holding up ok, but early days.

    Hope you can turn things around.

    Premier Icon augustuswindsock
    Full Member

    AF is the pits, at least you know you’ve got it and (hopefully) on med’s to prevent a stroke, some people don’t know they’ve got it until its too late!

    Premier Icon fossy
    Full Member

    MIL’s still here with AF, 86, and multiple other shizzle wrong with her. According to her, she’s only on warfarin and has had a stroke – tells all sorts of porkies when she’s in hosptial. Add in a few heart attacks, AF (you should see her heart trace – OMG), heart failure, kidney failure and fluid on her lungs.

    Plenty of meds to keep her still here !

    Premier Icon ton
    Free Member

    i was in permenant af previously for 4 years. had a couple of cardio versions, and 2 x ablations. none of which worked.
    in the end i had open heart surgery to fix the problem. the surgeon said i would probably be ok. the cardiac registrar told me i would probably revert to af eventually. he was right.

    had 5 years af free, which as been pretty good. feel proper **** off now i am back in it.
    been for a couple of rides this week. hills are a no goer. like someone has drain every bit of energy. but riding on the flat a 10mph feel ok. may have to move to holland.

    Premier Icon brennak
    Full Member

    Hi Tony (Kevin from the Jennride) so sorry to hear about this, you seemed to be doing so well the last time I saw you (apart from your mishap down to the Newfield Inn) and looking at some of your long distance adventures. As you know I had a heart attack 18 months ago and was doing well for the first 4/5 months or so, but have had issues since fatigue, feeling sick and vertigo, coming on later in the day, not sure if it maybe AF or something else. In this new world of GP appointments I have had only 1 face to face (last month) and half a dozen or so telephone ones. I did manage to get a cardiac referral last March and hoped to get to the bottom of the issues, but found out last month this had been cancelled. I have now bitten the bullet and have a private cardiac appointment in 2 weeks so hopefully should know more soon.
    I really don’t want to get an E-bike and or give up my sailing.

    Its really sh*t this getting older.

    Premier Icon Rockape63
    Free Member

    Thats a real bummer after 5 years….massively disappointing! I’m pretty new to all of this, but went into persistant AF on 27th Sept following a rapid hr of 166 for 15 mins. A month later I had a cardioversion, which is 4 weeks ago now, but inadvertently drank far too much booze on a golf trip and my hr tripped to 170hr in the middle of the night and stayed until lunchtime. Like you….was just devoid of energy, but fortunatately reverted to normal and had been careful on the booze since with no issues.

    However, went back to see the Cardiologist last night and he siad that episode shows it will only be a matter of time before I have AF again, so has booked me in for an Ablation in Feb. (I’m 60 btw)

    Premier Icon Rockape63
    Free Member

    Hi Brennak…yeah, its money you don’t want to spend, but its your health and you’ll feel better just knowing the process is moving quickly. As you say its really sh*t getting old, but its better than the alternative. Keep positive!

    Premier Icon ton
    Free Member

    @brennak hope you get sorted Kevin. fingers crossed for you.


    @Rockape63
    it is terrible when you have some treatment and it works, but later you revert back to af. hope you get yours sorted with the ablation mate.

    Premier Icon outofbreath
    Free Member

    In June (I think) I read an AFIB thread on STW. That night I went into AFIB overnight.

    Not happened since then.

    Read this thread yesterday. Went into AFIB overnight last night.

    There is *definately* a psychological element to this for me.

    In the meantime, can we stop mentioning AFIB on STW! 😁

    Premier Icon Rockape63
    Free Member

    Sounds a bit wierd OOB? Are you sure its AF? I use the FibriCheck app on my phone which is amazing and gives me peace of mind.

    Thanks Ton….its probably not what you want to hear, or go through all over again, but another ablation will probs sort it?

    Premier Icon outofbreath
    Free Member

    Sounds a bit wierd OOB? Are you sure its AF?

    It’s been diagnosed from an ECG taken at casualty and a load of AliveCor ECGs, so the Consultant seemed sure enough, but they didn’t seem to put much thought into the diagnosis.

    Used to happen once a month, seems to be every 3 months at the moment. Almost always comes on in my sleep, almost always goes away by morning or when I’m up and about in the morning.

    Premier Icon matt_outandabout
    Full Member

    AF sucks – my father has had it a few times, each time progressively worse. He though is 76 and has long history of heart issues in the family, him having dicky valve anyway.

    He did have a spell in hospital to reset the thing. All was well until as he shuffled down the ward to go and get a cuppa/different view – when the ward sister and nurse exploded from behind the desk and basically rugby tackled him into a wheelchair….his battery on wireless heart monitor had run out, so triggering an alarm at nurses station that his heart just stopped. They looked up and saw him, so sprung (literally) into life to save him from what they expected was about to be a crumpled fall to the floor..! 😀

    Premier Icon NJA
    Full Member

    @ton I had a similar situation, I had been free of AF since my ablation in 2019. Got a chest infection about six weeks ago and had an attack, really severe and lasted about ten hours. I was hospitalised whilst they got me stable. Saw my specialist at Papworth yesterday and he said it was a one off caused by the Chest Infection, highly likely to reoccur unless I get another infection. Gave me a clean(ish) bill of health, stopped one of the meds that the doctor in the ED had prescribed, got a lecture about how losing some weight was the best possible thing to do and was basically told to get on with life and not to worry. I have to say I was hugely reassured, I thought that another ablation might be on the cards,

    Premier Icon ton
    Free Member

    @NJA

    fingers crossed for you mate, hope you stay in normal rhythm from now on.
    i think the reason it happens with a chest infection is because the body is trying hard to fight the infection, which in turn causes the heart to race.

    i think i am in and out this time round. feel ok when sat and doing normal stuff round home, but been for a few rides and it kicks in going up hill. i will just have to be slower uphill than normal i suppose.

    Premier Icon el_boufador
    Full Member

    Really hope you get it sorted.

    Premier Icon footflaps
    Full Member

    Saw my specialist at Papworth yesterday and he said it was a one off caused by the Chest Infection, highly likely to reoccur unless I get another infection.

    Small world, I was chatting to the Head of Papworth’s cardiac rhythm team on this morning’s ride. Was asking about various bits I’d read about in this thread….

    Each ablation uses a single use only Nitrous Oxide balloon costing £5k a pop! Expensive procedure….

    Premier Icon ton
    Free Member

    Each ablation uses a single use only Nitrous Oxide balloon costing £5k a pop! Expensive procedure….

    i have had 2 x ablations in the past. neither of which worked.
    to be honest, i dont know if i will have another if offered.
    kind of feel like jacking it all in, the trying to get sorted, and the disappointment when it goes wrong.
    maybe being stuck in af is the way mt body wants to work.

    Premier Icon iainc
    Full Member

    Tony, stop talking shite.

    You are a fighter, you’ll beat this, you’ve done it before, you’ll do it again.

    We have your back big man.. 👌😁

    Premier Icon Esme
    Full Member

    How will you be able to take your grandkids on bike rides, if you don’t get it sorted?

    Premier Icon footflaps
    Full Member

    Well apparently reverting to AF is expected, they can only wind the clock back each time, not prevent/cure it. But you just have another procedure when it reverts back to AF (that was the simpletons guide to AF whilst cycling along in the wind).

    Certainly you have nothing to loose if they offer another intervention….

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