I know where the OP is coming from, having a condition that statistically has a 5 year expectancy, and I’m 2 years into it – but then I’m not a person to follow the statistical curve I hope!
Got a 10 year old son and want to see him into adulthood, his future is mostly provided for now, I’d just like the enjoyment of seeing him enjoy his life growing up.
Having a long term, ultimately fatal condition means each day is taken individually, and enjoyed. Any day that has lacked a purpose or enjoyment for me is usually a day where I’ve let situations or other people influence me too greatly. But I don’t live everyday like it is my last, I’d be in a bloody asylum by now if I did.