also someone on heres wife is a sufferer of MS,hopefully he will see this.
If it me I have seen it. Sadly since the time I bought a bike off you she is now totally dependent on me or the carers to do anything other than talk or randomly use the phone.
The physical part is hard enough to deal with, totally non weight bearing and very little control of her hands also including bladder & bowel function but the cognitive decline is hardest for me to cope with as she was very gifted in many areas but now is like someone with early onset dementia.
Sadly there is little to help anyone with Secondary or Primary Progressive MS & I have said as much to her MS consultant.
If you Have Relapse/Remit MS between bouts you are a contributing member of society anyone with PPMS or SPMS is just a burden.
10 years ago my wife used to get really angry with the smiling images and can do articles of people with MS on both the MS Society & the MS Org magazines as in reality even brushing her teeth was a major effort that often lead to a bleeding mouth or toothpaste in her eyes.
I’m sorry if I seem a bit negative but we have both been living with this horrible condition for the last 32 years.
And to cap it all we now have PIP. in 2006 she was given a life award of higher rate mobility & middle rate care disability living allowance (she has had the mobility allowance since 1998)
But now she is supposed to fill in a 40 page document on questions about her ability to prepare a meal wipe her own arse and dress herself herself amongst many other things.
Her GP, MS consultant, and a whole host of other medical professionals she sees are absolutely furious about the utter waste of money and bureaucratic farce this is for someone who is totally dependant on care to even eat a bowl of porridge.
If you can sense a degree of anger/frustration in my tone you are not wrong !!