Viewing 40 posts - 1 through 40 (of 55 total)
  • Lyme?
  • ormondroyd
    Free Member

    Found this on my arm this morning. Didn’t notice any tick bites but I was at a petting farm last week with our toddler, being drooled over by deer and goats and the like.

    I got sone antibiotics this morning… Ten day course, but tbh the nurse practitioner was a bit “everyone is in a panic about it because of the Daily Mail”. He had to check a ring binder for treatment guidance. Left me feeling a little that he thought it was probably nothing but he’d give me the pills a little reluctantly just in case.

    I’ll obviously take the pills but just wondered if anyone had any experiences that might lead them to give me any more advice?

    Spin
    Free Member

    It’s a bullseye rash which is a classic indicator though far from a dead cert. Can’t say anymore without testing.

    ormondroyd
    Free Member

    Any particular reason to get tested now or are the antibiotics enough?

    Spin
    Free Member

    I don’t know. Guess it depends if you got the right course of antibiotics.

    ianbradbury
    Full Member

    Get tested. Two colleagues have had similar rashes recently, both tested positive. OK, the treatment may not initially change, but they now know the antibiotics are in fact needed, and know what the issue is if further symptoms occur. And from the experiences of others who were not adequately treated, for once this is not just a silly DM panic.

    Drac
    Full Member

    Nice ringworm.

    ormondroyd
    Free Member

    Thanks. Just phoned GP to get call back to discuss getting the test

    ianbradbury
    Full Member

    Nice ringworm.

    Could well be, but testing for Lyme is cheap. if it’s negative he can get an antifungal instead – seems like useful info to me.

    ghostlymachine
    Free Member

    Advice from my Dr was run through the antibiotics first, then wait a while (2-4 weeks is what she said) then get a test done.

    The surgery I deal with gets about 100-150 cases a month during the season, but then ticks are absolutely everywhere here, as is TBE and Lyme disease.

    And that looks like a text book infected bite. Just like I had. Bloody ticks.

    jools182
    Free Member

    NHS testing for Lyme is cheap, and unreliable unfortunately

    According to the NHS I don’t have it

    According to a Lyme specialist, I definitely have it

    Watch out for any flu like symptoms

    slowoldgit
    Free Member

    You don’t want it. It’s not just the DM. Don’t be told to wait for a test, either.

    JC has gone public on FB, nine out of nine of his family have tested positive.

    (edit) Don’t be told to wait for a test before treatment.

    Holyzeus
    Free Member

    Do yourself a favour and do research on the classic symptoms
    If you think you have it take action, the NHS is in denial and the test ls cheap because frankly they don’t work
    I had Lyme and after two negative tests and a consultant telling me I didn’t have it as i ‘wasn’t ill enough’ i went private

    Holyzeus
    Free Member

    A ten day course is also inadequate

    slowoldgit
    Free Member

    How many others on here have experience of Lyme Disease, then?

    gatsby
    Free Member

    I had it last year, the GP knew very little about it but did some research on my behalf. She took bloods but said she was starting me on amoxicillin straight away. She also described why the tests were so ineffective – basically, it only comes back positive if your body has the correct antibodies as they test for the biproducts of your own immune system doing its job.

    My bloods came back positive. I had a month of antibiotics (I think) and they seemed to help.

    My bite was also on my elbow and looked similar.

    loddrik
    Free Member

    Snazzy sweater…

    perchypanther
    Free Member

    Detective Starsky’s been on the phone….. he says he wants his jumper back. 😀

    ormondroyd
    Free Member

    I’m being given fashion critique by… mountain bikers?! 🙂

    Drac
    Full Member

    He’s right that’s clearly a Fisherman’s jumper.

    They’re all the rage, see.

    ormondroyd
    Free Member

    It’s actually an ancient Bench cable knit hoody jumper thing. It’s warm.

    dbcooper
    Free Member

    I love that jumper. Looks warm.

    Sandwich
    Full Member

    Youngest brother in law was bitten 5 or more years ago but didn’t pick it up. About 6 months later he lost most of his sight! (One eye blind the other lost all but a slit in the middle). This year the medics finally deigned to test his blood, ‘oh you have Lymes disease’. He has been insisting it was Lymes for the last 4 years. A month of lumbar antibiotic treatment as a day patient has sorted it out.

    On the plus side he now has most of his vision back, enough to pass the DVLA sight test for a licence.

    Don’t muck about with it.

    mark90
    Free Member

    I had a typical bullseye come up on my leg a couple of weeks after being in a likely tick environment. The nurse at our GP surgety seemed quite clued up on Lyme. Had a blood test and 10 day course of anti-boitics. Can’t recall the specific type, but they made me feel like crap and sun burn really, really easily (almost fatal for a fair skinned giner like me), which wasn’t great as we were heading off on a camping holiday to Cornwall. Blood test came back negative, but I’m not convinced.

    brassneck
    Full Member

    Does look like a classic rash, junior B had Lyme this year.

    Pharmacist said ringworm (bulls eye rash radiating from under hair out on to face) but go to the docs. I explained my concern to the doc and he was of the ‘better safe than sorry’ school and gave him a two week antibiotic course. Blood test at the time came back negative, one taken after the course came back as positive but treated (no idea how that works, but the practice lead who is someone important in the FCGRPS took time out to call me personally, explain what to keep an eye on going forward and reassure he was 99.99% sure it’d been dealt with).

    For the sake of inconvenience vs. potential long term harm I’d take the antibiotics.

    Holyzeus
    Free Member

    Mark90 sounds like Doxycycline

    ormondroyd
    Free Member

    That’s what I’ve got

    ferrals
    Free Member

    Doxy gives brutal sunburn, thing is you develop sensitivity too it. I once took it as a Malaria prophylaxis for a couple of months in the tropics with no issues. then a year later had an ear infection in Feb, got given doxy and was red raw and peeling after a cloudy sunday ramble 👿

    Hope you sort the Lyme.

    loddrik
    Free Member

    actually an ancient Bench cable knit hoody jumper thing. It’s warm.

    You’re really not helping things with this….

    slowoldgit
    Free Member

    On the other hand, sunburn only set in after I’d been on doxy about two-and-a-half years. And I’d taken it previously to prevent malaria. YMMV, obviously.

    It wasn’t regular sunburn but some sort of sensitivity to sunlight, most unpleasant.

    ormondroyd
    Free Member

    You’re really not helping things with this….

    I’m 6’7″ and not even 14 stone. I have size 14 feet. I ride a bright orange 64.5cm road bike and a similarly enormous mountain bike. In these trying circumstances, sartorial elegance is a hopeless ask, so I focus on basic warmth.

    EhWhoMe
    Full Member

    i had the classic bullseyrash however id didnt find out what that meant until many years later when i read about it on here, i had the vague symptoms but it could also be many other things, i persuaded my GP to test she said it was expensive, test came back negative but im still not convinced, the bite goes back to around 2005 i got tested last year, feel ok but definatley get some of the symptoms Lyme, but the problem is they can be almost any other condition too….

    perchypanther
    Free Member

    I’m 6’7″…. size 14 feet….. ….. I focus on basic warmth.

    You are Chewbacca and I claim my five pounds. 😀

    EhWhoMe
    Full Member

    oh she also said i had probably had Lyme but my own natural antibodies could have cleared it up..not sure about that from what ive read..:-/

    jimdubleyou
    Full Member

    How many others on here have experience of Lyme Disease, then?

    My stepfather reckons he had it for over 10 years. Only recently been treated, but seems to be getting better.

    Holyzeus
    Free Member

    OP, get online and get more Doxy to take the dose to a month

    slowoldgit
    Free Member
    Drac
    Full Member

    OP, get online and get more Doxy to take the dose to a month

    Don’t do this.

    mark90
    Free Member

    Mark90 sounds like Doxycycline

    Yeh that’s the one.

    Back of my hands got quite burnt and really sensitive to the sun light. Most unpleasant burning feeling.

    scaredypants
    Full Member

    most guidance for patients with a rash and no other symptoms is for 10-21 days oral antibiotics (in some it depends a bit on which drug you use). CKS (one source of UK GP guidance) suggests 14-21

    early blood tests are notorious for false negatives, and a positive result wouldn’t change the above treatment anyway as I understand it

    flipiddy
    Free Member

    I had undiagnosed Lyme for about 4 years. It was shit. Really really shit.

    In the end I went private. 1 year of antibiotics sorted it. Then I developed gut dysbiosis as a result of the crazy amounts of ABX. That was shit too (pun intended). Back to ‘normal’ now, it has been a long journey though and there are no cast-iron guarantees of full recovery.

    Anyway, get it treated properly and get it treated fast. The longer it’s left (even partially treated), the harder it is to get rid of.

    ILADS treatment guidelines suggest 1 month of antibiotics for early Lyme. Perhaps show this very document to your GP if there are any questions…

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