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  • Leukemia info needed
  • Pigface
    Free Member

    Ok someone very close to me has been diagnosed with Leukimia, ther are 18 yrs old, what is the prognosis, don’t sugar coat it please.

    Just found out 1/2 hour ago, bit stunned.

    allthepies
    Free Member

    Various types of Leukaemia, some worse than others. One for the doctors.

    Tom_W1987
    Free Member

    Yes, some very treatable, some not so treatable. As said above, one for the doctors.

    vickypea
    Free Member

    Although I don’t recommend looking at any old thing on the Internet, have you tried the nhs website or the Cancer Research UK website. They will have trustworthy information.

    geoffj
    Full Member
    29erKeith
    Free Member

    As already said you need to find out which type. Outcomes and treatment vary a lot!

    I’ve got CML (chronic myeloid leukaemia) myself, fairly early on but treatment is fairly mild and prognosis is very good, not all leukaemia’s are as as bad as most people’s initial reactions.

    Macmillan website is a good source of info once you know the type too.

    29erKeith
    Free Member

    Btw if it turns out to be cml, I’m more than happy to chat about what I know, I’m a few months in now and have a pretty good handle on things. Life’s getting close to normal already

    MoreCashThanDash
    Full Member

    As others have said, depends what they have.

    Definitely contact McMillan, from what I’ve been told, they are very helpful at any stage in the treatment.

    And best of luck to you all.

    Pigface
    Free Member

    Thanks for the best wishes, Docs say he has a 60% chance, got my fingers crossed.

    jamj1974
    Full Member

    Oh man… Thinking of you both. There are different types so make sure you get a full understanding of that. My only recommendations would be:
    1). Ask if you can record the discussions with the consultants – so you can review and understand the information and can ask more informed questions
    2). Ask for a second opinion when it comes to interventions

    Pigface
    Free Member

    Thanks jam, this is all happening in Sweden so I am just a passenger.

    codybrennan
    Free Member

    PF, did they tell you what the ‘patient’ actually has? (Would imagine CML or AML).

    Pigface
    Free Member

    Coed no his mum just said the “worse” kind, as you can imagine she is a bit of a mess. He was complaining of a pain in his leg about two months ago, went to the doctors, currently in a hospital in Gothenburg having chemotherapy.

    Again thanks for the replies.

    29erKeith
    Free Member

    Doesn’t sound like cml

    Given his age and the fact it sounds like its acute, my guess would be ALL

    Best of luck to him

    alansd1980
    Full Member

    At 18 it could be anything, sounds acute but could be a high grade lymphoma.
    As unbelievable as it sounds I have seem myeloma and Cll in patients as young as 18.

    Not a doctor but have worked diagnosing leukemia for almost 10 years in specialist hospitals so can give some information if you can find out what it is.

Viewing 15 posts - 1 through 15 (of 15 total)

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