So a pretty tough week all in all initially coming to terms with it all, prognosis is actually pretty good, caught it early and all. Odds are very good for me being around for a very long time and being able to see my little boy (2 years old) grow up.
I get the impression that if somebody said you’ve got to have a Leukaemia, you’d pick this one.
Bit of a long shot as it’s fairly rare (1:100,000 ish) but anybody on here have it or know anybody with Chronic Myeloid Leukaemia?
I’ve been told once off Chemo and it’s under control\in remission and I’m on the inhibitor drugs, I should be able to lead “a normal life”. I’ve told the Dr’s I’m pretty active normally running and cycling etc and they’ve said that should be fine but I’m not sure the registrar fully understands what normal for me is, Marathons now and again, 100+ mile bike rides, Long Adventure Races etc…
Yeah I know I need to speak more to my Dr’s which I will when I’m in in the next few days (and due to see the consultant), but just after any real world experiences if possible. I’ll probably drop in to Macmillan centre in the hospital too when I’m there.
Thanks in advance