Most of you will have been following the thread I've set up regarding my rare cancer. The last few months have given me the opportunity to think about what we regard as important in life; health, opportunity, happiness etc. My cancer is a burden, but also maybe an opportunity. From speaking to a variety of sources, I've found that there is research about sarcoma, but not enough to effectively impact it and the survival rates amongst those it affects. Its almost like the cancer affects so few people proportinally that it doesn't attract the finances needed to research it. I look at newsletters when I go to the Marsden for my treatment, full of beautiful vibrant young people whose live's have been taken by this spiteful disease, and the effect on those it leaves behind; spouses, children, family and friends.
I am supposed to be dead. Those following my original thread will be aware of the statistics for survival, and I should have died around October. I've decided that, instead of rolling over and dying, I'm going to do all I can to raise awareness, in order to support those with sarcoma, provide funding for research, and increase opportunities for children with sarcoma to experience the fun and laughter that all kids should be able to on a daily basis.
I'm setting up a charitable foundation that will feed money into Sarcoma UK, and hope to raise money through sponsorship, corporate and charitable. Meg and I have talked about this, and its something that's important to both of us. Truth be told, I'm not sure how to start, and wondered if anyone on here has any experience when it comes to this sort of thing? I have very little in the way of skills; at best, I'm tenacious and willing to camp outside peoples doors to get things done, but also accept that this isn't always the way things are done. I intend to do the following things;
1) Set up a charitable foundation
2) Sort out a website
3) Get corporate sponsorship through a high-profile sustained media campaign
4) Establish and participate in continual money-raising activities.
I know that it might sound unrealistic, but its the only way. I intend to have a go at LEJOG on a tandem this year, and then hopefully C2C in the US in 2011. I figure that I can raise interest by utilising the media, and corporate sponsors by wearing/eating/riding the right products and demonstrating their 'positive social/corporate images'. But the rest of it is a bit of a blur, and I'm at pains to admit it, but you lot are probably the most knowledgeable guys and girls I've had the fortune to converse with.
Any ideas? By the way, I'm going to call it 'The Bullheart Foundation'...